Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Symptoms...


SwtRandi

Recommended Posts

SwtRandi Rookie

Everyone's symptoms are different. What are your symptoms when you have gluten?! Do you have Celiac or Gluten Intolerance? I am just curious what others go through when exposed. Thank you :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I have experienced some or all of the following:

fatigue

dizziness

foggy mind

temperary rash

swelling

bloating

extreme hunger

lack of appetite

nausea

weakness

anxiety

depression

diarrhea

I am not sure these all stem from celiac, because I think I actually might have allergies.

bartfull Rising Star

I'm STILL discovering symptoms I had but never realized they even WERE symptoms.

Psoriasis

Insomnia

Brainfog

Minor digestive issues

Edema in feet and ankles

Heart palpatations

Snoring

Asthma

Hair falling out

And probably some others I can't think of right now. With the exception of the asthma, every one of these symptoms is now GONE. But I included the asthma in the list because even though I still have it, I find that some of my "triggers" don't trigger it anymore. I never could go down the soap aisle in the grocery store before. Now, even though I don't like the smell, it doesn't trigger an attack anymore. And wood smoke used to be the worst. Now, it gets me a little wheezy, but not as bad as it used to.

Persei V. Enthusiast

I have gluten intolerance and my symptoms are:

bloating

cramps

diarrhea

nausea

discomfort

I've dealt with another intolerance before so I know what the red alerts are and cut the food making me sick before the thing scalates. At first I thought it was giardiasis (and was giardiasis, too) because the symptoms would go away as soon as I restricted my diet to liquids only i.e only juice. And then when I went back to my normal diet, very hungry, I would stuff my face in bread and cookies and fall sick again in the next day. It didn't take me a month to put the pieces together, gladly, and it never went really serious.

But here and then I get ill again because restaurants here aren't gluten-free and you have to make a bet everytime you order.

  • 2 weeks later...
SwtRandi Rookie

Thanks for responding!! I have been tested once for celiac and it came back negative. I still went on a gluten-free diet and felt somewhat better. Of course, I wasn't that educated and I am sure I ate alot that still had gluten ingredients. I then became pregnant and I could consume gluten with no issue! Yay!! Then I had my son 1/4/12. I still could consume gluten with no issues. Or so I thought. I am sure they were more hidden then I realized. I then got my gallbladder removed 6/26/12 because I was having many attacks and had tons of gallstones! I am assuming that was from gluten not digesting correctly. Is that something that could be true?! Now, I have been eating gluten and realize that I feel like crap. I think all these symptoms are gluten related. Let me know!

Fatique

Anxiety/Depression (I have been on Paxil/Celexa since 16 years old)

Bloating/Gas (silent, but deadly kind)

Constipation/Diarrhea (depends)

Nausea

Headaches/Aura Migraines (sometimes I can't see anything, but black floaters)

Arthritis Pain (all over my body- mainly legs and hands)

Hair Loss (not to the point of balding though)

Brain Fog/Lack of Concentration

Sound like it?! Should I get tested? Or just do it myself?

kittty Contributor

Are you eating gluten right now, or did you recently stop again? Not eating gluten can give you a negative blood test (which is what happened to me).

I had all of your symptoms, minus the constipation (only had the D).

Do you always have migraine pain with the auras? When I had auras they usually occurred with no migraine pain. It's odd to not have the pain with the auras, and I'm wondering if that's a gluten thing.

SwtRandi Rookie

Today is my #1 day of not eating gluten. I decided to go gluten-free again because I hate the way I feel. Just horrible!

No, I dont have the pain when I have the aura migraines. I will have a headache with no aura. Or aura with no pain. Weird right?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aprilelayne Newbie

If you want to get officially tested you will need to continue eating gluten for now.

By removing the gluten or even going gluten-light, you may end up with a falst negative on your test. Its recommended you stay on gluten until after testing to ensure a more accurate (but not a perfect guarantee) result.

SwtRandi Rookie

Thanks for the reply! See this is where I struggle. I need to be gluten-free in order to feel good, but I don't think I can handle much more gluten to actually get tested. Should I just do gluten-free and 'self diagnose' or actually get tested? Ahhh!! Such a struggle :(

Making-A-Change Newbie

I have many of these symptoms as well. I had my blood test today but dont know if I should continue eating glutens until i hear from my doctor. Guess I should keep eating for awhile. I am almost positive that this is what I have to!!! I am of course, self diagnosing but I have no choice since no one else seems to know whats wrong....

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.