Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lutein Free Diet


icm

Recommended Posts

icm Apprentice

I've heard that many children with Autistic Spectrum Disorder have IBS.

I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances.

Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the bill.

What are your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Before you search for other, less likely causes for your issues, try being gluten free for 6 months-no cheating - no magic "cure" pills. Maybe dairy free, too. Try the more likely things first.

I would ask you for your reputable source for this "I have heard" info but, this isn't an autism site, so most of us don't follow the research.

shadowicewolf Proficient

I've never heard of that. Gluten, however, has been known to make things worse.

GFinDC Veteran

Carrots bother me too. So I don't eat them anymore. With celiac disease the damage to the gut can lead to food intolerances of many kinds. Carrots are one of them, for some of us.

Sarah Alli Apprentice

Your eyes require lutein to function properly. Go on a lutein free diet and you are shooting yourself in the foot- not to mention you will probably starve since it is in nearly everything from leafy vegetables to animal fats.

There isn't really any actual scientific evidence that *-free diets are useful in reducing the symptoms of autism anyway, and this is certainly the most extreme iteration of that trend I've seen. The evidence is all anecdotal and doesn't bear out when you do actual placebo-controlled research. In most cases, it doesn't hurt, but it certainly is going to hurt if you try to eliminate so essential a nutrient from your diet.

come dance with me Enthusiast

I've never heard of that before, only the Gluten-free Casein-free diet which we now have because we're vegan and the child is coeliac so we have to be anyway.

  • 5 years later...
Hypnobambie Newbie
On 9/26/2012 at 8:38 AM, icm said:

I've heard that many children with Autistic Spectrum Disorder have IBS.

 

I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances.

 

Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the bill.

 

What are your thoughts?

Since not eating lutein, having to pick carrots out of many a salad, lol, I can eat salads again...no carrots works for me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hypnobambie Newbie

I have been doing the lutein free diet for 6 months, it's like night and day...when I get lutein I crash w symptoms...when I don't I get stronger and stronger.

 

I am dairy free, oxalate free, grain free, lutein free and feeling much better. I can hike again...

Ennis-TX Grand Master

Never considered this, I know casein makes my Asperger flare up....But I have never gone a meal without some form of lutein foods in 2 years....always eating spinach, kale, romaine or small amounts of broccoli, but I need the vitamin A and vitamin K. Something to consider I guess, but on this I would have to supplement them I guess. UC is under control and no more blood loss that way means I can probably chance cutting down on the vitamin K for a bit. Carrots always had to be steamed to mush when I used to eat them....very tough on the gut. I now avoid them as the sugars/carbs flare the UC. Bit it might explain why I have alaways had some form of my aspy traits present with all the other gluten, dairy, soy food removed...or just be I am a aspy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.