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Celiac Types And Segregations, And Eventualities

pricklypear1971

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pricklypear1971 Community Regular
pricklypear1971
Posted

Ok, I admit to taking time off from reading about celiac disease. I needed to.

But now I'm reading again, and I don't know if it's me looking at this with new eyes or if this is a newer phenomena, but it seems like lately I'm seeing articles and research drifting towards segregating out types of gluten intolerances??? Also, it seems I'm reading recent (I think) articles about how if you are + on the genes you are always at apparent lifestyle risk (meaning if you eat gluten you raise your risk) of developing celiac disease.

I found something about Gluten Ataxia not being celiac disease but a separate condition, apparently, although I've read here how people have neuro and gi issues from gluten...so what are THEY (I mean ME). This seems to be associated with DQ1. This is from About.com but this is an example of the type of article I'm talking about... Open Original Shared Link

Of course, there's all the new stuff about NCGS - which I'm very happy to see out there.

Then there's stuff from the company doing desensitization/vaccines saying DQ2 is the only celiac gene.... Open Original Shared Link

Saw something else saying they are going back and looking at genes from dx'ed Celiacs who did not know their genes and are finding a number of them aren't DQ2 or DQ8. https://www.celiac.com/articles/23019/1/The-Celiac-Disease-Confusion/Page1.html

Then there's the stuff about 13 new contributing genetic loci Open Original Shared Link

What else has everyone else been seeing, and what do you think?

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GFinDC Veteran
GFinDC
Posted

I think that's a lot of reading...:)

SleepyBunny Apprentice
SleepyBunny
Posted

I think if you feel better on a gluten free diet wether you have gastro or neuro symptoms they should just call it celiac. Not if you're just doing it for some diet fad. But if you have symptoms get better with a gluten-free diet and you have other conditions related to celiac (other autoimmune disorders, vitamin deficiencies, etc). They should call it all celiac but break it down into different categories like they do with other diseases. If you react to something and you keep ingesting it anyway it's going to cause some kind of damage eventually right? Just because it's not damage to the villi doesn't mean it shouldn't count. Sorry if I'm rambling it's one of those days lol :lol:

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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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