Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Breath, Gastritis, And Dh

cindylou7

By cindylou7
in Dermatitis Herpetiformis

Recommended Posts

cindylou7 Apprentice
cindylou7
Posted

Okay, another weird question for the experts in our forum.

I have been having problems with very bad breath, and a burning gut that are not relieved by a gluten-free diet. My question is, can this be just another symptom of DH, or gastritis, or what?

On a side note, I have realized that this problem comes back after glutening and takes a while to resolve itself.

I will spare you the details of describing the smell, but suffice it to say, people cover their nose when speaking in close proximity!

Very embarrassing!!!

The burning gut is relieved by Pepto Bismol but not Prilosec or Zantac, and somehow it seems to limit the breath odor.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I remember distinctly reading several times medical texts mentioning the bad breath thing, along with dry mouth I believe Cindy. It stuck in my mind b/c my hubs had an acquaintance who matched the description & I thought "I bet he has celiac". They mentioned it being caused by a bad gut.

I'm going to say that it's going to take time for the burning gut to go away. What are you eating? Please describe your diet. There may be some things others can point to which are aggravating the situation.

cindylou7 Apprentice
cindylou7
Posted
  • Author

Okay so my diet is not the best but I try to be gluten-free.

Breakfast is peanut butter and honey on Brown rice bread or eggs from my chicks (free range)

Lunch could be tuna and tomatoes with gluten-free chips or a burger from Carls jr or refried beans and a taco from Taco Bueno

Dinner might be a salad or chips and salsa or whatever I can find.

If I change it up too much I get glutened so I try to avoid it or suffer in silence ;)

  • 1 month later...
Guest chinmoya
Guest chinmoya
Posted

Okay so my diet is not the best but I try to be gluten-free.

Breakfast is peanut butter and honey on Brown rice bread or eggs from my chicks (free range)

Lunch could be tuna and tomatoes with gluten-free chips or a burger from Carls jr or refried beans and a taco from Taco Bueno

Dinner might be a salad or chips and salsa or whatever I can find.

If I change it up too much I get glutened so I try to avoid it or suffer in silence ;)

Do you have onions in your salad? Just curious! ;)

cindylou7 Apprentice
cindylou7
Posted
  • Author

Do you have onions in your salad? Just curious! ;)

I do eat onions though not always in my salad. The bad breath comes after the food has gotten to my stomach. It isn't the type of breath that you can say "well I can tell that she had the garlic soup today" it's more of a "holy cow, what the heck crawled in and died"

It's more of a rotten smell, a dirty fish bowl smell, a dead smell!

Okay, I know that's probably TMI but its accurate. And the dentist said my dental hygiene is great. So go figure...

squirmingitch Veteran
squirmingitch
Posted

I'm going to say it's your gut that hasn't healed yet. Do you take digestive enzymes & probiotics? You should. Culturelle is non dairy & a good probiotic & Enzymedica Digest Gold for digestive enzymes is what most of the ppl here use & swear by. Remember, just b/c we have dh & don't have major GI symptoms doesn't mean we don't have damage to our gut. Matter of fact, I've noticed a harder time digesting certain things now that I'm gluten-free than I had before gluten-free. As I understand, that's pretty par for the course.

IrishHeart Veteran
IrishHeart
Posted

I second Squirmy's suggestion about probiotics for good gut balance.

Have you been checked for h.pylori infection? My Dad had bouts with that and was treated for it, but despite his excellent dental hygiene & vigilance, it caused a rather foul breath for him.

Once resolved, it was better. He had ulcers, gastritis and lived on maalox, zantac and proton pump inhibitors. Poor guy. If only I knew then what I know now.

He had severe anemia and had dozens of blood transfusions. We're sure he was a celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cindylou7 Apprentice
cindylou7
Posted
  • Author

I second Squirmy's suggestion about probiotics for good gut balance.

Have you been checked for h.pylori infection? My Dad had bouts with that and was treated for it, but despite his excellent dental hygiene & vigilance, it caused a rather foul breath for him.

Once resolved, it was better. He had ulcers, gastritis and lived on maalox, zantac and proton pump inhibitors. Poor guy. If only I knew then what I know now.

He had severe anemia and had dozens of blood transfusions. We're sure he was a celiac.

Thanks I'll add the probiotics back in. I've gotten lazy. I want to ask a dr about h pylori. From what I've read it is a possibility.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.