Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New W/ Questions

jlmama

Recommended Posts

jlmama Newbie
jlmama
Posted

Hi, new here looking for direction or support I guess.

In college (2000) I had many stomach issues and once had a stomach scope that showed inflammation, but nothing was Dx. A doctor suggested I go gluten free and I tried but did not feel better, however this was before the internet was huge and she didn't really explain what that meant to be gluten-free so looking back I know I really wasn't gluten-free. My stomach issues have improved significantly most likely due to eating better overall and not drinking to excess like I did in my early 20s, living the college life :rolleyes: .

I was then Dx with endometriosis in 2006. It has been in remission since I got pregnant with my first child in 2008, followed by my second in 2011.

I was just DX with Hashimoto's (sky high antibody and TSH levels, low Free T3 and T4) and have started thyroid replacement.

I was also tested for Celiac's - Gliandin AB IgA and IGG as well as Recticulin IGA AB - all negative.

Family history includes mother with Hashimoto's, Fibro, and CFS.

I have read some studies about a link between Hashimoto's and Celiac's which was why I requested the testing. I have also read about a link between endometriosis and wheat.

Do you think I could still benefit from a gluten-free diet? I don't feel awful, but I also tend to not notice how bad I feel until I feel better if that makes sense.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaupupup Contributor
mamaupupup
Posted

Yes, it's hard to know what "good normal" is until "bad normal" is a thing of the past. I have two kids with Celiac and it's my turn to test...I had no real understanding of my symptoms until I went on a (nearly) gluten-free diet and then started gluten loading for my testing. On gluten I have lots of issues which I historically considered "normal."

Yes, going 100% gluten free for a significant amount of time (6+ months) and feeling better from that may help you decide your path.

However, before you go gluten-free, please make sure all the Celiac tests were done. (If you have no gluten in your system, you will not have a fair test result). I didn't see TTG listed as one of your tests for Celiac. It's highly specific and accurate for Celiac.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748
    Chels22
    Newest Member
    Chels22
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...