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Gluten Problem Or Acid Reflux?


cevans

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cevans Newbie

Hi, I'm brand new here and have to say I hope somebody can identify with me! I'm 53 and only now discovered that I have an acid reflux problem! I have had chronic stomach issues all my life. As a newlywed, I would have to sit up in bed to burp in order not to throw up. I just thought it was the way I was.

Two years ago I started a gluten free diet (or nearly) and that helped with the severe constipation and nausea. Then about a year ago, I started drinking Kroger decaffeinated coffee and that seemed to cause stomach aches. Also, I take a little Ambien at night and I'm wondering if that is causing me to fall asleep with an upset stomach, making the acid reflux worse.

I had a scope test and two swollen nodules and am on a month's worth of Omeprazole before another scope test.

Has anyone else been confused between gluten and acid reflux?

I would be thrilled to know I'm not just plain dumb!


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beebs Enthusiast

One of my main symptoms of eating gluten was severe acid reflux.

Lady Eowyn Apprentice

Hi there

When I used to eat gluten and now if I eat dairy when I bend over acid runs back.

Not good. If I stay away from them I'm fine.

BabsV Enthusiast

The doctors misdiagnosed me with GERD problems versus Celiac. Took months and lots of different medicines (none of which worked) before they thought outside that box. If I get glutened I get the worst reflux symptoms and they last for about 24-36 hours.

You mentioned coffee sets it off. Do other drinks with caffeine do the same? Caffeine can cause problems for those who have reflux...along with acidic foods, etc.

Cara in Boston Enthusiast

I took meds for GERD for over a year (sometimes 2X a day) and the symptoms would still come and go . . . could not figure out a trigger food and the meds didn't really seem to help. Was told I would be taking them for life. When my son was diagnosed with Celiac, I got tested and had a positive blood test. I stopped eating gluten then stopped taking the GERD meds a week later. I have had ZERO GERD symptoms since then (except when I accidently ate gluten) It has been over a year.

You could have GERD for sure, but it may be caused by gluten . . . I wish my doctor had thought to find the cause rather then just treat the symptoms.

Cara

Pauliewog Contributor

My whole search into what was wrong with me started with this "bubbling" I felt in my stomach. The doctor thought acid reflux but I never had that burning, something is moving up, feeling. To make a long story short, I tested negative for Celiac but after becoming VERY sick after two gluten challenges the doc and I settled on "gluten sensitive." The bubbling improved off gluten but is not gone. I happened to see an article on a new book called The Acid Reflux Solution (Dr. Jorge Rodriguez). I decided to order it. I only tried a couple of days of eating how the book described and I already felt much better. The bubbling was basically gone. The problem is, when I gave up gluten I thought, "at least I can still have my coffee and chocolate!" I am having a HARD time stopping those. However, now that I am more aware I do notice an acidic feeling after coffee. I am going to try it faithfully soon and see how I feel. I found the book easy to read. I am new to all this so there might be other books out there.

birdie22 Enthusiast

Heartburn is one of my main symptoms. It hasn't fully resolved yet but clearly flares when glutened.


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mommida Enthusiast

There is a link between Celaic and Eosinophilic Esophagitus. EoE has many of the same gi symptoms as Celiac, but add GERD like chest pain and vomitting. Diagnoses between child-adult is a difference in the total count of eosinophils found during an endoscopy with biopsy.

Chad Sines Rising Star

I agree. Dairy and gluten set me on fire. Not 100% gone when I am good but that could be because I tend to cheat like an idiot.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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