Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Come And Rant!


fisharefriendsnotfood

Recommended Posts

floridanative Community Regular

Okay - here's mine. My husband and I are celebrating Christmas with my family in another state. Originally I thought I could not possibly start the diet until Jan. after the holidays and a business trip. I know I was really just trying to make it easy on my family because my Mother makes a big deal out of the fact that we don't eat red meat. Now with my anemia I do eat red meat about twice a week. So now I have moved my biopsy up to right after Thanksgiving. I know that I will go on the diet regardless of the results so I can see if my anemia improves and that will give me an answer - neg. biopsy or not.

So I tell my sister when she calls last week to discuss her 'international Christmas meal' that she serves on Dec. 23rd that I'll be on the gluten-free diet then. She is making something with soy sauce/honey and I tell her I'll bring my own soy sauce and make my own sauce since. So today I speak to my Mother and she says my sister told her I'd be on the diet at Christmas and why was that? I explained that I'd rather get started sooner rather than later since if I have celiac disease I'm damaging myself every day. So she asks about Christmas dinner and I say I can have everything we normally have, just have to make homemade cornbread since the mix we use is not gluten-free(oddly). I tell her the only thing I can't make regular is pecan pies and I'd try and figure out how to make a gluten-free pie crust and my husband will make a reg. pie for them since the filling is for two pies. And I say that I can't have fried onions (from can) for the green bean casserole but my husband may try and fry some onions up in gluten-free flour and we'd test that out here before the holiday. Side point I must mention. I have told my Mother about all my invasive tests and about the positive bloodwork that I probably have celiac disease. I explained as much as I could about the fact that there is gluten in so many things including many non bread and non pasta products. Okay so after I say we can't use French's fried onions in the casserole, she says "oh we can just use saltines - you can have those can't you?" Hello??!!!

This is one time I know it's such a blessing that we don't see my family but a few times a year. My Mother doesn't want me to have celiac disease mostly because she doesn't want to have it and she will never get tested I'm sure. And that's her right if she wants to shorten her life span, that's her business. When I first mentioned what my doctor thought I could possibly have and I read up on it and then told my Mother. She was all excited to get tested herself since she has some symptoms that I think could indicate celiac disease - her docs have no answers about what is wrong with her. So recently I asked her if she'd talked to her doctor and she just said no and that she didnt' think she could have celiac disease. Well she just won't get tested because she thinks it's better to be in denial and that's the way she is with everything in her life so this will be no different. That's her problem not mine. I will give everyone in my family the best articles I can find on celiac disease (recommendations from any of you appreciated) so at least they have the knowledge that they should get tested and I can feel good that I did my part to educate them. And I will send the articles with thank you notes from Christmas so I don't ruin our holiday together.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 51
  • Created
  • Last Reply
stef-the-kicking-cuty Enthusiast
As if pollen allergies are "normal" - those people are allergic to air!!!

I love it!!!

(I've been skittish about juice ever since I got glutened by stupid Tropicana).

You've got glutened by Tropicana, too?

And one other thing... I just wish that all companies would clearly list gluten on the label and say if there is cross contamination!

That's the same thing I'm wishing for. It would make life so much easier. No more carrying folders with allowed glutenfree food in there around. No more guessing. That would be really cool.

She's really got you where she wants you.  You buy it and she eats it and you're guilty if you tell the truth about it.  Every addict's dream.  Except that's killing both of you.  Your ignorance and her denial.

I hate people like that. This is soooo annoying.

Uuugh, I love this thread. Strangely enough I enjoy reading people's rants, too. Makes me feel better and gives me the feeling I'm not alone. Before I discovered this one however I already had a ranting session today in another thread.

But I soooo DO MISS KitKat!!!! :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.