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Am I Re-Glutening Myself With Something Every Day Or Is This A Super Long Glutening?

aquaholical

By aquaholical
in Coping with Celiac Disease

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kareng Grand Master
kareng
Posted

I don't know whether you can get it across the pond, but I use Kingfisher gluten free toothpaste,mit's the only one I dare use as I haven't found any other gluten free toothpaste.

That's too bad. Here, in the US, I haven't found any that have gluten.

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aquaholical Apprentice
aquaholical
Posted
  • Author

Have you talked to the doctor about the meds you are taking for Lyme? I wonder if one or more of those meds might be the issue rather than gluten or another intolerance.

I'm still waiting on Vitamin Shoppe to return my call/email about their manufacturing process (know all the ingredients for their name brand supplements claim to be hypoallergenic, but don't know about manufacturing.) But yesterday I FINALLY had a day of feeling halfway decent, so I made sure to take my herbs alone and wait hours to eat anything to see if I had any sort of reaction. I didn't, so I'm really hoping they're okay.

Dates are another story. I had a few dates after dinner and started bloating, started freaking out that it was the sweet potato I had for dinner (staple of my diet). But when I got back from a friends house later at night and snacked on a few more dates my stomach went totally bananas, had a very difficult time sleeping last night. This is so frustrating. I'm starting to get scared that I won't be able to eat ANYTHING.

aquaholical Apprentice
aquaholical
Posted
  • Author

Okay, thanks to the food diary I may be getting somewhere. Dates bothered me last night, this morning I ate a banana and my belly ballooned out and I got D, the other day when I ate an apple the same thing happened. Hello fructose malabsorption?

IrishHeart Veteran
IrishHeart
Posted

I am just going to offer you all this one thought. I am sensitive to trace gluten and I was very ill for many years before I was diagnosed. That said, please keep in mind that healing the intestines takes a LONG time. Some say 6 months to 2 years--or more. It just is what it is. It took me nearly 15 months on a strict gluten-free diet to start to absorb nutrients again and feel somewhat normal and not have some pain in some area of the GI tract. (this was MY experience and yours may be different) Nearly 22 months in, and I still have extra-intestinal symptoms to resolve. It's a long road to recovery for most of us.

The majority of you guys posting on this thread are still in the beginning stages of this gluten-free life. I do not want to sound harsh, but honestly, you simply cannot tell if you have additional food intolerances by "guessing".

If you do suffer an accidental glutening, it takes many WEEKS for the inflammation to die down.

So it is very difficult for anyone to tell if it's this food group or that food group when your gut is still healing.

For the first 6 months, it is suggested by most celiac doctors that you avoid dairy and too many processed, packaged foods. Some foods are difficult (even for non-celiacs) to digest, so lentils, beans and other legumes (such as peanuts) may give you some grief.

Certified oats--may not be the best thing for you--- and some docs say wait 2 years for those.

Everyone is different and you may be able to handle these foods.

If any of you eat out this early in the game, please be aware that there is a chance you will be CCed. It's just a simple fact.

Take probiotics, use digestive enzymes, drink water, lay off the wine for a while. Just suggestions.

Let your gut heal some more before you all start thinking every single food is a problem food. I have been in your shoes and you will drive yourselves insane trying to figure it out while you are still in the beginning stages of healing your damaged gut lining. In the beginning, it may seem as if EVERY food is causing a reaction--but it may not be that at all.

And toothpaste rarely has gluten in it. I have not seen any yet.

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Regarding fructose malabsorption? A doctor can order a breath test to see if this is the case. Or you can go without fruit for a week and try one piece.

Keeping a food journal is a great idea for some people. It works well.

I, however, have several notebooks full of this daily information I wrote faithfully for a year and I did not learn a darn thing from any of it. I rotated foods in and out, eliminated foods for weeks at a time, tried every diet suggested (paleo, low sals, even the falisafe diet) and I just became frustrated. I needed meat for muscle recovery and B-12 and leafy greens for folate and I needed fiber ---so I just chose more of those food proteins. For awhile, though, I thought I would never be able to eat most of the foods I love ever again. (tomatoes, oranges, coffee, chocolate, cheese--were all out for a while)

Once healed, I can eat all of them.

Just some thoughts.

Best wishes.

aquaholical Apprentice
aquaholical
Posted
  • Author

If you do suffer an accidental glutening, it takes many WEEKS for the inflammation to die down.

So it is very difficult for anyone to tell if it's this food group or that food group when your gut is still healing.

Thank you for answering my initial question. For the majority of the last couple of months, that's what I've assumed all this mess has been lately: just a horribly rocky road to healing. However, I do think I am truly onto something with the fructose malabsoption. I realize I'm a noob and could just be complicating things in my impatience to find relief, but looking back over my food diary the last few weeks every piece of fruit I've eaten has been followed by almost instant D and bloating while other meals throughout the day (plain baked potato, for example) I had no problem after eating. I'm going to try cutting it out for a week as you suggest to see. Thanks for all the information. It was truly very helpful and just what I needed to hear.

IrishHeart Veteran
IrishHeart
Posted

Thank you for answering my initial question. .... I'm going to try cutting it out for a week as you suggest to see. Thanks for all the information. It was truly very helpful and just what I needed to hear.

Honestly, sweets, I am going to tell you like it is: It's an up- and- down road, this healing thing ---and it can be very frustrating, but learn to trust your body.

Sometimes, it's hard to tell. A reaction may occur 24 hours later...so, you ask yourself "was it the banana I just ate? or the cheese last night? or the potato from dinner?"..blah blah blah

You start to feel like a crazy gerbil on a treadmill. :blink:

Plain, simple foods for a week. Take out fruit if you think it's a problem, then try ONE piece. See what happens.

(At one point, early on, hubs bought me a juicer. Everyone said this was the "healthy way "to get me some sustenance.....yeah okay, well, I could not even tolerate the most healthy veggies and fruits run through that !*&^% juicer--I just had everything projectile out both ways within a few minutes --sorry, but that's the truth)

WHY??My GI tract was a burning mess.

My conclusion: It's not necessarily the foods causing the "reactions", but the ravaged GUT.

Heal the gut, heal the body.

IMHO

aquaholical Apprentice
aquaholical
Posted
  • Author

Sometimes, it's hard to tell. A reaction may occur 24 hours later...so, you ask yourself "was it the banana I just ate? or the cheese last night? or the potato from dinner?"..blah blah blah

You start to feel like a crazy gerbil on a treadmill. :blink:

PRECISELY. I wish I could just fast forward to when my gut is healed and being nice to the rest of me.

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IrishHeart Veteran
IrishHeart
Posted

PRECISELY. I wish I could just fast forward to when my gut is healed and being nice to the rest of me.

This "fast forward" button?---is what all of us want. Sadly, they do not sell those on the internet (I looked) :D

I know it's hard to be patient, and there is no quickie miracle pill to take. Bummer.

It just takes time. Hang in there.

Take out the foods you think are a problem right now.

Wait a few weeks. Add back ONE and wait a few days before trying another, ok?

Keep us posted.

dilettantesteph Collaborator
dilettantesteph
Posted

Oh gosh, 4 years??? :/ I've decided over the next couple of weeks to just do steamed veggies, baked potatoes, etc etc, then HOPEFULLY my symptoms will finally clear and I can add nuts back in/see how I react, then beans. I'm really hoping this was all just lentils (I ate them almost every day, so it would make sense) but am doing like everyone suggests and writing it all down in my food diary and investigating all possibilities. I have this feeling I might be like you and need to start a garden..

This was very helpful, dilettantesteph; thank you!

I'm glad I was helpful. I was afraid I was discouraging after seeing your first comment! (Oh gosh, 4 years???)

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