Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Be Lactose Intolerant?


Sage122

Recommended Posts

Sage122 Explorer

I'm gluten intolerant (not celiac) and have been for about 9 months now.

I've recently realized that milk is starting to bother me, along with chocolate. Funny how some lactose products bother me and others don't. A small 4 OZ glass of milk in the morning doesn't bother me, but 8 oz of milk with my gluten-free granola does. Chocolate gives me horrible stomach cramps but normal vanilla frozen yogurt doesn't. Ice cream bothers me, but I can eat yogurt.

What's going on here?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BuruNeko Newbie

I'm gluten intolerant (not celiac) and have been for about 9 months now.

I've recently realized that milk is starting to bother me, along with chocolate. Funny how some lactose products bother me and others don't. A small 4 OZ glass of milk in the morning doesn't bother me, but 8 oz of milk with my gluten-free granola does. Chocolate gives me horrible stomach cramps but normal vanilla frozen yogurt doesn't. Ice cream bothers me, but I can eat yogurt.

What's going on here?

It could also be cross reactivity from the proteins. Sometimes yogurt is a little more tolerable than other dairy products, but milk is usually one of ones that people will notice the most. It's common to have issues with dairy, corn, chocolate and even coffee due to cross reactivity. Even if you're not showing as allergic through testing. The same type of damage can be done in your body because your body will react the same way as it does to gluten, although usually not as severely (at least initially).

You may want to look up some more on cross reactivity, and see if you can get more information from an allergist that is familiar with that. Here and there you hear about these allergists that are archaic with their knowledge and claim that you're imaging everything if you don't come up positive on a specific allergen. Which is completely false. Luckily we have a pretty good allergist in Santa Barbara who's been practicing for over 30 years. He's very familiar with cross reactivity.

One of my sons had been eating dairy, mostly yogurt & cheese, without really any major symptoms of an allergy. I suspected a little due to his bloating sometimes. But that was about it. Well, he tested + for dairy, as well as peanuts (thank God I had always kept peanuts away from all of my kids). And we knew he had major gluten and corn sensitivities / allergies, even though those two didn't show on his tests. (Probably because these were not in his system at all.)

My oldest son didn't come up with much of anything on that allergy test (although he had for wheat in the past), but he's the one who's most sensitive of all of us. He also had none of these things in his system at the time either though. If he has any gluten/wheat/corn/dairy his digestive system will completely shut down, and his brain is in la la land for days, up to a couple of weeks.

But this was all very familiar to our allergist. And to the Pediatric Gastroenterologist who referred us to him.

Anyway, just wanted to give you some perspective on what may be happening. I would suggest removing all of those things from your diet for at least a couple of weeks to see how you feel. To help boost the healing & energy process, try drinking carrot/vegetable juices as often as you can. You will be amazed at the amount of energy you have and how quickly it will help repair your digestive system.

Good luck & I hope you're feeling better soon.

GFinDC Veteran

Yogurt does not have much lactose because it is fermented and that sugar is what the little buglies eat. Most chocolate is milk chocolate and it usually has soy in it. So you might be reacting to soy. If it is just lactose intolerance you can take Lactaid pills or get Lactaid milk and it should help. If you react to hard cheese then you may have a problem with casein, the protein in milk.

Sage122 Explorer

It could also be cross reactivity from the proteins. Sometimes yogurt is a little more tolerable than other dairy products, but milk is usually one of ones that people will notice the most. It's common to have issues with dairy, corn, chocolate and even coffee due to cross reactivity. Even if you're not showing as allergic through testing. The same type of damage can be done in your body because your body will react the same way as it does to gluten, although usually not as severely (at least initially).

You may want to look up some more on cross reactivity, and see if you can get more information from an allergist that is familiar with that. Here and there you hear about these allergists that are archaic with their knowledge and claim that you're imaging everything if you don't come up positive on a specific allergen. Which is completely false. Luckily we have a pretty good allergist in Santa Barbara who's been practicing for over 30 years. He's very familiar with cross reactivity.

One of my sons had been eating dairy, mostly yogurt & cheese, without really any major symptoms of an allergy. I suspected a little due to his bloating sometimes. But that was about it. Well, he tested + for dairy, as well as peanuts (thank God I had always kept peanuts away from all of my kids). And we knew he had major gluten and corn sensitivities / allergies, even though those two didn't show on his tests. (Probably because these were not in his system at all.)

My oldest son didn't come up with much of anything on that allergy test (although he had for wheat in the past), but he's the one who's most sensitive of all of us. He also had none of these things in his system at the time either though. If he has any gluten/wheat/corn/dairy his digestive system will completely shut down, and his brain is in la la land for days, up to a couple of weeks.

But this was all very familiar to our allergist. And to the Pediatric Gastroenterologist who referred us to him.

Anyway, just wanted to give you some perspective on what may be happening. I would suggest removing all of those things from your diet for at least a couple of weeks to see how you feel. To help boost the healing & energy process, try drinking carrot/vegetable juices as often as you can. You will be amazed at the amount of energy you have and how quickly it will help repair your digestive system.

Good luck & I hope you're feeling better soon.

Wow I totally didn't know that!!!' thanks for that assurance!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.