Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help, Major Stomach Issues

MATT1983

By MATT1983
in Coping with Celiac Disease

Recommended Posts

MATT1983 Rookie
MATT1983
Posted

Hello all, It's been a while since I have posted or asked any questions. Recently my wife and I went on vacation. We went to see her family and they understand my gluten-free & DF Celiac Disease. But the problem is that they don't think about all the cross contamination that can occur. We came back home and the day we left I started to feel extremely sick. I'm thinking that there was some cc involved and the bad thing is that we were there for four days. Since being home i have had nothing but a horrible week. I have been very sick. Nothing but laying down. If I get up I get extremely sick. I mean bathroom runs and coming from both ends. If anything makes it threw without coming back up, it just comes out as quickly from the other end. I have only been able to eat Applesauce. That is the only thing I can Stomach. My Question is, Is this normal with celiac disease? Or can it be something else? I don't have insurance and cannot really afford to see the Doctor. I have tried to eat more, but only results with bathroom visits and major stomach bloating/stiff stomach, cramping, etc.

Thank you for anyone's help.

Matt

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Do you have a fever?

And yes, from what i know, it is.

MATT1983 Rookie
MATT1983
Posted
  • Author

Do you have a fever?

And yes, from what i know, it is.

Not that I have seen/caught yet. My temperature is running between 96.8-97.3.

shadowicewolf Proficient
shadowicewolf
Posted

Keep an eye on it. If it is a virus (i got hit with a nasty one a couple of weeks ago) then it might show up.

As for the stomach issues, at this point i'd say stay on a BRAT diet (bannanas, rice, apple sauce, and toast (or maybe not lol)). Keep drinking water. If you can, i'd also suggest drinking somehting like gatoraide for the vitamins.

GottaSki Mentor
GottaSki
Posted

If you don't have a fever, I'd guess it is gluten related. I've had "flu" like symptoms many times...sometimes just a few days, worst was several weeks.

Rest, drink as much water as you can and eat any whole food your stomach can handle. Good old chicken broth soup with vegies is my go to when these "flu" symptoms hit.

Hope you are feeling better very soon.

LauraB0927 Apprentice
LauraB0927
Posted

I second the gatoraide suggestion - from all the vomiting and D you are having (combined with the fact that you aren't eating too much) you are probably losing tons of electrolytes which will make you feel even worse and do terrible things to your body. Make sure you are having some intake of sodium, potassium, magnesium, calcium, and phosphate. If you start to notice changes like confusion or altered states of consciousness, get to the emergency room ASAP - it means you lost too many electrolytes. Can you tolerate things like rice and chicken broth? They help me when I get glutened.....feel better!!

MATT1983 Rookie
MATT1983
Posted
  • Author

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

MATT1983 Rookie
MATT1983
Posted
  • Author

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

I never thought of that. I was just trying to follow docs orders to hopefully get better. lol I notice sometimes the vitamins he has me taking make me sick if i don't eat. So that would make sense.

Not sure if this helps but these are the vitamins I take 2xs a Day:

These are all Wal-Mart or SAMS brand.

Vitamin C -1

Multi Vitamin -1

Fish Oil -2

Fiber Pill -3

Anti Acid 2- 150mg

I have two Ulcers also that don't like to help at all. And the meds the doc wants me to take are Extremely Expensive even without Health Ins. The bad thing is I can tell a major diff when I miss all these.

The bad thing is I Want to Sleep So Bad, but for what ever reason, Being Glutened Doesn't help in that. And since I got glutened on vacation I haven't been able to sleep except about 1 -2 hrs. On average, I get about 4hrs of sleep every night. This is not healthy and nothing helps. But thankful I get some sleep. I know that everyone here knows what I mean.

flowerqueen Community Regular
flowerqueen
Posted

It sounds like cross contamination, but you can't totally rule out bugs etc., I find when I've accidentally been CC'd my stomach can't cope with vitamins as the gut is already damaged. Being in England I don't know what is available where you are to stop you being dehydrated and this is more important than food when you've had such harsh symptoms for so long. Hope you are on the mend soon.

GottaSki Mentor
GottaSki
Posted

I agree with Prickly - stop all the supplements for at least a few days - until you are successfully getting food into you. When you feel stronger and are eating with no problem re-introduce them one at a time/no more than one a day - so you'll be able to identify if one sets you back.

GFinDC Veteran
GFinDC
Posted

Hi Matt,

It might help to take some probiotics. I suggest trying some deglysternized licorice (DGL) for the ulcers and mastic gum. Antacids are not real helpful for your condition. H.Pylori likes a low acid environment and that just lets it thrive. I take Betaine HCL for my H.Pylori to help kill it. And I sleep on my side that hurts so the stomach acid and DGL washes over the h.Pylori infected area of the stomach. It helps kill the bacteria and keeps the pain at bay.. It may hurt at first but if you can do it for 10 minutes at a time and build up it can help. It is important to keep your stomach acid at a high enough level to kill invading germs. Especially at night before going to bed, try the DGL.

I suggest avoiding sugar and carbs while you are getting over being glutened. Pepto Bismol may help some if your gut is irritated.

joolsjewels Newbie
joolsjewels
Posted

I am going through the same thing right now. Got cc from a favorite eatery. Boo! Yesteday was the first day i was able to eat solid foods. I spents several days consuming soup,, gatorade, and water. Finally the nastiness has stopped, but i am weak and abdomen is sore. Still just wearing jimjams. I hate that torn up feeling inside.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,587
    • Most Online (within 30 mins)
      7,748
    michaelf31
    Newest Member
    michaelf31
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.