Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ear And Jaw Pain Anyone?

GFceliacgirl

Recommended Posts

GFceliacgirl Newbie
GFceliacgirl
Posted

I need to go back to doctor about my ears and jaw. I'm a little burnt out on going to doctors. Anyone experience this along with severe neck and back spasms?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

I have had terrible neck pain for 3 years. My jaw clicks a lot too and is very painful. This all started when celiac did. I think it's all connected.

IrishHeart Veteran
IrishHeart
Posted

I'm in agony from it. Neck, back, jaw, ear.... all my joints, muscles, tendons....I am in PT rehabbing right now.

It lessens as the inflammation goes down, but I have a long way to go. I was UnDXed for years.

You may see relief sooner!

rosetapper23 Explorer
rosetapper23
Posted

Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

IrishHeart Veteran
IrishHeart
Posted

BioSil and NeoCell Super Collagen.

(bovine collagen), but it's a bit expensive.

Chelated manganese

Dr. Christopher's products

I heard you sweetie!

and I have always appreciated your advice.

I have done the Biosil; I do take the Curaphen still--great product: I also tried Hyaluronic acid, upon the advice of my MT/PT and I just ordered the NeoCell Super Collagen. I also do flaxseed oil and L-glutamine.

Little by little, I reduce the inflammation and I am not ready to jump off a cliff anymore. :)

GFreeMO Proficient
GFreeMO
Posted

Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

Thank you for this info. I will check into it. I appreciate it. :)

GFceliacgirl Newbie
GFceliacgirl
Posted
  • Author

Thank you so much. Very helpful. Just diagnosed in March this year and I'm glad to have found these Boards for chat!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dcns65 Apprentice
dcns65
Posted

I suffered for 9 months with ear, jaw, shoulder and neck pain. (I am not celiac-the rest of the family is!) I was treated for ear infections, had CT scans but no one knew what was going on. I was in pain most of the day. It was the third ENT I saw that diagnosed TMJ (temporomandibular joint disorder). My jaw never had locked but I had been clenching my teeth and the muscles were tight. I saw a chiropractor that helped but the real relief came from the physical therapist. I still get occasional flare ups but have learned how to relax and the heating pad is my friend! :rolleyes: If you have been stressed it could be TMJ. Good luck!

sallyalewis Rookie
sallyalewis
Posted

I had a migraine & sinus infection for 2 years.

I had 2 root canals, and it was suggested I have a 3rd root canal.

I was waiting for the new year insurance to roll around for the 3rd, and went gluten free.

The migraine & sinus infection were almost completely gone by the end of the first week!

About 3 months into being gluten free, I realized my 3rd tooth was no longer hurting!

All 3 teeth are on the bottom. I'm wondering if I really didn't need the first 2 root canals! :blink:

LauraB0927 Apprentice
LauraB0927
Posted

7 years ago when I was in college, I had terrible TMJ where my jaw would click and become locked shut. I would be in so much pain and nothing relieved it - I was on Valium, had a mouth guard, and was going to the chiropractor which relieved some of the pain. I always struggled with sinus infections also. Hopefully it will start to go away now that I'm gluten free!!

rosetapper23 Explorer
rosetapper23
Posted

What is interesting about jaw pain (and, yes, I'm referring to TMJ pain) is that I believe it occurs when the joint is too loose rather than too tight. I came to this conclusion when I experienced horrendous TMJ pain starting in the fifth month of each of my pregnancies. This pain coincided with the my body's increased production of prolactin, which occurs when the body begins to prepare itself for giving birth. The prolactin causes the tendons and ligaments to loosen up so that tissues in the pelvis can expand to allow the baby to pass through the birth canal. During the release of the prolactin, I would also experience pain in a knee joint that had been damaged due to an earlier fall (soft tissue injury). When the TMJ pain and knee pain occurred beginning at the very same time with each pregnancy, I thought, "Okay, this is the result of increased prolactin, which is loosening my joints, including the TMJ."

Because of this "ah hah" moment, whenever I experience joint and TMJ pain, I start taking chelated manganese, because it is the nutrient that keeps our ligaments and tendons from becoming floppy or loose (just like with prolactin). It's a cheap fix if this is what is happening to you. People are oftentimes deficient in manganese, and, of course, celiacs experience deficiencies more than the general population. I hope you'll give chelated manganese a try.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,926
    • Most Online (within 30 mins)
      7,748
    fr0gger03
    Newest Member
    fr0gger03
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.