Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me With These Tesults...please?

Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast
Mnicole1981
Posted

So I was able to get my detailed labs.

Sodium 141 (135-146)

Potassium 4.1 (3.6-5.2)

Chloride 109 (100-108)

Carbon Dioxide 24 (21-32)

Glucose 80 (70-99)

Bun 9 (6-22)

Creatinine 1.3 (0.7-1.4)

eGFR 61.2 (>60)

total protein 8.3 (6.5-8.2)

albumin 4.0 (3.5-4.8)

calcium 9.5 (8.7-10.7)

bilirubin 0.3 (0.0-1.0)

sgot/ast 17 (10-45)

sgpt/alt <17 (26-65)

alk phos, total 72 (45-132)

Folic acid is high...35.3 (3.0-18.0)

total protein 8.3 (6.5-8.2)

albumin 4.0 (3.5-4.8)

Not sure what is wrong with me. Probably not celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Don't assume because those labs were okay that you are not celiac. Those tests were all fine with me also. Do ask your doctor about the high folate. Are you taking supplements with folate? A high folate can also cause a falsely higher score on the B12 from my understanding, and your B12 levels should be also checked along with your vit D and perhaps some others that I am forgetting. I also don't see a CRP which I think tells you if you have inflammation going on. Someone please correct me on that one if I am wrong.

No, I am not taking any supplements. I may have taken a B12 that day. Now I am just freaking out completely.

IrishHeart Veteran
IrishHeart
Posted

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?

and your Celiac panel was.....???

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

There is nothing to freak out about. Those test results show you are within normal ranges. So far, so good. The folate level was high, but it is not tanked, so you are not folate deficient, which is common with celiac. What did the doctor say about that?

and your Celiac panel was.....???

This is all she tested:

AB Gliadin IGA - 3 (0-19 units)

AB Gliadin IGG - 2 (0-19 units)

IrishHeart Veteran
IrishHeart
Posted

I don't think that's a full panel.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I didn't think it was either.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I didn't think it was either.

sorry, hon. Can it be re-done?

When is the biopsy? next week?

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.

IrishHeart Veteran
IrishHeart
Posted

Next Tuesday. I had an ultrasound done today and the tech said things looked normal but I dunno. I was supposed to be scoped tomorrow but the rescheduled it with a colonoscopy for Tuesday.

Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.

Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:

tTG-IgA or tissue transglutaminase-IgA

AGA-IgG or Antigliadin IgG

AGA-IgA or Antigliadin IGA

Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Eat gluten until the biopsy ---as hard as it is to suffer the symptoms.

Let us know what happens.

I would tell the doctor your Celiac testing is incomplete.

The panel includes:

tTG-IgA or tissue transglutaminase-IgA

AGA-IgG or Antigliadin IgG

AGA-IgA or Antigliadin IGA

Total IGA

The presence of tTG antibodies is highly suggestive of celiac disease.

But in some cases (like Ravenwoodglass and me) it can be falsely negative.

I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.

Lisa Mentor
Lisa
Posted

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Thank you Lisa. I want to say the high folate may be related to the fact that I eat a lot of Rice Chex and they have 50% daily value and I eat them every day, sometimes more than once a day.

IrishHeart Veteran
IrishHeart
Posted

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

That's right! Thanks, Lisa.

I wonder why it was not updated on Dr. Fasano's site yet? (That's the one I always take the list from).

One member (meggielynn) had this one done DGP--and the doctor said it was not useful, but when she went to my doc, he thought otherwise.

Deamidated Gliadin Peptide (DGP) Antibodies, IgA: Anti-DGP test is a relatively new test that may be positive in some people with celiac disease who are anti-tTG negative, including children less than 3 years old.

Anti-Endomysial Antibodies (EMA), IgA class: The test is more difficult to do and interpret properly than anti-tTg.

IrishHeart Veteran
IrishHeart
Posted

I will have another doctor test me for it again.

Off-topic, but was your hysterectomy due to fibroids? My mother now seems to think that is my problem and they are hereditary.

It was due to those, ovarian and uterine cysts, heavy bleeding, and everything else.

I never carried to term. I lost 5 pregnancies. It was devastating. I was in perimenopause early and had all those symptoms I listed. I was a mess.

You're very young, hon. Maybe a gluten-free diet might correct some things!!

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

It was due to those, ovarian and uterine cysts, heavy bleeding, and everything else.

I never carried to term. I lost 5 pregnancies. It was devastating. I was in perimenopause early and had all those symptoms I listed. I was a mess.

You're very young, hon. Maybe a gluten-free diet might correct some things!!

My period was over yesterday but I am still spotting with some cramping and that is weird to me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.