Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Gotten


Adalaide

Recommended Posts

Adalaide Mentor

I've been doing really well over the past few months. I've avoided any accidental glutenings and slowly but surely been feeling a little better. Over the weekend I wasn't feeling particularly great, some sort of bug or another. I was just generally nauseous so I stuck to mashed potatoes most of the weekend. Eventually I felt better enough to move on up to chicken soup and had some chicken rice soup in the freezer so I popped it out and had a bowl yesterday. I knew right away it was a mistake. It was something I had made a few months ago, but I guess I did something then to contaminate it.

Now I'm foggy. I keep getting easily distracted, I even just stop what I'm doing in the middle because I forget what I'm doing. Even if it's a conversation. My head is killing me, I'm gassy but I'm too scared to fart. (Which is admittedly mildly amusing to me. :D ) I feel like my stomach has a porcupine in it, which oddly enough the only thing that helps with that is constantly keeping just a little teeny bit of food in me. So I've been just barely grazing all morning. Which is awesome for the heartburn I'm having. <_< Maybe I just just graze on Tums. Everything hurts. I think my hair hurts. I'm too exhausted to be out of bed and have too much life going on this week to be in bed all day. (Thankfully watching a toddler doesn't require more than sitting on my bum.)

This is my first time since I've truly started feeling better. So now I really truly know what it's like to get hit full in the face with this crap. I've smelled pizza before and thought gee that smells good. I'm not sure I'll ever have that thought again. I feel like death today and I know I don't feel half as bad as some of you guys (gals) do when you get got.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Bummer - those accidents are hard to avoid completely, but as the reactions become more severe they sure do reinforce the need to stay gluten-free.

You'll still think pizza smells good - but will likely think - how can I replicate it gluten-free instead of wanting to actually eat it.

Hope you feel better quick :)

bartfull Rising Star

I'm so sorry to hear you are sick! I have no advice, but I can offer you a (((HUG))) and my best wishes for a speedy recovery. In the meantime, here is a little song that always cheers me up. There are no giraffes involved, but maybe it'll cheer you up too.

squirmingitch Veteran

Awwwwwwwwwwww Adelaide. I'm so sorry you got got. sad.gif

(((HUGS)))

Adalaide Mentor

Thanks guys!

That is a super adorable video Bartfull! I love music about as much as I love giraffes, which is really saying something. B)

kittty Contributor

Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

roxieb73 Contributor

Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

I had a very similar experience. I really thought I had the flu! High fever and all.... then I realized it was a gluten reaction. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I'm sure. While it has been a few months, it has always happened swiftly. I've gotten glutened at a pizza restaurant, from not reading ingredients appropriately and from CC in my kitchen. Every time I am in my bathroom in about half an hour or so. I am very aware of how fortunate I am to react so quickly so I can identify the offending item easily. Also, other than I think a handful of Kix and one of what I call my imaginary cookies I think all I ate all weekend was mashed potatoes. And yes, I am beyond 100% certain it wasn't the cookies.

Sometimes people just get sick and it's just being sick. I had no massive explosive D over the weekend so it was certainly not gluten. No way, no how.

JNBunnie1 Community Regular

Kix is safe?

Adalaide Mentor

Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

roxieb73 Contributor

Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

Ohhh good one for when I get the need for a sugar fix. :D Yummy!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,341
    • Most Online (within 30 mins)
      7,748

    Eppie
    Newest Member
    Eppie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.