Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With G.i. Issues


elbar

Recommended Posts

elbar Apprentice

I am looking for an answer to a question that I have been wondering about for a while. I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet. Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was what brought me to the dermatologist last month.

Now I am told that I have DH, and celiac as well since there is no cure. My question is, if I follow a gluten-free diet, is it still possible to have stomach problems, or does that happen only if I get glutened? Now that I'm watching everything I eat, my stomach seems to be always in turmoil, as opposed to very rarely during these past 54 years.

Does anyone have an answer to that question? Thanks in advance if you do.

elbar


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I am looking for an answer to a question that I have been wondering about for a while.  I was diagnosed with celiac disease as a baby 62 years ago and my family was told that I was "cured" after 8 years on the special diet.  Now I have found out that, while I didn't get any G.I. symptoms over these 54 years, apparently I did have DH symptoms and that was what brought me to the dermatologist last month.

Now I am told that I have DH, and celiac as well since there is no cure.  My question is, if I follow a gluten-free diet, is it still possible to have stomach problems, or does that happen only if I get glutened?  Now that I'm watching everything I eat, my stomach seems to be always in turmoil, as opposed to very rarely during these past 54 years.

Does anyone have an answer to that question?  Thanks in advance if you do.

elbar

<{POST_SNAPBACK}>

Have you checked for 'hidden' sources of gluten, for example - stamps and envelopes, do you lick them, may not be safe. Did you de-gluten your kitchen throughly, change your toaster and are you careful not to let gluten containing foods near your food? Have you checked with your spice companies for the spices you use? McCormicks pure spices are safe, but check spice mixes. Have you checked your toothpaste, all medications, even ones for tummy problems, have you checked your soaps and shampoos? Do you grill on the same grill? Gluten is one of the most hard to break down proteins on earth, it doesn't break down even when incinerated. Do you ever use powdered gloves, food service or general service, often not safe.

Something our family has found in the last couple years is that now that we have been gluten-free for awhile when we get accidentally 'poisoned' the effects for my son who had little 'tummy' problems is more severe, for myself who was almsot totally disabled before it was diagnosed the tummy reaction is a little less, unless I get a good jolt.

If after you know for sure you have been gluten-free for awhile and you develop a long lasting problem you should get it checked. Most intestinal symptoms will be gone in at most a few days if totally gluten-free (usually). It of course is still possible to have other problems, other food intolerances like dairy or soy. In addition have you taken antibiotics in the last year or so, if so you might want to try some probiotics. Good luck and I hope you get a resolution of your difficulties soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,793
    • Most Online (within 30 mins)
      7,748

    Ann Marie 50
    Newest Member
    Ann Marie 50
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
    • Scott Adams
      Very interesting--thanks for sharing that study!
    • Scott Adams
      Let us know how things turn out, and good luck!
    • Wends
      https://onlinelibrary.wiley.com/doi/10.1111/joim.70025 Very recent (September 2025) Finland study may be of interest. Borderline negative and low positive ant-TTG, with negative and positive EMA tests in patients diagnosed with Celiac Disease.
    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.