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Celiac Repeat Tests


1974girl

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1974girl Enthusiast

My daughter went for her 6 month repeat. Question : if she has been glutened in the past 6 months, how long does it stay in the blood? Just can't imagine that somewhere in 6 months there hasn't been cc somehow. Gluten is everywhere. We still go on vacations and to grandparents houses ( both live out of town). She is a silent celiac so I don't know. But would one time say on may vacation show up on a blood test in july? Just preparing myself in case it is not good.


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StephanieL Enthusiast

When my DS was knowingly glutened he was having bloodwork a few weeks later. I called the Dr. and she was not overly concerned by one know glutening.

HTH

1974girl Enthusiast

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

StephanieL Enthusiast
She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What????

Oh I hear you! My DS has life threatening food allergies including peanuts/tree nuts. One of the biggest worries is store bakery things cause they use nuts everywhere and most/all allergists tell PN allergic folks to stay far away! When I was at DS's school I asked the teacher if I could make cupcakes for graduation and what other kids allergies were so I could make them safe for all. One other PN allergic kids Mom was there so I walked over and asked if she would be okay with me making them. She said "That's fine but he'll just eat the store bought cake."

:blink:

Our GI Dr. said something about our DD when we were asking if we should test her. She said "It would make it easier for things like if you stop at McDonalds." and she stopped and said "You don't do McDonalds ever...do you." cause she knows how seriously we take things and how strict we are with keeping this kids safe (We deal with Celiac, peanut, tree nut, dairy, egg, blueberry and banana allergies so it's a longer list than most kids.)

Gemini Experienced

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

You are not obsessed...you are being a good parent. The one thing that amazes me today is how often people let their kids tell them what they will eat. Whether a child likes gluten free or not, they have to comply and it's your job to make sure they do.

It may not pleasant in the beginning but someone has to be the grown-up! ;)

beachbirdie Contributor

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

Obsessed? NO! You are simply being VIGILANT. You are simply taking this seriously because it IS serious, and doing a great job of it! :D

You are not obsessed...you are being a good parent. The one thing that amazes me today is how often people let their kids tell them what they will eat. Whether a child likes gluten free or not, they have to comply and it's your job to make sure they do.

It may not pleasant in the beginning but someone has to be the grown-up! ;)

I see this so often in the grocery store, even in parents who don't look like they are trying to manage special diets. There will be a mom with a couple of little kids in the cart, showing a 4-year old boxes of cereal, crackers, whatever, and choosing everything that meets with the kid's approval. I've seen kids have tantrums if the parent chooses without approval, and the parent gives in. Then I hear moms in the checkout line saying things like "well, we have to make sure they are happy[/i"! Makes me want to smack them. I want to say "no, it's YOUR job to teach them to deal with disappointment so they won't grow up thinking they will DIE if they can't have what they want".

Arrggh!

speechless-smiley-002.gif

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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