Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kentucky


swittenauer

Recommended Posts

swittenauer Enthusiast

Just curious if anyone is from Kentucky or southern Indiana.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LisaR Newbie

I'm from Murray, KY. LBL land.

kvogt Rookie

We have a support group in Louisville. See www.glutenfreelouisville.org if you are interested. We're happy to help. We have folks come from as far as Lexington, Elizabethtown and others. The rest of KY seems to be wanting for support groups, unfortunately.

  • 2 weeks later...
swittenauer Enthusiast

Thanks for the info kvogt! I'm just surprised I haven't run across any more people on here from KY.

ILOVEOMC Enthusiast
:D The southern part of Dayton, Ohio. We go to Cincinnati a lot to visit my husband's family.
  • 4 months later...
falwell57 Newbie

Just curious if anyone is from Kentucky or southern Indiana.

quote]

I am forming a celiac/gluten sensitivity support group in Lexington, starting in March. We will meet the 4th Thursday of the month at Good Foods Market/Cafe on Southland Drive, from 7-9. I hope even with the few I know of now, we can grow and help a lot of people in the Lexington/Georgetown area and the surrounding areas. We sure need one. Please contact me if you need help. Jan Falwell in Georgetown

tiredofdoctors Enthusiast

YES!!!!!!!! I have been trying to find the support group for Louisville, KY -- I'm about to jump up and down -- except the little poodle on my lap is ALREADY mad at me for being on the computer :lol:

I had e-mailed two of the people listed a couple of times, but didn't receive a response, so just figured that the support group had fizzled out. This is really good to know. Will be looking up the website today . . . .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
HayCobb Newbie

I am in Southeast Kentucky and have bought some products at Good Foods Market when I have been in Lexington. I wish that we could have some better choices on products here, but it a rural area. My daughter is 5 years old and has been diagnosed for about 2 years now. I have also found a good little store in Berea to get the chocolate chip cookies she loves. If anyone knows of a support group in SE KY, I would love to know about it.

  • 2 months later...
lucycampbell55 Rookie

I noticed there hasn't been any posts here for a while. Is anyone from KY still here? I live in the mountains of Southeastern ky and as far as I know I'm the only celiac.

I've been a member for a long time, just haven't posted in a long time.

Hope someone is still posting from KY.

Lucy

swittenauer Enthusiast

Hi! I'm still posting. We are in Oldham County, Kentucky.

lucycampbell55 Rookie

Hi

Not exactly sure where that is. I'm from Letcher County. Near the KY/VA border. About 30 miles souteast of Hazard.

swittenauer Enthusiast

We are just north of Louisville, Kentucky.

falwell57 Newbie

Yes, our Support is up and going in Lexington. We are the GFLA - CDF (Gluten Free in the Lexington Area - a Celiac Disease Foundation Connections group. We meet monthly at Good Foods in Lexington on 3rd Thursday evenings at 7 pm. (July 27) We also have a great meeting scheduled for the 20th with Dr. Razvan Arsenescue of UK Digestive Center who will be speaking at Young Library Auditorium this coming Thursday, July 20 at 6:30 pm. Please email us at gfla-cdf@hotmail.com for more information. Our group is growing by leaps and bounds and we are here to help everyone in the area. Jan and Judy/Lexington

tiredofdoctors Enthusiast

I'm from Louisville, KY. Had to laugh . . . I e-mailed the support group here in February, and finally got a response in June . . . . don't know if I'm interested in going or not.

lucycampbell55 Rookie

:D I guess their real busy. I think I might be a little bit to far away to attend the meetings. I'm 150 miles from Lexington and even further from Louisville. ;-)

I doubt if I could go if I was close enough. I don't go out much. I have a problem being around people. I pretty much stay at home except for church and grocery shopping when I can't get hubby to do it. Anyone else have this problem? It's gotten worse over the years.

Lucy

swittenauer Enthusiast

That must be tough. When did this begin?

lucycampbell55 Rookie

About 10 years ago. I got to the point that I would start having a panic attack if I was out. I had to quit my job and haven't been able to work since. I've been on Paxil for the last 18 months and have been able to go out more but I still have panic attacks for no reason once in a while. No where near as bad as before.

swittenauer Enthusiast

Do you have a supportive family? I hope so! That must be a terrible thing to go through on top of celiac. Hopefully we can swap info & learn something from each other.

  • 2 months later...
spunky Contributor

Hi Y'all!

I'm in Northern Ky right now. We used to live in SE KY, down along the KY/TN border, back several years ago. I saw the mention of panic attacks, plus SE kY. Back in my 20's down in the mountains down there I began to have panic attacks so bad I couldn't hold down a job. I eventually found a psychologist at the local Comp Care (do they still have those????) who treated me for a year with a method called "flooding". He would go to places with me and we'd just hang around somewhere until the panic attack hit me hard, and then he would force me to stay there until it subsided a little bit. After about a year of that, I got to the point where I could manage the attacks myself, I would tell myself in a public place (or my husband would help tell me) that the panic wouldn't kill me and would subside. After many years, it finally completely left me. Now we live close to Cincinnati and attend big crowded baseball games, etc. I have hints of feeling a little uncomfortable at first, but it subsides and then I am very comfortable to be there.

These days I've discovered on my own that i have a pretty bad gluten problem...had ongoing intestinal issues for several years which became intolerable by a year ago. I've been gluten free for 8 monhts now, and the intestinal issues are clearing up pretty much. However, in my readings about gluten I did see panic attacks mentioned more than once, and am now wondering if this could have been some early warning sign in me that gluten was doing some damage????

Regardless, the biggest lesson I learned during that year of "flooding" was that if you leave the situation during the panic attack, you reinforce the panic reaction. And if you stay and let it wear off before you leave the situation, you eventually weaken that reaction. At least that's how it worked in me, and that's what the psychologist was hoping for.

Mellie Newbie

Hello fellow Kentuckians!!! :) I'm from Louisville too! I haven't been diagnosed yet with the gluten intolerance but the Dr's said to try the gluten-free diet for about a week and I'm getting ready to do that...just so overwhelming!!! Anyway I had just heard about the group here in louisville and hope to attend a meeting next time. I'll have to look it up and put it on my calendar! ;)

btw my name is Mel and I'm 28. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    3. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    5. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748

    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.