Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Changing Sensitivites?


Ms.frustrated

Recommended Posts

Ms.frustrated Newbie

I've been eating gluten-free for alomost 3 months. All week I have been watching closly what I've been eating as last weekend I had a terrible time with what I think must have been CC somewhere. Just started feeling well again last night. Today I've been very careful as I have a ball game tonight and am needed to play. I just shared a small bowl of grapes with my daughter and instanly I've had two painful trips to the bathroom. Last time I had grapes, yesterday, I was totally fine, and was happy to find a fruit that didn't upset my stomach. Now what do I do? How often are food sensitivities going to change. How do I know what is safe and not, especially when dealing with fresh fruit??? How do I expect to be able to go on outings with the kids or play a baseball game without flare ups??? I'm so frustrated right now!! I'm too afraid to even go for a walk with the kids, and that is just not fair!

I understand the elimination test, but how can I do that when everyday differs? Does it make a difference when I eat the same fruit two days in a row? Please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

It may not have been the grapes, but a continuation of the glutening you got last weekend. I was glutened last week, and the D went away for a couple of days and then came back again yesterday. I wasn't glutened again, so my body is probably doing a rollercoaster recovery. I'm not sure how long the average gluten symptoms can last, but some people have issues for a couple of weeks after accidentally eating gluten.

Lisa Mentor

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Ms.frustrated Newbie

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Yes! Definitely the worrying makes it that much worse! That was my next question. It's like a vicious circle! I don't understand how things can ever get better when things are constantly changing? I've been tempted to try a laxative every morning to clear things out and then immodium through the day to actually be able to have some sort of life.

Yes, I have eliminated dairy other than lactose free milk and lactose free yogurt. I wonder if there is something in those other than lactose that would be causing this?

Lisa Mentor

I wonder if there is something in those other than lactose that would be causing this?

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

ciamarie Rookie

When you mentioned grapes, the first thing I thought was sulfites, since I've been having to avoid that as well as gluten (and soy and msg). See here: Open Original Shared Link

1desperateladysaved Proficient

Grapes have yeast naturally in/on them. I learned this picking grapes in an orchard. I won't tolerate grapes. But I see that one time you did.

Well, I am about 3 months in and dealing with the same questions. What did it and why?

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ms.frustrated Newbie

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

What about BBQ's?

Lisa Mentor

What about BBQ's?

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

LauraB0927 Apprentice

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

  • 2 weeks later...
Ms.frustrated Newbie

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

Thank you! It's definitelyl a roller coaster ride. It is also tough when some symptoms happen right away and others take a couple days. How do you know what it actually was that bothered you? I'm just going to keep trying and look forward to the day when things get back to "normal". One day at a time!!!

Ms.frustrated Newbie

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

Persei V. Enthusiast

I kind of made a list of safe foods I can eat, no matter what my state is. Before I knew I had GI, I could eat three slices of bread + a handful of cookies before getting sick and now I get glutenated by cross contamination...

So whenever I feel bad, I go back to eating only those foods, that I know for sure that aren't doing any harm and wait for the sunshine to come. I don't stay ill for too long, though. Only three days maximum.

bartfull Rising Star

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

You mean is your BBQ grill contaminated? Probably. If you ever toated buns on it, used BBQ sauce, seasonings, or even margerine on whatever you cooked on it in the past. Most people either buy a new grate for their grills or use foil so their food doesn't touch the grate.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.