Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ever Wonder Why Some Of Us Are Sick


AVR1962

Recommended Posts

AVR1962 Collaborator

Lately I have been to alot of social outings and of course I can't help but notice the huge amounts of wheat and carbs in every social gathering. Not only am I celiac but I am pre-diabetic and have to watch all carbs, and have had kidney stones issues for 27 years. Hydration is vital for me and I have to drink bottled water to stay away from the chlorination that gives my kidneys such issues.

I have been watching how people can so abuse their bodies with alcohol, sodas and little water.....stuff their guts with gluten and sugar and feel no effects. And I just wonder, HOW?

The other day some friends were talking about what a waste bottled water was, saying things to indicate that is was nothing more than tap water with a big price tag. I was quiet. My kidneys will tell you otherwise. I know they don't get it and it doesn't pay to speak from experience because unless they deal with it themselves they won't understand.

I really really try to keep my focus and not get stuck in the HOWs and WHYs but I do find myself asking these questions. No one else in my family has problems with kidney stones or diabetes. My grandmother was diagnosed with diabetes in her 80's, I am 49. Food allergies run in my family but again I am the only one diagnosed with celiac. My parents who are in their 60s, and my sister a year younger than me eat whatever they want with the exception of my mom eating dairy. And I wonder why I became the special case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciamarie Rookie

Yes, I'm with you in wondering. However, I also recently read somewhere that there are TONS of people on multiple prescriptions for one thing or another; at least here in the U.S. I may have some food or diet issues, but I totally skew the statistics on prescriptions since I'm not on any. I plan to keep it that way.

AVR1962 Collaborator

Yes, I'm with you in wondering. However, I also recently read somewhere that there are TONS of people on multiple prescriptions for one thing or another; at least here in the U.S. I may have some food or diet issues, but I totally skew the statistics on prescriptions since I'm not on any. I plan to keep it that way.

ndw3363 Contributor

Totally agree about the dependence on prescriptions in this country. Yes I get really irritated that I too see so many people that seemingly can eat whatever they want...but these are the same people that think gas/bloating/belching/farting/bathroom issues are just a normal part of life. When I'm obeying my diet and not eating anything I shouldn't, I don't have ANY of those symptoms. People also think that arthritis, ADHD, depression, skin problems, etc etc are just things that happen and can be "Cured" with a prescription - I'm not saying that diet alone can fix all of these issues, but they are symptoms of a problem, not a problem in itself. Doctors should be encouraging people to change their diet first and then use prescriptions as a last resort. If healthcare focused on diet and lifestyle before shoving pills at people, I think our healthcare system would be drastically different.

Getting down off my soapbox :-)

cavernio Enthusiast

I've heard that the standards for dissolved particulates in bottled water are far less stringent than what the standards are for tap water, and each brand of bottled water will be different, just like each city's tap water will be different. But of course what is in each will be different too, and just because FDA standards or something are less stringent, doesn't mean they always push that standard. Nor does it mean that what's in your tap-water that makes your kidneys get worse will be in high amounts in the bottled water. But I've also lived in towns where their well water is the water that's bottled up, heh, so of course it feels rather dumb in that case to pay for a bottle of water.

You're the only person who I've heard say that bottled water is necessary for their kidneys. Don't get me wrong, I believe you, and I'll even suggest it to my aunt who has terrible kidney issues next time I see her.

About people eating poorly, I met a cousin-in-law who usually eats gluten free except on vacation (when I saw him), and when my celiac came up he said that he had just gotten tested and it came back negative when he was certain he had it. I later asked if he'd gotten a biopsy or just a blood test, and I was starting to say the stuff about the blood tests having a decently high chance of false negatives, and he just said 'Well, I know gluten's a problem, I don't need a test to tell me', all the while drinking a beer.

It's just one of things that makes me question things, about how healthy people look versus how they act. Maybe he really is a celiac and he doesn't have a lot of symptoms (like me), or maybe he thinks he's worse off that he is, or maybe he's just really good at hiding it.

I'm only just approaching 30, and honestly, the norm for me is to think of anyone over the age of 25 as sick or damaged in some way, shape or form.

tennisman Contributor

I think it's just some people are lucky with health and others are unlucky :( It is frustrating I have known people who drink a lot every weekend and eat lots of junk foods and are perfectly healthy but than again these people don't have celiac disease so them eating all junk foods is not gonna do any damage to there intestines . I find it more annoying when people I know smoke a lot or do drugs and have no health problems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,583
    • Most Online (within 30 mins)
      7,748

    Lindy Lulu
    Newest Member
    Lindy Lulu
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.