Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Happen To Anyone Else Here?


GFreeMO

Recommended Posts

GFreeMO Proficient

Every time I get glutened, I get intense intestinal cramps that feel like I ate cement and glass, bloating and gas for several days. A few days of D then it goes into C with floating stool.Then as the pain lessens, I get mucous, but not always in the stool. Often I will pass gas and pass mucous. OR I feel like I have to go but just pass gas and mucous. After the mucous stage I start feeling well again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Every time I get glutened, I get intense intestinal cramps that feel like I ate cement and glass, bloating and gas for several days. A few days of D then it goes into C with floating stool.Then as the pain lessens, I get mucous, but not always in the stool. Often I will pass gas and pass mucous. OR I feel like I have to go but just pass gas and mucous. After the mucous stage I start feeling well again.

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

GFreeMO Proficient

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

Thanks so much for answering my question. I do think it may be fat and not mucus because as soon as the pain subsides, the symptom stops as well. I think when I am absorbing my food, the fat malabsorbtion stops.

GFreeMO Proficient

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

Does this happen to you only when glutened or does it come and go? I was glutened a week and half ago. It stopped for a few days but is now back. I can usually trace it back to gluten and or corn. I haven't had either I am sure of so I guess I am still healing from the last zap.

GF Lover Rising Star

Does this happen to you only when glutened or does it come and go? I was glutened a week and half ago. It stopped for a few days but is now back. I can usually trace it back to gluten and or corn. I haven't had either I am sure of so I guess I am still healing from the last zap.

It happens when glutened, too much caffeine or stimulants, severe anxiety, have had it with heat exhaustion also. These cases are not as severe as being glutened but follow the pattern.

GFreeMO Proficient

It happens when glutened, too much caffeine or stimulants, severe anxiety, have had it with heat exhaustion also. These cases are not as severe as being glutened but follow the pattern.

Same thing for me. It's usually the last symptom in a series of symptoms from being glutened. Same exact thing every time. Once it resolves, I am good to go...until.....the next glutening. :rolleyes:

GF Lover Rising Star

Same thing for me. It's usually the last symptom in a series of symptoms from being glutened. Same exact thing every time. Once it resolves, I am good to go...until.....the next glutening. :rolleyes:

Yup, that's basically how I know I've had gluten. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LeahBanicki Rookie

When I was first diagnosed gluten-free I would sing a song outloud when I would be tempted to eat gluten-filled foods.

Annie Lenox song - Feels just like I'm swallowing broken glass

Swallowing swallowing broken glass

It amuses me still. :)

Leah B

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.