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Problems W/skin

mandigirl1

By mandigirl1
in Dermatitis Herpetiformis

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mandigirl1 Enthusiast
mandigirl1
Posted

Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!! :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

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lovegrov Collaborator
lovegrov
Posted

I've had some of the skin problem you describe (and I had DH). The skin thing you have does not sound like DH.

The hair and nail thing can be gluten related or something else. Are you gluten-free?

richard

jams Explorer
jams
Posted
Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!!  :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

I break out a lot when I eat gluten. They get pretty yucky. I went to the dr before celiacs and they said it was rosatia (spelling.. sorry!). My nails were also very brittle.

Now, gluten-free, I have a clear face (except for when I oops) and my nails are hard to cut even with a clippers! I tried to bite them this past weekend at my son's soccer game and I couldn't because they were so hard!!

Are you gluten-free and if so, are you sure you are not slipping up anywhere? Things such as toothpaste, chapstick, soaps, small altoids :unsure: ?

Rachel--24 Collaborator
Rachel--24
Posted

I've been getting bumps on my face since I went gluten-free and accidently get glutened.

I'm not sure what they are but I got them 3 years ago when I first got sick and then nothing for a couple years until now that I've gone gluten-free. I was also dx'd with Rosacea back then but I don't really have it.

I don't think they are pimples cuz they arent like any pimple I've seen before and they also stay for several weeks. They also usually have a twin on the other side of my face so I don't know if it might be DH. Sometimes they are in small clusters on each side but they hardly itch at all so I don't know if they are weird pimples or DH.

mandigirl1 Enthusiast
mandigirl1
Posted
  • Author

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was: After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!! So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere. <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized? Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o:(

Corrine Rookie
Corrine
Posted

My husband gets these cyst like things as well. They are horribly ichy and he scratches them until they bleed and then they don't itch anymore. Then he has these ugly scabs. The dermetologist said it wasn't DH but I suspected it was. In June he consented to going gluten-free. He did have a blood test that came back negative so we're going this route. He says he doesn't feel any different but I haven't noticed any new cysts.

laurie222 Newbie
laurie222
Posted

[ Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

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laurie222 Newbie
laurie222
Posted

Seven years for me and I don't think you are ever going to be totally free. Especially if you ever eat out or anywhere other than your house. Always a calculated risk.

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was:  After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!!  So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere.  <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized?  Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o  :(

<{POST_SNAPBACK}>

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