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Confused

amberlink09

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amberlink09 Apprentice
amberlink09
Posted

Hey guys,

I've posted on here a few times in the last week, as I've been seeing a lot of doctors to try to figure out what is going on with me. I've been gluten free for 3 years and Paleo for 7 months now. About 3 weeks ago, my leg went totally numb, and since then it's stayed that way plus tingling/numb hands and feet. It took me 3 doctors, but I finally found one who ran some tests and found out I'm vitamin B12 and D deficient. She then referred me to an immunologist because I get some sort of cold/strep/whatever almost every 2 weeks since I've been sick, so the immunologist ran a metabolic panel, tested my IgA and IgG and my ANA and everything came back fine, except my ANA which was 1:80, but the doctor said it's a low positive so we will wait to see if it develops before we do more testing. About a week ago I started having awful joint pain in my knees, ankles, wrists, and elbows, and I've just been insanely tired. My stomach has also been terrible for about a month now. I'm only 21 and I feel like my body is just fighting me right now. I feel like I'm 80 or something, and the tests have been inconclusive so I just don't know where to go from here. Does anyone have some suggestions, advice, or maybe just uplifting words?

Thanks!

Amber

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beebs Enthusiast
beebs
Posted

There are connections with autoimmune diseases, once you have one you are more likely to have more. If you are getting joint pain you should get referral to a rheumatologist - they do autoimmune diseases of the connective tissue variety (RA, Lupus, Sjogren's etc)- and your symptoms along with your ANA could point to that.

TeknoLen Rookie
TeknoLen
Posted

Your doctor may have already checked it but if not, you may want to have her check your thyroid function also. Hypothyroidism can cause tiredness like you describe (although so can many other conditions so this is just one possible cause). Be aware that what some labs call a "normal" TSH score may actually be outside of the more ideal "functional" range. Good luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

Just another thought. Do you consume soy products? Soy for me is a no go because it flares my joints and give me tummy issues.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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