Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Figuring This Out Please!


GFreeMO

Recommended Posts

GFreeMO Proficient

Ok so yesterday I went to a family members home for the 4th. I brought my own food and a big bowl of watermelon that I cut up to share. I ate off of my own plate that I brought from home and brought my own drink so that was all safe.

I forgot to bring a big spoon for the watermelon bowl so she gave me one of hers so I could be the first to get the watermelon. She told me that it was a brand new plastic spoon. I used it and ate the watermelon.

While we were all sitting around talking, I sat on the fireplace bricks. I didn't see this until it was too late but inside of the fireplace for the summer, she has a huge planter with dried wheat in it! It's like a big wheat bushel. (They live in Kansas) it was actually very pretty..it had a ribbon tied around. I was sitting there talking and I have hair down to my lower back, I turned to talk to someone and my hair hit the wheat. I got up and tied my hair up and washed my hands. When I got home, I took a shower.

I know this sounds totally far fetched but I am sitting here glutened. Migraine, D, pain cramps. The works.

I added 2 new things to my diet this week. One, ground pork from the grocery store and Mccormick rubbed sage.

I also started using Palmolive dish Pure and Clear dish soap. Nothing else new.

Any ideas???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BeccaMeadows Newbie

Hmmm... I have never had an issue which touching wheat for small periods of time, even making sandwiches or other breaded products for others, just washing my hands after and I seemed to have no problem. Do you use gluten-free cosmetics/toiletries? That could be the only other thing I can think of. Instead of getting stomach aches I tend to get a rash, acne, or even boils. Do you have anything like that?

Otherwise I can't think of anything. Hope you figure this out!

bartfull Rising Star

I have been wondering about plastic cutlery, if they have gone over to the corn-based plastic too. And it looks like some companies have. Maybe you got corned from the plastic spoon?

The only other thing I can think of is, if the wind was blowing, maybe some "dust" from the wheat got into your mouth while you were talking?

I'm sorry you're sick. You were just getting over a bad bout and then this had to happen! (((HUGS))) Feel better soon.

GFreeMO Proficient

I have been wondering about plastic cutlery, if they have gone over to the corn-based plastic too. And it looks like some companies have. Maybe you got corned from the plastic spoon?

The only other thing I can think of is, if the wind was blowing, maybe some "dust" from the wheat got into your mouth while you were talking?

I'm sorry you're sick. You were just getting over a bad bout and then this had to happen! (((HUGS))) Feel better soon.

Thanks Bartful!

You know, I was thinking about corn since my reactions to gluten and corn are virtually the same. I ate the watermelon out of a paper bowl. I bet the watermelon soaked the bowl and I was corned or like you said, the plastic.

There were kids with gluteny cake all over themselves so who knows! Sometimes we just don't know what got us.

Becca, thanks. I think I am ok on all of those things. I must have been corned or CC from gluten somehow. My husband and Dad ate bread and it was on the table..who knows!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,658
    • Most Online (within 30 mins)
      7,748

    DML2493
    Newest Member
    DML2493
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @ARutherford! Have you considered that your child may have gluten intolerance/celiac disease? It's not an allergy, it's an autoimmune response to the ingestion of gluten. It cannot be diagnosed by allergy testing but there are some specific antibody blood tests that any physician can order to check for it. Ask for a "total IGA test" and a "TTG-IGA" test. 
    • ARutherford
      My child keeps getting rashes & stomach aches & l think it’s an allergy to gluten but l need to get a general allergy test done to confirm for sure what it can be. Getting an allergy test seems difficult, l keep hitting dead ends! I live in Christchurch & want to know if anyone can help with who to go to? Thanks
    • trents
      Good idea, @LynnM! That would be helpful to other celiacs who find themselves on the more sensitive end of the spectrum. You might also want to send them information about how to initiate the process with GFCO. But just a word of caution here, don't be surprised if the company is reluctant to pursue this certification as it can tie their hands with regard to changes in formulation in the future. Manufacturers often make ingredient decisions not only based on desired product outcomes but on cost factors. It can also put them at a liability risk should some ingredient supplier introduce an ingredient that was cross-contaminated with gluten without knowledge and cause someone to have a reaction. Testing for gluten-free certification is not done as frequently as consumers imagine and products can and do get out of spec at times. And once you slap a gluten-free certified label on a product, you are instantly open to possible liable suites. 
    • LynnM
      Hi Everyone. I just heard back from my son's GI doc and nutritionist. SHIELD products ARE gluten free. I am going to ask the company to Pursue gluten-free certification. 
    • Scott Adams
      Your experience highlights a common frustration in celiac disease diagnosis—discrepancies between lab results, biopsy findings, and clinical symptoms. The "localized mild nodular mucosa" noted in your duodenal bulb could indeed be significant, even if the overall pathology was deemed negative. Nodularity in the duodenum is often associated with lymphocytic infiltration, a feature seen in early celiac disease (before villous atrophy develops) or in conditions like H. pylori infection, chronic inflammation, or even food sensitivities (e.g., gluten or dairy). Since you had strongly positive celiac labs (e.g., TTG-IgA, EMA, or DGP), this nodularity might reflect an early or patchy immune response to gluten that wasn’t severe enough to meet traditional biopsy criteria (Marsh 3 damage). Some studies suggest nodular mucosa can precede classic celiac changes, especially in seropositive patients. Given your lab results and symptoms, it’s possible you have non-celiac gluten sensitivity (NCGS) or are in an early stage of celiac where damage isn’t yet widespread. False-negative biopsies aren’t uncommon due to sampling error (celiac can be patchy) or misinterpretation of subtle changes. If you’re still symptomatic, you might discuss repeat testing (e.g., HLA-DQ typing if not already done, or a gluten challenge with both serology and biopsy) or consider a capsule endoscopy, which can visualize more of the small intestine. Alternatively, H. pylori testing or a trial of strict gluten-free diet with symptom monitoring could provide clarity. Your case underscores the importance of correlating labs, histology, and clinical response—not just relying on biopsy alone. A second opinion from a celiac-savvy GI could be worthwhile!
×
×
  • Create New...