Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me With These Tesults...please?

Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast
Mnicole1981
Posted

So I was able to get my detailed labs.

Sodium 141 (135-146)

Potassium 4.1 (3.6-5.2)

Chloride 109 (100-108)

Carbon Dioxide 24 (21-32)

Glucose 80 (70-99)

Bun 9 (6-22)

Creatinine 1.3 (0.7-1.4)

eGFR 61.2 (>60)

total protein 8.3 (6.5-8.2)

albumin 4.0 (3.5-4.8)

calcium 9.5 (8.7-10.7)

bilirubin 0.3 (0.0-1.0)

sgot/ast 17 (10-45)

sgpt/alt <17 (26-65)

alk phos, total 72 (45-132)

Folic acid is high...35.3 (3.0-18.0)

total protein 8.3 (6.5-8.2)

albumin 4.0 (3.5-4.8)

Not sure what is wrong with me. Probably not celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.

No, I am not taking any supplements. I may have taken a B12 that day. Now I am just freaking out completely.

IrishHeart Veteran
IrishHeart
Posted

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?

and your Celiac panel was.....???

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?

and your Celiac panel was.....???

This is all she tested:

AB Gliadin IGA - 3 (0-19 units)

AB Gliadin IGG - 2 (0-19 units)

IrishHeart Veteran
IrishHeart
Posted

I don't think that's a full panel.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I didn't think it was either.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I didn't think it was either.

sorry, hon. Can it be re-done?

When is the biopsy? next week?

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.

IrishHeart Veteran
IrishHeart
Posted

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.

Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.

Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:

tTG-IgA or tissue transglutaminase-IgA

AGA-IgG or Antigliadin IgG

AGA-IgA or Antigliadin IGA

Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.

Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:

tTG-IgA or tissue transglutaminase-IgA

AGA-IgG or Antigliadin IgG

AGA-IgA or Antigliadin IGA

Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.

I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.

Lisa Mentor
Lisa
Posted

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Thank you Lisa. I want to say the high folate may be related to the fact that I eat a lot of Rice Chex and they have 50% daily value and I eat them every day, sometimes more than once a day.

IrishHeart Veteran
IrishHeart
Posted

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

That's right! Thanks, Lisa.

I wonder why it was not updated on Dr. Fasano's site yet? (That's the one I always take the list from).

One member (meggielynn) had this one done DGP--and the doctor said it was not useful, but when she went to my doc, he thought otherwise.

Deamidated Gliadin Peptide (DGP) Antibodies, IgA: Anti-DGP test is a relatively new test that may be positive in some people with celiac disease who are anti-tTG negative, including children less than 3 years old.

Anti-Endomysial Antibodies (EMA), IgA class: The test is more difficult to do and interpret properly than anti-tTg.

IrishHeart Veteran
IrishHeart
Posted

I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.

It was due to those, ovarian and uterine cysts, heavy bleeding, and everything else.

I never carried to term. I lost 5 pregnancies. It was devastating. I was in perimenopause early and had all those symptoms I listed. I was a mess.

You're very young, hon. Maybe a gluten-free diet might correct some things!!

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

It was due to those, ovarian and uterine cysts, heavy bleeding, and everything else.

I never carried to term. I lost 5 pregnancies. It was devastating. I was in perimenopause early and had all those symptoms I listed. I was a mess.

You're very young, hon. Maybe a gluten-free diet might correct some things!!

My period was over yesterday but I am still spotting with some cramping and that is weird to me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    2. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    3. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    5. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748
    sbr
    Newest Member
    sbr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.