Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shingles?


Guest BERNESES

Recommended Posts

Guest BERNESES

Hi Everyone- This weekend I developed two small but painful bumps on the scalp behind my right ear. I can't see them but my sister said they looked like bug bites. OK. Hurt to brush my hair in that spot but I figured they'd go away.

Tonight in class I developed a headache and another huge, hard bump behind my right ear. Right on the bone. It hurts!

I called the doctor and he said could be shingles so I'm going in tomorrow to get checked out. Anyone else had this? I did have chicken pox as a child and I know that's a prerequisite. I'm kind of scared. Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I've never had it, but my grandmother had it and it wasn't too bad for her.

morrigan Newbie

Besides shingles you might want to consider the possibility of DH. I am not familiar with your situation but I have DH and the bumps that I get on my head do not itch even though they are bothersome.

-Morrigan-

Guest BERNESES

That occured to me too. Boo hoo! Don't know which is worse :(

Eliza13 Contributor

If the bumps are directly behind your ear, they could be your lymph nodes. If so, you are likely coming down with a virus (if it is your nodes). I am not a doctor, but I have had my nodes swell in the past and they hurt like heck.

:)

Guest BERNESES

Yeah- it's definitely not a lymph node as it's on my scalp and the bone behind my ear near the hairline.

elonwy Enthusiast

Heres the thing with shingles: if you take care of them, you'll be just fine. If you think you're just gonna deal with it like chicken pox you're screwed.

My grandma was a tough little (4'2") old lady from Ireland who never went to the doctor in her life and had 9 children that lived. She got shingles at around 75, didn't do anything about it and ended up being bed-ridden and half-crippled for 6 months.

That scary admonition out of the way, you're going to the doc, if you have it, just take what they give you, even if it has gluten in it. They have plenty of stuff to deal with it now.

Here's hoping its just DH. I get little bumps behind my ears and on the back of my neck that act like big pimples that never do anything and itch and hurt like hell and that's my DH. The good news is, DH can eventually go away and they have antibiotics to make it go away faster.

Elonwy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice
Hi Everyone- This weekend I developed two small but painful bumps on the scalp behind my right ear. I can't see them but my sister said they looked like bug bites. OK. Hurt to brush my hair in that spot but I figured they'd go away.

Tonight in class I developed a headache and another huge, hard bump behind my right ear. Right on the bone. It hurts!

I called the doctor and he said could be shingles so I'm going in tomorrow to get checked out. Anyone else had this? I did have chicken pox as a child and I know that's a prerequisite. I'm kind of scared. Thanks, Beverly

<{POST_SNAPBACK}>

I've had shingles several times. Before I break out I get pain on the surface of the skin, weird!. Then I get these real tiny red bumps, very itchy and painful. It usually occurs on my thigh. The skin Dr gave me an Rx for Valtrex to take before the eruptions and Domboro soaks to apply to the skin. They usually dry up in a few days. I agree about getting medical help because they can be very painful and hard to get rid of if you wait too long. Yours don't sound like shingles but get checked out!

skbird Contributor

I got shingles when I was 18 and it was not pleasant nor any walk in the park. I had a pink blotch on my spine at waist level and one on my side and I went to the campus doc and he said "oh, shingles! Take some tylenol and get some calamime lotion - you'll be fine." Two days later I was back in tears and they gave me some codeine. It was rough. Two days after that I went back to my parents house and they took me to a dermatologist who said if I'd been there the first day I noticed the blotches he could have given me a powerful antiviral that would have stopped a lot of the process... well, I guess going to an on-campus doc isn't enough.

Anyway, the whole thing too about a month to get over, and I actually got some scarring on my waist for life. If it's even suspected, don't mess around and get thee to a doctor post haste. It won't kill you but it is really uncomfortable. I just met someone who is recovering from having it on her face - she said every time she gets stressed out now it starts breaking out on her again.

I don't mean to scare you, but I have said this many times - I would not wish shingles on my worst enemy.

Take care -

Stephanie

ponita Newbie

Berneses,

I saw your post and see now it's been 24 hours, were you able to see you doctor? What was decided? I'm curious ...

I want to tell you that for 10 years off and on I've been breaking out behind my ears, then sometimes across my shoulders, in my mouth, on my arms. Some of the doctors said it was shingles, some would say they simply didn't know. When I found out that I have celiac, I researched DH and couldn't believe what I saw.

The only time I break out now is if I ingest something contaminated that I'm not aware of.

Keeps me motivated to stay as pure as possible!

gluten-free since June 2004,

The day of my dx is like a new birthday for me as I feel WONDERFUL.

Let me know how you're doing.

Melissa

BRCoats Enthusiast

I got shingles for the first time.....RIGHT after I went gluten-free. Weird, huh? I went for months, thinking it was eczema, so I didn't go to the doc. Then, when I went in for a checkup, I told him about it. He kinda freaked, spent a whole lot of time examining it, and finally decided it was shingles (it looked pretty nasty - and it was on my forearm, below my wrist). He prescribed me Valtrex, and a cream (basically a topical Valtrex). I didn't apply it until months later, because I didn't think going to get the expensive meds outweighed haing the rash (but it did burn and itch and hurt like crazy!!!). I'm stubborn, what can I say! Anyway....then I had someone tell me that it can go to your brain, if you don't get it taken care of. She had a friend that actually died of herpes encephalitis (shingles on the brain, basically). SO....needless to say, I ran out and filled that prescription! <_< I never filled the oral, I just got the cream. And it worked like a CHARM!!! Great stuff. The bad news is that it cost me eighty bucks AFTER my insurance paid their part. And I have good insurance. :angry:

Anyway....the shingles are painful. Just get treated, and all will be well. I agree that you need to get it taken care of if it is indeed shingles.

HTH,

~Brenda

Guest BERNESES

Thanks everryone for your support! Saw the doctor today and she is 99% sure it's not shingles. It looks like Scarlet was right- it is some kind of pimple or bug bite rash that got infected and the hard lump behind my right ear actually is a swollen lymph node so they gave me Augmentin but I haven't filled it yet because I'm trying to find out if it's gluten-free. I'm so relieved that it's not shingles as I've heard horror stories! I'm still wondering about the DH thing though. I've had these bumps appear on my scalp before.

So, does anyone know if Augmentin is gluten-free? And how do I go about getting a DH diagnosis? I went to a derm recently who diagnosed me with dermatitis without even examining me (no lie! ). I used the stuff she gave me for my ears (which itch, crack and bleed) and it made them worse so I just stopped using it and went back to OTC hydrocortisone. Her quote, without even looking at my ears, was "It's definitely not related to Celiac's" Arrrgh!

Kasey'sMom Enthusiast

I had something like this and it was scary as well. My dh had the shingles and I've never seem him so sick. I'm glad an anti-biotic will take care of it for you. :)

I checked out Augmentin on this website and it looks like the tabs & liquid are gluten-free. Here's the website I got the information from

Open Original Shared Link

Healing Wishes!!!! :)

Guest BERNESES

Thanks so much- I started the Augmentin last night. Hope it does the trick- this hurts (but I'm sure nothing like Shingles!! Thank you all for your help, B

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.