Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovery From Glutening


lorka150

Recommended Posts

lorka150 Collaborator

The other day I accidently injested gluten (about 5 days ago). Since then, I have slowly been feeling better throughout the week, but after eating all week, I am feeling lightheaded/dizzy/fatigued (as though I am getting glutened again, but I know I am not). I know the symptoms can last for a week or two, but I am just wondering: does anyone feel them a little more right after eating for those couple weeks?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I was confused for a while about it, but I kept getting that feeling after drinking tea. I knew the tea was fine - it was plain green tea that was totally safe. It seems that the hot water does it to me. (So it happens if I make fresh ginger tea too.) For some reason, that change in temperature can cause that feeling for 10-15 minutes for me. Perhaps you have some other innocuous trigger? (That is, if the feeling doesn't keep lasting and lasting. If it does, I would check with your doctor if it's still there in a week or so.)

lorka150 Collaborator

Were you drinking tea with your meal? Or just after tea?

I drink tea with every meal, but I don't always feel it.

I've only noticed it this week, after a horrible experience with some sort of cross contaminating Sunday night. Every time I eat, I feel crappy again.

I don't have a doctor, so I am doing this whole thing by myself, with help from my mom. I'm self-diagnosed. The good thing is, I've noticed a lot of my big symptoms (extreme bloating, EXTREME fatigue, numb legs, et cetera) are going away. It's been about 6 weeks. A lot of other things are lingering.

I just have to remember it's only been 6 weeks... Right?

Carriefaith Enthusiast
does anyone feel them a little more right after eating for those couple weeks?
When I got my worst gluten reaction, I got bad stomach pain almost everytime I ate for a few days. The thing with celiac is that everyones gluten reaction seems to be different.

The good thing is, I've noticed a lot of my big symptoms (extreme bloating, EXTREME fatigue, numb legs, et cetera) are going away. It's been about 6 weeks. A lot of other things are lingering. I just have to remember it's only been 6 weeks... Right?
That's a good sign that the symptoms are slowly getting better. This shows that the diet is working :) You should notice more improvement with time.
tarnalberry Community Regular
Were you drinking tea with your meal? Or just after tea?

I drink tea with every meal, but I don't always feel it.

I've only noticed it this week, after a horrible experience with some sort of cross contaminating Sunday night. Every time I eat, I feel crappy again.

I don't have a doctor, so I am doing this whole thing by myself, with help from my mom. I'm self-diagnosed. The good thing is, I've noticed a lot of my big symptoms (extreme bloating, EXTREME fatigue, numb legs, et cetera) are going away. It's been about 6 weeks. A lot of other things are lingering.

I just have to remember it's only been 6 weeks... Right?

<{POST_SNAPBACK}>

All on it's own. (I make a small pot that I drink througout the day at work.)

If you notice it every time you eat, I'd ask:

1. What is common about the foods you are eating? (For instance, is rice always a part of your meal, or some other thing.)

2. What is common about the way the food is prepared?

3. Is everything you are eating fresh and naturally gluten-free? (I think this is important when starting out or when having trouble figuring out symptoms. Packaged goods are extremely convenient, and a great frustration in ruling things out.)

dme1955 Newbie
Were you drinking tea with your meal? Or just after tea?

I drink tea with every meal, but I don't always feel it.

I've only noticed it this week, after a horrible experience with some sort of cross contaminating Sunday night. Every time I eat, I feel crappy again.

I don't have a doctor, so I am doing this whole thing by myself, with help from my mom. I'm self-diagnosed. The good thing is, I've noticed a lot of my big symptoms (extreme bloating, EXTREME fatigue, numb legs, et cetera) are going away. It's been about 6 weeks. A lot of other things are lingering.

I just have to remember it's only been 6 weeks... Right?

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.