Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What More Can I Do About My Mother.

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

It would be hard to describe the whole situation. I was diagnosed celiac last May by a genetic test. The same test was so positive that it was known both of my parents have the genes for it. I told them and all my extended family of my diagnosis. I also wrote to Mom's doctor to ask him to consider this diagnosis in my mother's care.

Dad said that Mom was just not up to a diet change then. She had begun some bizarre behaviours such as expecting company when there was none. She eventually got some psychotic drugs to try to help her brain function better. She became physically weak. The other day she couldn't rise from her kitchen chair for the entire day. Eventually, they had to call an ambulance to come get her.

The doctors are not telling what is wrong my Dad says. They aren't trying to explain why she is so weak suddenly? They may release her from the hospital today if she can walk. How does something like that mysteriously change?

What can I do? What can I do?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

I live an hour and a half away and we are now short of cars in the family. I have given the doctor my name and phone number when I told his that I have celiac.

Did your Mom ever pull out of it? Mine has been so well and she is only 71. Dad is 81.

II don't think the doctor is allowed to discuss her healthcare with me. Mom and I have vastly different ways of looking at health care.

psawyer Proficient
psawyer
Posted

I don't think the doctor is allowed to discuss her healthcare with me.

Even if he can not talk, he can listen.

kareng Grand Master
kareng
Posted

My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

GFinDC Veteran
GFinDC
Posted

It might be worthwhile to check the drugs she is on for side affects. Some drugs can have very strong side affects.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

My dad is a gem. My siblings are all involved. I just found out that the weakness was probably a side effect of a drug she went on two months back.

I will be sure to leave a note for the doctor if I have further questions.

Thanks,

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


joolsjewels Newbie
joolsjewels
Posted

I think it is difficult for others to see what we have had to go through and do not want to admit that they might have a similiar problem. Both my parents and my brother have auto immune disorders which are associated with celiac diease. I too have suggested that they get tested just to be certain. Of course they will not. I really do hope your family get tested, but sometimes all we can do is be supportive.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      Was the card itself lost or just the record or both?
    2. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    3. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    4. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,848
    • Most Online (within 30 mins)
      7,748
    Francis M
    Newest Member
    Francis M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.