Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Biopsy

cristalbleu13

By cristalbleu13
in Doctors

Recommended Posts

cristalbleu13 Newbie
cristalbleu13
Posted

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

It means total villous atrophy or completely flattened villi. Completely atrophic. . It is in this extremely uncommon setting that a

lymphoma is more likely to occur.

See:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Have you been gluten free since the age of two? Was this the results of an endoscopy at the age of 2 or was this from a recent endoscopy?

beachbirdie Contributor
beachbirdie
Posted

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).

The grade 4 atrophy rating is a measurement of damage to the villi in your intestine. A rating this high is usually seen in untreated celiac.

When was this biopsy done? If recent, you have serious intestinal damage going on. And at risk for a lot of stuff.

cristalbleu13 Newbie
cristalbleu13
Posted
  • Author

It means total villous atrophy or completely flattened villi. Completely atrophic. . It is in this extremely uncommon setting that a

lymphoma is more likely to occur.

See:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Have you been gluten free since the age of two? Was this the results of an endoscopy at the age of 2 or was this from a recent endoscopy?

This was at the age of 2 , had been on gluten free diet for 16 years ,then stopped it at the age of 18 and after 4 years of gluten started having ibs symptoms , anxiety , panic attacks and lost 11 lbs , had to come off gluten again without listening to doctors and it's been 4 week since i went on gluten free diet again.

beachbirdie Contributor
beachbirdie
Posted

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).

Ahh...I just went back and found one of your original posts in which you shared your whole story.

I am dumbfounded that a doctor put you back on a "normal" diet after having been diagnosed celiac. And that they went fishing for other things when you started getting sick.

Celiac is not something you "get over", and you simply must be gluten free. The damage is causing nutritional deficiencies which will feed your panic attacks, neuropathies, and other symptoms.

They shouldn't be putting you through this all over again and I'm sorry you've been suffering for the sake of incompetent doctors. :angry:

cristalbleu13 Newbie
cristalbleu13
Posted
  • Author

Ahh...I just went back and found one of your original posts in which you shared your whole story.

I am dumbfounded that a doctor put you back on a "normal" diet after having been diagnosed celiac. And that they went fishing for other things when you started getting sick.

Celiac is not something you "get over", and you simply must be gluten free. The damage is causing nutritional deficiencies which will feed your panic attacks, neuropathies, and other symptoms.

They shouldn't be putting you through this all over again and I'm sorry you've been suffering for the sake of incompetent doctors. :angry:

I got fed up of doctors , how long will it take to get rid of gluten ?? how long will it take for the symptoms to go away if they are related to my celiac disease

beachbirdie Contributor
beachbirdie
Posted

I got fed up of doctors , how long will it take to get rid of gluten ?? how long will it take for the symptoms to go away if they are related to my celiac disease

Kind of depends on your body. Some people heal more quickly than others.

Were you feeling fairly well before you were taken on this misadventure?

It is possible it could take up to some months to heal. Because celiac is an autoimmune response to the gluten, you will have a lot of inflammation in your body. That takes time to overcome, even after the immediate symptoms have faded.

I hope you will be feeling well very soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cristalbleu13 Newbie
cristalbleu13
Posted
  • Author

Kind of depends on your body. Some people heal more quickly than others.

Were you feeling fairly well before you were taken on this misadventure?

It is possible it could take up to some months to heal. Because celiac is an autoimmune response to the gluten, you will have a lot of inflammation in your body. That takes time to overcome, even after the immediate symptoms have faded.

I hope you will be feeling well very soon!

To be honest with you i have lots of symptoms , stomach problems , ibs , anxiety , panic attacks but since i started the gluten free diet i managed to eat , i'm having my appetite back again , i'm not feeling that sad like i was before ( i'm not crying for no reason now i'm fine), i'm bit worried because i'm not sure if all of this is caused by my celiac disease , and i'm not sure wether it will go away or not in couple of months , the doctor i'm with at the moment doesn't care at all , she didn't even believe i had a celiac disease at the age of 2 until i had to show the medical record because the blood test was negative .

We will see how it goes in 2 to 3 months :(

squirmingitch Veteran
squirmingitch
Posted

Your problems really ARE due to the celiac dear --- they really are. I know it seems hard to believe but believe. There are countless people who have posted on this board who can attest to the myriad of things untreated celiac causes to happen. You have had celiac disease your whole life. It will never go away but you will be fine if you stay on a strict gluten-free diet. Hang in there! You'll get better --- honest!!!!smile.gif

Ninja Contributor
Ninja
Posted

Here is a link that lists everything that can be a symptom, or related disorder of Celiac: Open Original Shared Link

cristalbleu13 Newbie
cristalbleu13
Posted
  • Author

Thank's everybody and i hope i'll get better soon with the gluten free diet :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free. Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by...
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      I believe the GFCO does use a common logo for certified gluten free products (those containing not more that 10ppm of gluten) but nothing universal yet from the FDA for standard gluten free products (those containing not more that 20ppm).
    3. Doyleaj
      - Doyleaj replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

      I have a One Pot and decided to start using it one day. I was hesitant at first making my own yogurt, but was surprised at how easy it was. I like mine better too.
    4. Doyleaj
      - Doyleaj replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Because I spend so much time reading every word on all food packaging, I personally would greatly appreciate it if there was one common gluten-free symbol written in large-enough text, and always located in the same place. That alone will make shopping easier and faster. I dread having to buy packaged food. Thank you very much for asking,
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Insomnia help

      I do believe that people are under so much pressure up have a sleeping pattern , with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same at night many times so I hope I live into my nineties also , I have found one thing...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,363
    • Most Online (within 30 mins)
      7,748
    Nichola530
    Newest Member
    Nichola530
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Gluten free Yogurt suggest

      By trents · Posted

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      I believe the GFCO does use a common logo for certified gluten free products (those containing not more that 10ppm of gluten) but nothing universal yet from the FDA for standard gluten free products (those containing not more that 20ppm). 
    • Doyleaj
      Gluten free Yogurt suggest

      By Doyleaj · Posted

      I have a One Pot and decided to start using it one day. I was hesitant at first making my own yogurt, but was surprised at how easy it was. I like mine better too.
    • Doyleaj
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Doyleaj · Posted

      Because I spend so much time reading every word on all food packaging, I personally would greatly appreciate it if there was one common gluten-free symbol written in large-enough text, and always located in the same place. That alone will make shopping easier and faster. I dread having to buy packaged food. Thank you very much for asking,
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      I do believe that people are under so much pressure up have a sleeping  pattern ,  with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same  at night many times so I hope I live into my nineties also , I have found one thing in life your body knows what's best so good to listen to wat it needs however unconventional that maybe 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.