Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maybe This Gluten Challenge Is Too Challenging For Me...

heathenly

Recommended Posts

heathenly Apprentice
heathenly
Posted

Including today, I have eight more days of eating gluten. I've been back on it for a mere six days, and I'm not sure I can hang much longer. I feel like a big baby for not being able to just suck it up. Yesterday I almost cheated by NOT eating gluten.

Your experiences with a gluten challenge? Is it just this miserable? I'd feel better to know it wasn't just me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

Hi! I'm sorry you're in pain and suffering. I've been on a gluten challenge for two and a half months, and I completely understand. I am absolutely miserable, and if you truly are celiac/gluten intolerant, it will be miserable (unless you're asymptomatic). But you don't have to eat gluten at every meal,and you don't have to gorge on it either. If it gets too bad, stop eating it if your doctor is okay with it. I've managed to stay with it, hang in there.

ravenwoodglass Mentor
ravenwoodglass
Posted

Talk to your doctor. Depending on the severity of your symptoms when you reintroduce gluten some doctors will stop the challenge and give you an 'official' diagnosis.

For some a gluten challenge just makes them a little ill, some feel awful but can still function and some will be incapitated. Only you can judge whether or not you can continue. Depending on how long you were gluten free and how much healing has taken place 2 weeks back on gluten may not be long enough to show anything on an endoscopy anyway. Even if it doesn't give you positive test results you now know the answer as to whether you can tolerate gluten or not.

tom Contributor
tom
Posted

I feel for ya, but did chuckle a bit seeing

...Yesterday I almost cheated by NOT eating gluten.

...

At least you didn't lose your sense of humor. :P

heathenly Apprentice
heathenly
Posted
  • Author

I've been on a gluten challenge for two and a half months, and I completely understand.

You must be amazingly tough. I'm in awe.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

Hang in there!!! I know it's a miserable situation but hopefully you'll get accurate results in the end! Snaps to you both, that's not easy to do!! ?

heathenly Apprentice
heathenly
Posted
  • Author

ravenwoodglass, if two weeks isn't enough, I'm not giving it another shot. I'll just go on my merry way, gluten-free.

I'm trying, tom. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


heathenly Apprentice
heathenly
Posted
  • Author

Hang in there!!! I know it's a miserable situation but hopefully you'll get accurate results in the end! Snaps to you both, that's not easy to do!! ?

Aw, thanks! Tomorrow is my last day of gluten, and it feels like a monumental achievement to have been back on gluten for this long (ha, ten whole days? seems far longer). I feel wretched.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

You must be amazingly tough. I'm in awe.

Haha thanks. It comes and goes in cycles for me. Like I'm miserable for several days/weeks and then I can almost convince myself that I feel normal again and then sick once more. I'm gluten-free for good now, after breaking out in a horrible rash that isn't gone yet and I suspect won't be until after I am gluten-free for a while.

heathenly Apprentice
heathenly
Posted
  • Author

Haha thanks. It comes and goes in cycles for me. Like I'm miserable for several days/weeks and then I can almost convince myself that I feel normal again and then sick once more. I'm gluten-free for good now, after breaking out in a horrible rash that isn't gone yet and I suspect won't be until after I am gluten-free for a while.

I think I know what you mean. I've almost forgotten how much better I felt without gluten. The proof is in my weight gain, bloat, and messy house due to my total lack of energy.

My brief foray back into gluten land is over. Had my endoscopy today. The bonus was the nurse who had a sister with Celiac-- she slipped me a flier for a local gluten free bakery! Didn't know we had one!

Downside was my son commenting on my "bloat dress"- said it looked like something my mother would wear... ha. He was right.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748
    Chels22
    Newest Member
    Chels22
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...