Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Restaurants Refusing To Accommodate


sandsurfgirl

Recommended Posts

Juliebove Rising Star

I have noticed the opposite here. More and more places are offering gluten-free things. Oddly enough my daugher has outgrown her gluten intolerance so she doesn't need those things! But it is good for other people.

I do agree with the poster who mentioned gluten-free as being a fad. I had some Energ-G bread that I wanted to give to a person who needed it. But the only other gluten-free person I knew of (aside from the owner of the local health food store and would not eat such bread) also outgrew her gluten...whatever...not sure if it was an allergy or intolerance.

This lady overheard me say this and said that her husband was trying to stick to a healthy diet so she would take the bread. I had a feeling that my trying to explain what gluten was and why her husband probably didn't need to avoid it would be lost on her. So I just gave her a loaf of each of the breads we had to try. They liked it so I gave her the rest of it.

I also have a feeling that they are hurting more financially than she might have let on so perhaps *any* bread I gave her would have been a help. Her husband is no longer able to work due to some medical issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Youe daughter is certainly one of the few and the lucky if she truly no longer has to eat gluten free. Long may it continue!

sandsurfgirl Collaborator

Today the restaurant that said on their website they can't accommodate food allergies did an awesome job for me. They couldn't give me any meat because all their meats are premarinated in soy sauce. Very weird for a Mexican restaurant. But they made me a nice HUGE platter of veggie fajitas and a side of rice and beans with guacamole. It tasted great. DS got a cheeseburger with no bun and a side of beans.

I thanked the manager for all her help and attention and she told me she made them clean the grill and prep it in a separate area.

Bucca Di Bepo had an gluten free menu. Not sure if they still do. Italian is scary because of the flour everywhere but I never got sick there and it's awesome. So I do think it's a matter of them knowing what they're doing and also caring to do it well.

sandsurfgirl Collaborator

I have noticed the opposite here. More and more places are offering gluten-free things. Oddly enough my daugher has outgrown her gluten intolerance so she doesn't need those things! But it is good for other people.

I would be very careful with that. That's pretty much unheard of. Allergies can be outgrown but this... not so much.

Here's a quote from another thread that I read tonight.

"If you were gluten free for any length of time, the antibodies could have died down.

It is one of the reasons they used to think children outgrew Celiac.

At some point they appeared to be able to eat gluten again.

But then they noticed that these kids are the ones who developed the secondary autoimmune diseases and cancers associated with Celiac.

Don't een know if you are Celiac or not, but that could happen. The antibodies go away when your body doesn't have to fight wheat anymore. Then it takes time to build them up when you do start eating wheat."

Celiac is a weird disease. It can go into remission and then come back with a vengeance. Because of the wide variety of symptoms you may not realize she's getting sick from gluten.

Anyone with "intolerance" can never rule out celiac because the testing is so unreliable. Intolerance is just as serious as celiac and there is a very good chance she does have celiac and the tests were a false negative.

I think it's tempting to say yay no more gluten free but it's a dangerous experiment. Be vigilant. Since she's eating gluten again, after a few months get her tested again. Might as well, at least the blood test.

dani nero Community Regular

I would be really interested in talking to the managers or whoever in charge of these decisions at few of the restaurants that do it consistently well. I'd like to find out why and how.

I find it's generally the better restaurants that do gluten-free well; upcoming chefs... If they use fresh ingredients it's very easy to do gluten-free (except bakeries). I find it's an attitude, a general feel to the place - pride in what they do and a passion for food perhaps that seems to be in common, at least on the surface?

I suspect the effort and training at a restaurant that does gluten-free well trains their employees well in general, and doing gluten-free is just easier.

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

sandsurfgirl Collaborator

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

It depends on the family. There is a family restaurant here that keeps their chicken recipe secret. Even the managers don't know what's in the seasoning package. I asked if they could contact the owner and just find out if it has gluten. We used to eat there all the time and it's up the street from us. The owner just kept blowing me off and not responding so I gave up.

mushroom Proficient

Maybe when the restaurants are owned by a family or a food fanatic who take pride in offering really good food for everyone. It would be very a very interesting study :-)

I eat at a small lunch counter where the owner/chef is a celiac, and it is so wonderful to feel totally safe. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

We have a beautiful, fairly new retirement home/assisted living facility in our town. They hold events and concerts that are open to the public. I went there yesterday because they had a Mother's Day buffet and a very talented harpist was playing. I did not intend to eat, but was happy to pay my twelve dollars just to hear the harpist.

I got up and LOOKED at the buffet, and there was a nice lady there who asked if she could help me. I explained about the Celiac and corn allergy. She promptly pointed out the things I could eat - the roast beef that had been cooked plain, the vegetables and salads, the potatoes ("but you can't have the gravy"). The only thing she wasn't aware of was the marshmallow topping on the sweet potatoes being made with corn. I explained to her that veggies are often washed in a citrus wash made with corn. She assured me that they used pure ice water to wash their veggies and nothing else.

So I took a chance. I had two slices of roast beef, some carrots (raw), some cukumbers (plain) and a small handful of grapes for dessert. It was so nice to be able to eat with my friends, and so far I have not had a reaction.

This is only the second time I have eaten out since last June. I feel triumphant! I don't mind bringing my own food or eating before I go, but how cool it was to relax and enjoy the music AND the food!

pricklypear1971 Community Regular

We have a beautiful, fairly new retirement home/assisted living facility in our town. They hold events and concerts that are open to the public. I went there yesterday because they had a Mother's Day buffet and a very talented harpist was playing. I did not intend to eat, but was happy to pay my twelve dollars just to hear the harpist.

I got up and LOOKED at the buffet, and there was a nice lady there who asked if she could help me. I explained about the Celiac and corn allergy. She promptly pointed out the things I could eat - the roast beef that had been cooked plain, the vegetables and salads, the potatoes ("but you can't have the gravy"). The only thing she wasn't aware of was the marshmallow topping on the sweet potatoes being made with corn. I explained to her that veggies are often washed in a citrus wash made with corn. She assured me that they used pure ice water to wash their veggies and nothing else.

So I took a chance. I had two slices of roast beef, some carrots (raw), some cukumbers (plain) and a small handful of grapes for dessert. It was so nice to be able to eat with my friends, and so far I have not had a reaction.

This is only the second time I have eaten out since last June. I feel triumphant! I don't mind bringing my own food or eating before I go, but how cool it was to relax and enjoy the music AND the food!

Yay!

KMMO320 Contributor

I work in a teeny restaurant and I have to admit, it is VERY hard to accomodate food allergies. I bring my own food to work unless I feel like ordering a plain salad. For Celiacs, there really isnt anything I would reccomend. Our cooking surfaces are SO SMALL that in order to serve them safely, the cook would have to ONLY be cooking for that table. He wouldn't have room to grill a plain steak and regular food for another table..it would really bog down the whole kitchen..so unless we are really slow, there isnt much we can do, and I say that as someone who has this problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.