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Did I Finally Find An Answer?

Claire415

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Claire415 Newbie
Claire415
Posted

Would like some advice regarding my symptoms. As a reference so you know how long this has been going on I'll tell you I am 25 years old now. To me it sounds like Celiac Disease is the answer I've been looking for.

This is probably going to be long, so please bear with me.

Since about age 10 I've had what looks like a rash with bumps on my arms and legs. It itches too. Have tried numerous things to get it to go away with no luck.

At about 13-14 I started have digestion problems. Sometimes when I ate I would get horrible diarrhea, abdominal cramping, gas, bloating, urgency, the works. This has continued to this day.

At 15, after years of chronic strep throat infections, I had my tonsils taken out. This has curbed the infections.

Starting at about 17-18 I was gained wieght fast in spite of having little appetite. Around that time I also started getting bad heartburn and needed prescription meds for it. Had severe depression to the point of suicidal thoughts.

Sometime around 20 I was diagnosed with IBS. This GI doc was not very good, took one look at my chart, saw the history of depression and came up with this diagnosis. About a week after that I was hospitalized with gallbladder attacks and almost had to have it removed.

Around the same time as the gallbladder issues, I started having what sounded like symptoms of fibromyalgia with the painful spots upon touching.

Currently, I have all the symptoms I've listed plus over time I've developed fatigue, my hair falls out, very minor scratches don't heal. I currently have ones that are about 3 months old and are still visible. My skin is very dry also. I'm sure I'm forgetting other things too. Even though I have no appetite, and eat very little, I gain weight. I've even been on Weight Watchers in the past and exercised with no results.

Also, my mother has many of the same symptoms I do. Some of them are even worse. I also have a cousin on my mom's side of the family that has digestive issues as well and has been tested for autoimmune disorders, but I don't know what the outcomes of those were.

What do you guys think, have I finally found what has made me miserable for so many years? Thanks so much for your time.

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aikiducky Apprentice
aikiducky
Posted

For what it's worth, I think it sounds like you could well have celiac. It would be worth it to get tested. Sorry to hear you are having so many health problems, and such an unhelpful doctor...

Pauliina

ravenwoodglass Mentor
ravenwoodglass
Posted
Would like some advice regarding my symptoms.  As a reference so you know how long this has been going on I'll tell you I am 25 years old now.  To me it sounds like Celiac Disease is the answer I've been looking for.

This is probably going to be long, so please bear with me.

Since about age 10 I've had what looks like a rash with bumps on my arms and legs.  It itches too.  Have tried numerous things to get it to go away with no luck.

At about 13-14 I started have digestion problems.  Sometimes when I ate I would get horrible diarrhea, abdominal cramping, gas, bloating, urgency, the works.  This has continued to this day. 

At 15, after years of chronic strep throat infections, I had my tonsils taken out.  This has curbed the infections.

Starting at about 17-18 I was gained wieght fast in spite of having little appetite.  Around that time I also started getting bad heartburn and needed prescription meds for it.  Had severe depression to the point of suicidal thoughts.

Sometime around 20 I was diagnosed with IBS.  This GI doc was not very good, took one look at my chart, saw the history of depression and came up with this diagnosis.  About a week after that I was hospitalized with gallbladder attacks and almost had to have it removed. 

Around the same time as the gallbladder issues, I started having what sounded like symptoms of fibromyalgia with the painful spots upon touching. 

Currently, I have all the symptoms I've listed plus over time I've developed fatigue, my hair falls out, very minor scratches don't heal.  I currently have ones that are about 3 months old and are still visible.  My skin is very dry also.  I'm sure I'm forgetting other things too.  Even though I have no appetite, and eat very little, I gain weight.  I've even been on Weight Watchers in the past and exercised with no results. 

Also, my mother has many of the same symptoms I do.  Some of them are even worse.  I also have a cousin on my mom's side of the family that has digestive issues as well and has been tested for autoimmune disorders, but I don't know what the outcomes of those were.

What do you guys think, have I finally found what has made me miserable for so many years?  Thanks so much for your time.

<{POST_SNAPBACK}>

If you and your Mom aren't celiac I'll eat my hat.  You sound just like me before diagnosis.

ravenwoodglass Mentor
ravenwoodglass
Posted

Got the quote last try let me try again, You do sound celiac. Both you and your Mom, don't waste any more time wondering and get it checked out either with a new doctor or by eliminating gluten from your diet. Good luck

sspitzer5 Apprentice
sspitzer5
Posted

Celiacs certainly sounds possible to me. Definitely worth checking into.

I'd also get your thyroid checked. Hypothyroidism could account for some of the things you describe too.

Good luck!

Susan

tarnalberry Community Regular
tarnalberry
Posted

It could well be celiac. I would encourage you to:

1. get the skin rashes biopsied for DH

2. get a doctor to run the full celiac panel of blood work on you

3. regardless of the results, after all testing is complete, try the gluten-free diet (strictly) for three months

You have nothing to lose by being tested, and potentially, quite a bit to gain.

Canadian Karen Community Regular
Canadian Karen
Posted

I agree that there is a very strong liklihood that you could be celiac, but I do think you definitely need to get your thyroid checked also. Hypothyroidism could cause some of those symptoms as well (also, hypothryoidism is linked to celiac so there is a very good possibility it is a combination of the two that you have - like me!! :P )

If getting tested by a doctor is problematic, I would highly recommend Enterolab. I have heard many good things about their testing and results from posters here.

Either way, you definitely need to get tested to find out one way or another....

Welcome to the board!!! ;)

Karen

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Claire Collaborator
Claire
Posted
What do you guys think, have I finally found what has made me miserable for so many years?  Thanks so much for your time.

<{POST_SNAPBACK}>

Hate to tell you but I think you came to the right place. Do an internet search for Dermatitis Herpetiformis - a skin disorder that is the sole property of celiacs. That is what you seem to be describing. Good luck namesake.

nettiebeads Apprentice
nettiebeads
Posted

Your symptoms very well could be celiac disease. Have you been to other websites looking for info? A good one I found in very simple to understand terms is:

Open Original Shared Link

I would find a printout of all the symptoms of celiac disease, highlight all that you have and take it to a dr. Or try the gluten-free diet. That's how I was dx with celiac disease. And the diet challenge is a valid dx tool. Hope you get better soon!

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