Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate This


bratcat

Recommended Posts

bratcat Apprentice

I'm gluten free and STILL bloated and feel crappy.I will be so glad when I can feel good again.I'm not really sick,just feel as big as a blimp and stomach feels weird.I am so careful to not eat gluten yet I still feel like I have.Does anyone else feel this way?Sometimes I think if I am going to feel this way,I might as well eat the foods I want so badly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I don't feel sick but I do get very bloated now....especially if I have any dairy. I'm not eating dairy now and cutting back on the processed gluten-free foods and it seems to be helping.

MySuicidalTurtle Enthusiast

Don't give up! Keep looking at your diet and see if there ar eother issues. I have problems with dairy things too and also with acidic foods. Once you get everything worked out you will feel better. If you eat the food that you know make you sick they will only cause damage and hurt you even more. I hope you start feeling better, Bratcat.

PreOptMegs Explorer

I have posted this a lot, but I believe in it 100%. THe gluten-free diet didn't do it for me. period. Try looking into the specific carbohydrate diet (www.breakingtheviciouscycle.com). Any questions, please ask. It is an amazing diet and I feel better than I ever have.

tarnalberry Community Regular
I'm gluten free and STILL  bloated  and feel crappy.I will be so glad when I can feel good again.I'm not really sick,just feel as big as a blimp and stomach feels weird.I am so careful to not eat gluten  yet I still feel like I have.Does anyone else feel this way?Sometimes I think if I am going to feel this way,I might as well eat  the foods I want so badly.

<{POST_SNAPBACK}>

Have you determined whether or not you have a problem with dairy? Those symptoms you list are the most common symptoms of lactose intolerance.

SandyShoes Rookie

I can relate. I have lived on these boards the last few days, because I must have gotten glutened somewhere and I feel lousy. Back to the topic tho, I am a tiny person, size 4...and right now...I betcha my gut alone is a size 8. Its a rumbling, bubbly, gurgly bloated MESS, my stomach is...been gluten free 4 months. Doesnt feel like it tho, and yes, I HATE IT TOO. I agree with the poster about eliminating dairy. I do think that since its so hard to digest, it can't be helping us any when our intestines are damaged.

I think corn is another culprit, too...at least for me.

Hope you feel better soon...

bratcat Apprentice

I have never had a problem with dairy or corn.I really don't feel this way all the time.Last week I was fine.I stuck to cornbread all week and for breakfast I used the Ezekiel bread--cinnamon and raisin.I am doing the same this week but feel lousy :( .I guess I really get down too easily,but I am 55 years old and have been at this for a year.It IS hard to teach an old dog a new trick! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I have never had a problem with dairy or corn.I really don't feel this way all the time.Last week I was fine.I stuck to cornbread all week and for breakfast I used the Ezekiel bread--cinnamon and raisin.I am doing the same this week but feel lousy :( .I guess I really get down too easily,but I am 55 years old and have been at this for a year.It IS hard to teach an old dog a new trick! :D

<{POST_SNAPBACK}>

Ezekiel bread is made from sprouted gluten-containing grains. You got glutened!

bratcat Apprentice
Ezekiel bread is made from sprouted gluten-containing grains.  You got glutened!

<{POST_SNAPBACK}>

The lady at the health food store told me that since it was made from sprouted grain it had no flour,therefore no gluten.She is on a gluten-free diet and she uses it.

There is still so much I don't know or understand about all this. :unsure:

KaitiUSA Enthusiast
The lady at the health food store told me that since it was made from sprouted grain it had no flour,therefore no gluten.She is on a gluten-free diet and she uses it.

There is still so much I don't know or understand about all this. :unsure:

<{POST_SNAPBACK}>

You were misinformed. If she follows the diet too then she was glutened as well because that stuff is NOT gluten free.

Rachel--24 Collaborator

Nope...Ezekial bread is not gluten-free. So now you know why you feel sick. I just don't trust what a store employee says is gluten-free or isn't gluten-free...always doublecheck. Yesterday at a health store the guy who helped me was VERY knowledgeable about celiac disease and he gave me some vitamins which he said were the best. Of course the first thing I asked was if they were gluten-free...he said they were and I bought them. Had to return them today cuz when I got home and checked the label it only said Wheat Free and sure enough it had barley grass. Luckily I didn't get glutened.

bluelotus Contributor

Hi all,

I was feeling lousy for a while too until I learned that I had dairy/egg intolerance as well as a corn sensitivity. I also eliminated soaps and shampoos that contained wheat - it eliminated my headaches. I probably had residues on my hands and got glutened. Good luck!

tarnalberry Community Regular
The lady at the health food store told me that since it was made from sprouted grain it had no flour,therefore no gluten.She is on a gluten-free diet and she uses it.

There is still so much I don't know or understand about all this. :unsure:

<{POST_SNAPBACK}>

A not uncommon, but very problematic misconception. The sprouted grain still contains the protein that bothers us. In theory, if grown long enough, the grass that forms from such a sprout might have no gluten, but they're not using the grass, they're using the sprout, and it's got the protein.

Rachel--24 Collaborator
A not uncommon, but very problematic misconception.  The sprouted grain still contains the protein that bothers us.  In theory, if grown long enough, the grass that forms from such a sprout might have no gluten, but they're not using the grass, they're using the sprout, and it's got the protein.

<{POST_SNAPBACK}>

So is barley *grass* considered gluten-free. Its in my vitamins and I assumed it had gluten...it probably does but I just want to double check cuz lots of things have wheat grass or barley grass in them.

tarnalberry Community Regular

There isn't a yes/no answer on this one. As the seed sprouts and grows a blade of grass, the protein in the plant is used up in the metabolic process. When does all the protein get used up? Who knows? That's why I avoid grasses and sprouts from the offending grains.

Rachel--24 Collaborator

Thanks,

I checked the unsafe food ingredient list and barley grass is on there so now I know. :) My luck there would be tons of gluten left in that blade of grass!

Guest BellyTimber

In addition to that, a very great many of us have sensitivity to the whole of the wheat, barley, rye etc not just its germ.

debmidge Rising Star

Just a thought, but maybe the lady in the health food store isn't celiac but eats gluten-free for other reasons and that's why she doesn't get the reaction you do? Just a thought....I could be wrong...

  • 2 years later...
Better-Days-Ahead Newbie
Nope...Ezekial bread is not gluten-free. So now you know why you feel sick. I just don't trust what a store employee says is gluten-free or isn't gluten-free...always doublecheck. Yesterday at a health store the guy who helped me was VERY knowledgeable about celiac disease and he gave me some vitamins which he said were the best. Of course the first thing I asked was if they were gluten-free...he said they were and I bought them. Had to return them today cuz when I got home and checked the label it only said Wheat Free and sure enough it had barley grass. Luckily I didn't get glutened.

"Food For Life" makes a wheat-free bread line, and separate from these products, makes a gluten-free bread line. On one line the packaging says, "flourless, wheat-free" and on the other line of products the packaging says, "Gluten-free". People, apparently, are generalizing -- incorrectly -- when they report that Ezekial bread is "....not gluten-free..." They need to purchase products in "Food For Life's" gluten-free product line. And no, I don't have a horse in this race but just want people to be correctly informed so that educated decisions may be made.

JNBunnie1 Community Regular
"Food For Life" makes a wheat-free bread line, and separate from these products, makes a gluten-free bread line. On one line the packaging says, "flourless, wheat-free" and on the other line of products the packaging says, "Gluten-free". People, apparently, are generalizing -- incorrectly -- when they report that Ezekial bread is "....not gluten-free..." They need to purchase products in "Food For Life's" gluten-free product line. And no, I don't have a horse in this race but just want people to be correctly informed so that educated decisions may be made.

Nobody said Food For Life doesn't make gluten free food, they said that Ezekiel brand stuff is sprouted wheat & other grains, ergo, not gluten free. There is no "Ezekiel" gluten free stuff. If there is, by all means, I'd love to have sprouted rice bread.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.