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I Need Serious Help!

raea2002

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raea2002 Apprentice
raea2002
Posted

I was diagnosed with gluten intolerance in feb this year. I've been struggling staying on the diet. I have a serious addiction to good gooey gluten. I normally do well, but I keep falling lately. I feel like since I didn't get an official diagnosis of celiac that all the issues I have are in my head. I eat gluten and then I pay for it, and my family does too. I get really severe headaches and have no energy after I eat it. I wish I could just accept this in my head.

I guess I struggle with all of this because I'm such a picky eatter I'm a vegitarian so my meal/food options are limited and feel like I'm eatting the same thing repeatedly.

The rest of my family eats gluten so it's too easy to fall off. I try to buy things that I do not like for them so the temptation is not there.

I wish that there was a test that sys "yes" this is what you have. I feel mental. Sigh. Thanks for listening,

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ravenwoodglass Mentor
ravenwoodglass
Posted

If eating gluten gives you a headache and makes you exhausted it may be affecting your brain and nervous system. The antibodies are mounting an attack against all your organs. I do hope you can find the willpower to keep yourself healthy and on the diet. It is hard but you don't want to end up with damage that can't be undone. GI is no less serious than celiac and both need to be strict with the diet. Can you try to keep some safe treats on hand for when you get tempted?

Takala Enthusiast
Takala
Posted

You will discover you will get more and more sensitive to gluten cross contamination and "accidents" over time.

THIS is your PROOF that it's not "all in your head."

Ask yourself what you would be doing if you were not sick all the time.

Consider changing your diet to reflect what you need, not what you think you need. Vegetarian is designed for grain eaters, and is frequently too high carbohydrate and too starchy for gluten intolerants, especially if they have blood sugar issues, shown by cravings, then crashing and burning after consumption of too many high carb grain products.

Find a gluten free calcium and magnesium supplement, and a gluten free B complex, to help with the cravings.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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