Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Know What Glutened Feels Like


Lisa

Recommended Posts

Lisa Mentor

Hey all:

I have been (as best able) to be gluten free for about 4 weeks. WAS feeling better and stronger.

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

Does anyone know of any "kooties" in the Lipstick, or Progresso Soup.

I made a crabmeat casserole with the soup, everything else was natural and used Hellmans Mayo.

I feel so weak, exausted, my eyelids feel like they have weights on them and I stare at the dishes in the sink, like they are going to jump into the dishwasher. I also have some dia.... and feel sharp (pin-like) pains in my small intestines, most likely from inflamation.

Is this was what "getting glutened" is like???? I recieved a B-12 injection today and will have more once a week for a month. Hope that that will bring my energy level back.

Thank goodness that I am able to stay at home and not have a full-time job. I just don't know how some of you do it.

Would welcome any inpute.

PS - Hurricane Ophelia was good to us. Not so good to those south of us.

Lisa B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Lisa!

I am glad you "weathered the storm", so to speak....... and Ophelia was kind to you...... I hope the people south of you will recover quickly.

Yep, sounds like a gluten attack to me...... Just have to let it run its course......

Hugs.

Karen

ravenwoodglass Mentor

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

I know for sure the soup was okay, I was so happy to find that out, so is thier split pea with ham and a few others, they mark the labels very well and I have never noticed any crosscontamination issues with Progresso soups. I would suspect the lipstick or the Chicken salad tray. Call the company about the lipstick or do a search under products. I would not touch a deli prepared anything, too much risk of cross-contamination and who knows what could have been in the jugged mix. It sounds like you got 'got' good, time will heal, hope you feel better soon. We all, I think, learn the hard way to call about everything till companies get smart and start labeling clearly.

frenchiemama Collaborator

You said that you made crab casserole, did you use real crab meat or did you use fake crab? The fake crab and lobster usually contains wheat (at least all the ones I've looked at....)

Lisa Mentor

Totally pure, handed picked crab from the beach ....(maybe the hand-picked?)

But most likely the chicked salad from the grill.

Saw on a gluten-free site that all Almay and Revlon lipsticks are gluten-free.

This is the pitts, I feel like I have "mono", like I had in college.

Thanks for the input....

Lisa B.

JoeB Apprentice

Lisa -

I had a lot of problems with grilled food, too. I only eat off my own grill now, and that was only after I completely cleaned the grates.

Lisa Mentor

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.

Canadian Karen Community Regular

Lisa,

I hope you are feeling better real soon, I know for me it not only affects me physically when I get glutened, but also emotionally. I become what I can only describe as a cross between an emotional wreck :unsure: and an explosive monster!!! :angry:

The grill had to be contaminated. That's where I would put my money...... <_<

Also, as for always being there for you, hey, what are fellow celiacs for??? ;) Just think, sometime down the road you are going to be a pro at this and you will be the one supporting and encouraging the newbies!!! (You will be an absolute computer pro by then!!! ;) )

Hugs.

Karen

Billygoat Apprentice

Sorry you're not feeling well. I got glutened the other day from the McDonald's Grilled Chicken Caesar. It didn't dawn on me that picking out the croutons would contaminate me. :huh: One of these days I'll get this gluten-free diet down.

Be careful about drinks too. I unknowingly glutened myself with Tropicana Lemonade (2-litre) and IBC Black Cherry soda.

I'm amazed at how easily I gluten myself. You don't think about it being in drinks or cosmetics or that's not bread based. (At least I didn't.)

sb4480 Newbie

I'd be suspicious of the chiken itself as well. I once got glutened from chicken soup. I was so careful about the stock I used and the spices but still got terribly sick. I've heard that some companies inject their meat with a solution of "stuff" to plump it up and add weight. I think this is what did it to me. I know perdue is gluten-free but I don't think this was perdue. Anyway, that might be the case with your chicken salad.

I'm sorry you're not feeling well. I hope you get better soon.

Stephanie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,610
    • Most Online (within 30 mins)
      7,748

    wonderproductions
    Newest Member
    wonderproductions
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.