Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Would Small Amounts Have Smaller Effect?

lorka150

By lorka150
in Coping with Celiac Disease

Recommended Posts

lorka150 Collaborator
lorka150
Posted

This is something I think I have noticed. Please tell me if you think this might be an accurate observation.

I've been my best to be 100% gluten free. I live at home, have a gluten free kitchen. I got glutened a few weeks ago and felt like poop. I got better. The story of our lives. :)

Anyway, then I moved back to school. Because I just got diagnosed, I am splitting my time between my two homes. At school I have two roommates. They understand the severity of the disease. But I do not have a gluten free kitchen. I do have my own pots and pans, however.

At school, I feel like poop. Not post glutening diarreah+brain fog+everything that comes with it, feeling really sick, but I mean an overall blah. I am extremely lethargic and quite depressed. I'm bloated.

Do you think these symptoms could be happening from things 'slipping in' constantly, as opposed to a full-fledged glutening where the pains and stuff are hardcore?

Thanks.

Lorka

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

I don't have the answer cuz I'm wondering the same thing.

I'm definately not sick like I was and I don't have depession anymore but I think I feel more tired and a little run down even though I'm not doing much of anything. I had more energy before and also I have bloating constantly now. I'm not complaining since I'm not really in pain anymore but like you said...I just kinda feel blah. I know I'm not getting any gluten...I'm sure of it....it just seems like my body's going through some changes.

Jnkmnky Collaborator
Jnkmnky
Posted

Are you guys getting enough iron? Taking multivitamins?

Rachel--24 Collaborator
Rachel--24
Posted
Are you guys getting enough iron?  Taking multivitamins?

<{POST_SNAPBACK}>

I only started taking some vitamins a couple days ago...I'm hoping it will help with the energy. Does it take awhile for vitamins to start working? Someone said while the body is healing it uses more energy...could it be a good sign that I'm feeling kind of beat up right now? :unsure:

Claire Collaborator
Claire
Posted
I had more energy before and also I have bloating constantly now. I'm not complaining since I'm not really in pain anymore but like you said...I just kinda feel blah. I know I'm not getting any gluten...I'm sure of it....it just seems like my body's going through some changes.

<{POST_SNAPBACK}>

Rachel - have you been tested for Type II - delayed food reactions. Same question for the person who posed the initial question. This can well be the answer to all those celiacs who still have digestive and intestinal problems long after going gluten-free. I have had the DF reactions for many years and this can make you really miserable. Gluten may be only part of the problem. There are blood tests available. I have a naturopathic doctor who does not have confidence in them and has a plan that he uses with his patients that he finds most satisfactory. If there is any interest I can post the general outline of it. I hate to tell you - but it does mean there is yet more stuff you can't eat :(

Bonnie Explorer
Bonnie
Posted

Claire, I am very interested in this plan you mentioned as I feel pretty much like the others.

If you have the time, please give us the general idea.

Thanks a lot.

Yvonne

lorka150 Collaborator
lorka150
Posted
  • Author

I am also very interested: is this similar to what they do in the immunolabs?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Claire,

I did have type II food sensitivity testing done at Great Smokies and it came back totally fine. They said I only had a very low reaction to mustard and alfalfa out of over 100 foods. Not a problem avoiding those even though they said the reaction was so low it was not necessary to avoid them...just rotate them. Sometimes I wonder about the test but it was expensive so I'm not going to repeat it. I'd like to know about the plan you're talking about though.

Rachel--24 Collaborator
Rachel--24
Posted

Oh yeah...I don't really feel like I'm getting any "delayed" reactions or any gluten type reactions. Sometimes I just feel weird after eating and other times I'm fine. When I was still on gluten I was getting reactions from everything I ate ...no matter what it was. Thats why I did the Great Smokies test. If I get glutened badly the same thing will happen again for about a week. Lately its been kind of random....sometimes I'm fine after eating. Other times I just feel weird. Is this normal? I've only been on the diet a month now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    3. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    4. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.