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Things I Have Found Out


nobeer4me

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nobeer4me Apprentice

Havn't posted for a while. Its been a busy summer.

For a recap: I tested positive for Ciliac disease in just one area in a blood test 6 mos. ago. I have been gluten free since then, barring a few mistakes.

My symptoms were horrible sore and receeding gums which I had to control using

prescribed steroid rinces ect. Which weren't working that well in the end.

I just had a checkup from my original doctor who noticed a big positive change in my condition. I told him about the diet, and that I was only using the medication sparingley. He suggested I stay on the gluten-free diet since its working, which of course I will.

What I have found out is, its a slow healing process. Stick with the diet and be patient.


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MySuicidalTurtle Enthusiast

It is good to hear your healing!

Carriefaith Enthusiast
What I have found out is, its a slow healing process. Stick with the diet and be patient.
That is very true :) I'm glad that you're noticing improvements on the diet.
Felidae Enthusiast

Are the receding gums a part of celiac disease? I have just been told that I need a gum graft for my receding gums. I wonder if there is a celiac disease connection?

mommida Enthusiast

My sister, who will not get tested for celiac disease, has all ready had a dental bone graft and gum grafting at 30 some years of age. If malabsorbtion of nutrients is a cause, then there is an obvious connection.

Laura

nettiebeads Apprentice
Are the receding gums a part of celiac disease?  I have just been told that I need a gum graft for my receding gums.  I wonder if there is a celiac disease connection?

<{POST_SNAPBACK}>

I think I read somewhere that there is a connection. My teeth shifted some after developing celiac disease. All those high school years in braces and now not much to show for it! :angry:

nobeer4me Apprentice
Are the receding gums a part of celiac disease?  I have just been told that I need a gum graft for my receding gums.  I wonder if there is a celiac disease connection?

<{POST_SNAPBACK}>

Yes, I believe it is. I have oral Lichen Planus, which I believe was brought on by Ciliac disease. I had a gum graft on one side before I was diagnosed with celiac disease. It seemed the graft went well at first. But then the graft site and donor site seemed to be attacked by the LP disease. After being on the Gluten free diet. Things are way better. I wish I would have discovered to gluten-free diet before having the skin grafts.


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Felidae Enthusiast

Thanks for the replies. I'm really not looking forward to the gumk graft. If only I had gone gluten-free earlier. But that's only if there is a connection.

shimma Apprentice

I have receding gums too! I never thought of there being a connection to celiac disease. My sister had a graft but I haven't had to do it yet. Hopefully it will never get to that point....

Rose519 Newbie

Thanks for the information about the gum graft. I had one years ago, was threatened with one on the other side. The one that was done is receding and probably needs to be done again. I am newly "diagnosed" and so this information will be helpful if the new dentist brings this up again.

Lisa Mentor

If you use alot of antacids...this too will receed your gums.

Things like Prilosec, Zantac, and Pepsid will. I would recommend to use them just when you need them and not overuse.

Lisa B.

Felidae Enthusiast

I've never used an antacid. No one in my family has receding gums and I have had a dental plan my whole life. So the gluten connection I find very interesting.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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