Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like I'm Just Starting gluten-free

pricklypear1971

By pricklypear1971
in Coping with Celiac Disease

Recommended Posts

pricklypear1971 Community Regular
pricklypear1971
Posted

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newbee Contributor
Newbee
Posted

I'm sorry to hear this pricklypear. That sounds awful! I wish we could all just get better and stop suffering. Unfortunately, I don't have any words of wisdom. But, I feel for you. Hang in there!

shadowicewolf Proficient
shadowicewolf
Posted

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

How long did yours go, overall? My son's seemed to disappear by Saturday - 6 days. I think mine started last Monday, so I'm a week and a half??? Ugh.

shadowicewolf Proficient
shadowicewolf
Posted

about 8 days :( Not fun, not fun.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Maybe I'm just old and weak.

I don't feel the same as I did last week, but I do feel like my gi system has been gutted.

shadowicewolf Proficient
shadowicewolf
Posted

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Yeah, I get the mutant stomach bug. Figures.

I hope "everyone" stays away so I don't get it again.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So, today is better.

Last dose of d and iron and digestive enzyme and probiotic was yesterday around 11 am. Not doing that today.

This morning lots of bathroom visits but no gas like before. No nausea. Seems to be calming down.

So....I wait.

bartfull Rising Star
bartfull
Posted

I had that bug. I never had nausea with it but plenty of D and lots of bloating and gas. That was several weeks ago and I am still having some bloating and gas that comes on later in the day. I was thinking it was food related, but now I'm thinking it's lingering effects of the bug. I haven't been eating anything that should cause it. Maybe this thing likes to stick around in the guts of celiacs.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I think the nausea was from the pills - primarily iron.

I must admit I think my digestive enzymes were giving me problems, though, which is weird since I've been on them for years and they are definitely gluten-free.

squirmingitch Veteran
squirmingitch
Posted

I'm so sorry Prickly. UGH! A bug!

My iron is okay so I can't speak for those but my D is low so the doc wanted me to take mega doses. I can't do it. Not at that high of a dose. Gives me indigestion like you've never heard of so i had to cut back on it. I am taking a gluten-free liquid & I've experimented & am sure that's what was doing it. So I imagine the combo of iron & D for you is overwhelming.

Thankfully I seem to have missed the bug.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So I looked it up and I've diagnosed myself with bacterial IBS.

Yeah, that's where I'm at at 10:30 pm in Friday night...

I lead an exciting life.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So, improving.

Yesterday only 1 bathroom visit after meals.

Today, no visit after breakfast!

I have hope.

squirmingitch Veteran
squirmingitch
Posted

YAY! Hope is good. Sounds like you're on the mend.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I spoke too soon. Had a bout of it and nausea this afternoon.

One is better than three, I guess.

squirmingitch Veteran
squirmingitch
Posted

Ohhhhhhhhhhhh, I'm so sorry to hear that.sad.gif 1 is better than 3 but none is better than 1. Hoping tomorrow brings better news.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Well, more progress. No nausea and had a day if something resembling "normal" potty habits. Managed to clean house a bit and run myself ragged trying to do 100 things I haven't done for two weeks.

Tomorrow is the true test - appointment with the personal trainer. Here's to hoping I don't have to rush to the ladies room.

I so wish I knew if this was all the virus or if I now react this badly to taking supplaments. I literally hurt when I think if trying to start them up again.

squirmingitch Veteran
squirmingitch
Posted

Hoping you have good news now. I know, the guessing is a PITA! You don't know if it's this or that or the other or none at all. Makes one nuts!mad.gif

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Yes, getting better. Monday was pretty normal, yesterday better, today I worked out with my trainer and didn't die.

So far no nausea or d.

Still waiting to start back my supplaments.

Big chicken.

squirmingitch Veteran
squirmingitch
Posted

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

shadowicewolf Proficient
shadowicewolf
Posted

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

No kidding. I have a hard time taking anything without thinking "OMGWHATISTHISGONNADOTOME?!?!?". Then my stress goes up, etc....

bad cycle is bad.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.