Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Gave Up Dairy...


Christine0125

Recommended Posts

Christine0125 Contributor

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

The first time I went off cow dairy it was at the same time as I went off gluten. It took a year until I could eat it again without a stomachache, though I'm not sure I tried sooner. I tolerated goat and sheep dairy that time.

I have been feeling poorly overall and went back off dairy again after eating it five years. I've been off dairy since last October. This time the reaction is fatigue and sometimes stomach trouble. I did OK with a little goat cheese last month and I can cook with ghee so that was six months. I tried some regular cheese yesterday and it made me nauseous though.

benXX Rookie

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Skylark Collaborator

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

Gemini Experienced

I hate to say this but I am still at the dairy "very light" stage and it ain't coming back for me. I do fine with small amounts like milk in my tea and a little cheese sprinkled on food but if I eat ice cream, pudding or any large hit of dairy, I may as well have taken a laxative. :huh: It's been 7 years so I no longer am upset about it. Going dairy light feels better for me anyway.

At least I can eat a little, where it counts.

benXX Rookie

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Skylark Collaborator

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Yep and a fair amount of wrong/inaccurate answers on the forum too. ;) There are quite a few of us who spend a lot of time and effort correcting misconceptions.

Agreed that some people seem to have a better genetic background to eat dairy than others.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Mom23boys Contributor

I tend to agree with the no dairy crowd.

GFinDC Veteran

I can do a just a small amount of dairy but don't eat it regularly and don't buy it. It just doesn't work out too well for me. But there are plenty of options for dairy substitutes around these days. Some studies have said up to 18 months for healing of the villi. There is also the issue of gut flora being re-establsihed to process dairy. Probiotics can help with that. But everyone has to test for themselves to see how their own bodies react. We are not all the same.

Christine0125 Contributor

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Yes... About 2 months gluten free since my last gluten challenge. I seemed to tolerate dairy without issue until the last 2 weeks. Of course it's right before vacation and gluten-free and dairy free will be even more challenging. Bummer! I am ready for a break thru without these roller coaster symptoms. The endoscopy showed subtotal villous atrophy but I am just not a patient person by nature.

deb445 Rookie

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

Sorry - had to share.

If you're concerned about not getting enough calcium, isn't it funny how the countries that eat the MOST dairy (for calcium) have the lowest bone density? It is very curious.

lucky28 Explorer

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

Skylark Collaborator

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

love2travel Mentor

It took six months for me. I still limit my dairy to aged cheeses (or goat's cheese).

deb445 Rookie

Enzymes only seemed to work for a few months.

Christine0125 Contributor

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

YAY! Thanks for sharing. I am happy for you.

deb445 Rookie

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Skylark Collaborator

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Yes, stuff comes through human breast milk. You can't extend it to grains coming through cows milk though. Cow dairy is completely safe in terms of being gluten-free, even if the cow is being fed wheat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.