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Curious About What Vitamins Are You Deficient?


roxieb73

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Kar1972 Newbie

Oh, I forgot Vitamin K. They wouldn't even do a scope on me until I supplemented with Vitamin K.


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Kar1972 Newbie

Gee, now I remember I was also diagnosed deficient in magnesium before, but based on symptoms. So that's Vitamin D, Vitamin K, and magnesium so far. I've also been low in plain old electrolytes because of days and days of the big D, and had to supplement with loads of Gatorade (an electrolyte sports drink).

nvsmom Community Regular

I had my vits during the second week of my gluten-free diet. I was expecting low levels because of low energy (which I took a bunch of vits for) and everything came back normal, with my B12 a bit too high. My only abnormal test was TSH so the low energy was hypothyroidism. :rolleyes:

jmb002 Newbie

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES! I haven't had any other huge deficiencies that I know of and was just diagnosed with dermatitis herpetiformis (the skin manifestation of celiac) a couple of days ago.

mushroom Proficient

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES!

With a level that low I would ask for a DEXA scan to check my bone density since D is critical in bone formation. Then again, maybe you used up all your D making bone :)

GottaSki Mentor

At last check one of my office visits at the beginning of the year my Vitamin D level was 3, with normal being 30 and 12 being severely deficient....YIKES! I haven't had any other huge deficiencies that I know of

Would be a very good idea to get all your nutrients checked - you definitely need to supplement to get your D up and likely are missing other important nutrients. Removing all gluten will eventually allow you to absorb the nutrients your body needs - until then supplementation is important!

My celiac doc recommends these blood tests - both at diagnosis and follow-up appts:

B1, B12, D, K, Iron, Ferritin, Copper and Zinc

Others have posted that you should add:

A and Magnisium.

CMP (Complete Metabolic Panel) can indicate some other deficiencies.

These are in addition to annual CBC (complete blood count) and FULL Celiac Panel. The lab techs often :rolleyes: when they see orders from my celiac doc - much better to test everything in one draw than going back each time a doc thinks of a possible test in relation to symptoms you have.

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    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
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