Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kentucky

swittenauer

Recommended Posts

swittenauer Enthusiast
swittenauer
Posted

Just curious if anyone is from Kentucky or southern Indiana.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LisaR Newbie
LisaR
Posted

I'm from Murray, KY. LBL land.

kvogt Rookie
kvogt
Posted

We have a support group in Louisville. See www.glutenfreelouisville.org if you are interested. We're happy to help. We have folks come from as far as Lexington, Elizabethtown and others. The rest of KY seems to be wanting for support groups, unfortunately.

  • 2 weeks later...
swittenauer Enthusiast
swittenauer
Posted
  • Author

Thanks for the info kvogt! I'm just surprised I haven't run across any more people on here from KY.

ILOVEOMC Enthusiast
ILOVEOMC
Posted
:D The southern part of Dayton, Ohio. We go to Cincinnati a lot to visit my husband's family.
  • 4 months later...
falwell57 Newbie
falwell57
Posted

Just curious if anyone is from Kentucky or southern Indiana.

quote]

I am forming a celiac/gluten sensitivity support group in Lexington, starting in March. We will meet the 4th Thursday of the month at Good Foods Market/Cafe on Southland Drive, from 7-9. I hope even with the few I know of now, we can grow and help a lot of people in the Lexington/Georgetown area and the surrounding areas. We sure need one. Please contact me if you need help. Jan Falwell in Georgetown

tiredofdoctors Enthusiast
tiredofdoctors
Posted

YES!!!!!!!! I have been trying to find the support group for Louisville, KY -- I'm about to jump up and down -- except the little poodle on my lap is ALREADY mad at me for being on the computer :lol:

I had e-mailed two of the people listed a couple of times, but didn't receive a response, so just figured that the support group had fizzled out. This is really good to know. Will be looking up the website today . . . .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
HayCobb Newbie
HayCobb
Posted

I am in Southeast Kentucky and have bought some products at Good Foods Market when I have been in Lexington. I wish that we could have some better choices on products here, but it a rural area. My daughter is 5 years old and has been diagnosed for about 2 years now. I have also found a good little store in Berea to get the chocolate chip cookies she loves. If anyone knows of a support group in SE KY, I would love to know about it.

  • 2 months later...
lucycampbell55 Rookie
lucycampbell55
Posted

I noticed there hasn't been any posts here for a while. Is anyone from KY still here? I live in the mountains of Southeastern ky and as far as I know I'm the only celiac.

I've been a member for a long time, just haven't posted in a long time.

Hope someone is still posting from KY.

Lucy

swittenauer Enthusiast
swittenauer
Posted
  • Author

Hi! I'm still posting. We are in Oldham County, Kentucky.

lucycampbell55 Rookie
lucycampbell55
Posted

Hi

Not exactly sure where that is. I'm from Letcher County. Near the KY/VA border. About 30 miles souteast of Hazard.

swittenauer Enthusiast
swittenauer
Posted
  • Author

We are just north of Louisville, Kentucky.

falwell57 Newbie
falwell57
Posted

Yes, our Support is up and going in Lexington. We are the GFLA - CDF (Gluten Free in the Lexington Area - a Celiac Disease Foundation Connections group. We meet monthly at Good Foods in Lexington on 3rd Thursday evenings at 7 pm. (July 27) We also have a great meeting scheduled for the 20th with Dr. Razvan Arsenescue of UK Digestive Center who will be speaking at Young Library Auditorium this coming Thursday, July 20 at 6:30 pm. Please email us at gfla-cdf@hotmail.com for more information. Our group is growing by leaps and bounds and we are here to help everyone in the area. Jan and Judy/Lexington

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'm from Louisville, KY. Had to laugh . . . I e-mailed the support group here in February, and finally got a response in June . . . . don't know if I'm interested in going or not.

lucycampbell55 Rookie
lucycampbell55
Posted

:D I guess their real busy. I think I might be a little bit to far away to attend the meetings. I'm 150 miles from Lexington and even further from Louisville. ;-)

I doubt if I could go if I was close enough. I don't go out much. I have a problem being around people. I pretty much stay at home except for church and grocery shopping when I can't get hubby to do it. Anyone else have this problem? It's gotten worse over the years.

Lucy

swittenauer Enthusiast
swittenauer
Posted
  • Author

That must be tough. When did this begin?

lucycampbell55 Rookie
lucycampbell55
Posted

About 10 years ago. I got to the point that I would start having a panic attack if I was out. I had to quit my job and haven't been able to work since. I've been on Paxil for the last 18 months and have been able to go out more but I still have panic attacks for no reason once in a while. No where near as bad as before.

swittenauer Enthusiast
swittenauer
Posted
  • Author

Do you have a supportive family? I hope so! That must be a terrible thing to go through on top of celiac. Hopefully we can swap info & learn something from each other.

  • 2 months later...
spunky Contributor
spunky
Posted

Hi Y'all!

I'm in Northern Ky right now. We used to live in SE KY, down along the KY/TN border, back several years ago. I saw the mention of panic attacks, plus SE kY. Back in my 20's down in the mountains down there I began to have panic attacks so bad I couldn't hold down a job. I eventually found a psychologist at the local Comp Care (do they still have those????) who treated me for a year with a method called "flooding". He would go to places with me and we'd just hang around somewhere until the panic attack hit me hard, and then he would force me to stay there until it subsided a little bit. After about a year of that, I got to the point where I could manage the attacks myself, I would tell myself in a public place (or my husband would help tell me) that the panic wouldn't kill me and would subside. After many years, it finally completely left me. Now we live close to Cincinnati and attend big crowded baseball games, etc. I have hints of feeling a little uncomfortable at first, but it subsides and then I am very comfortable to be there.

These days I've discovered on my own that i have a pretty bad gluten problem...had ongoing intestinal issues for several years which became intolerable by a year ago. I've been gluten free for 8 monhts now, and the intestinal issues are clearing up pretty much. However, in my readings about gluten I did see panic attacks mentioned more than once, and am now wondering if this could have been some early warning sign in me that gluten was doing some damage????

Regardless, the biggest lesson I learned during that year of "flooding" was that if you leave the situation during the panic attack, you reinforce the panic reaction. And if you stay and let it wear off before you leave the situation, you eventually weaken that reaction. At least that's how it worked in me, and that's what the psychologist was hoping for.

Mellie Newbie
Mellie
Posted

Hello fellow Kentuckians!!! :) I'm from Louisville too! I haven't been diagnosed yet with the gluten intolerance but the Dr's said to try the gluten-free diet for about a week and I'm getting ready to do that...just so overwhelming!!! Anyway I had just heard about the group here in louisville and hope to attend a meeting next time. I'll have to look it up and put it on my calendar! ;)

btw my name is Mel and I'm 28. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748
    lamps
    Newest Member
    lamps
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.