Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coming Off My Anti Depressants


Skittles

Recommended Posts

Skittles Enthusiast

Hello, I havent written in here in a little while but I really need somewhere to vent. I feel like no one understands what i'm going through. I went to my doctor about 5 years years ago with an eating disorder and other problems such as no energy and no drive to do anything. I needed some help as I was a university student and stopped attending classes. My doctor put me on an anti depressant, citalopram (Celexa) 40 mg. I have only been diagnosed with celiac this past April. After being diagnosed I now know why I was experiencing all of these symptoms. I have wanted to go off my anti depressants for a couple of years now but I just found it difficult to do so. Finally this past February I decided I was going to stop them. I was not in any rush so I slowly decreased my doses and finally finished them about 2 weeks ago. I was doing very well while decreasing my doses. It wasn't until about the last week before coming off that I found myself to be emotional. But about a week after coming off them completely I find that I am extremely erritable! And so cranky! and if one thing goes wrong (even something that would seem so little to someone else) I cant handle it at all. I can't cope at all. I get terrible mood swings. Living with my boyfriend, I just take it out on him, which I hate and don't want to do.

I am not going back on the anti depressants. I am not depressed and dont even think that I was before I went on them. Everything I was experiencing was related to my untreated celiac. Its just that after being on them for so long I am having a hard time coming off It's just the mood swings that I hate!!

Has anyone else been on anti depressants and experience anything like this? Andd do you have any advice? or can anyone give me a time frame as to when you started to feel like yourself again?

I feel like no one around me knows what im going through or why I am feeling the way im feeling :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

what was your taper? they are VERY hard to get off. perhaps the last step was too quick?

Takala Enthusiast

You know that mood swings and crankiness are also a side effect of being glutened, don't you ? Perhaps you have a cross contamination problem instead of a pill problem. And if it is only six months you have been avoiding gluten, you may not have all the ins and outs down yet - like, if the boyfriend eats it, he needs to brush his teeth before kissing you.

Also, for moods, taking a multivitamin, calcium/D/magnesium mineral, eating good fats, and exercising regularly really help.

MitziG Enthusiast

Just want to make sure you understand, depression isn't always manifested as sadness. Irritability, short temper, mood swings can all be symptoms of depression. Likely you were depressed, even if celiac was the root cause.

Depression can be caused by many things, and when it is caused by gluten, it doesn't necessarily go away when you stop eating it. I know for myself, my depression is much better now that I am gluten free, and like you, I thought I could handle it without meds and tried to stop. But I couldn't. I take a lower dose now, but I still need them. Its been 18 months gluten-free now, and maybe I need more time for my body to repair what gluten did to my brain. Or maybe it can't be repaired. Time will tell.

There is no shame in having depression, or taking medicine for it. It is an illness as a result of our body malfunctioning, not a personal weakness.

I would advise you to resume your meds at a lower dosage for another 6 months, then try weaning off them again and see how you do.

Just my two cents.

MitziG Enthusiast

Also, be sure to have your Vit D, iron/ferritin and B12 levels checked. They are often low in celiacs and can contribute to depression. Having a thorough thyroid checkup would be a good idea too.

YoloGx Rookie

I agree with what Mitzi said, though other things can contribute like the cross contamination and damaged villi in the intestines causing mal absorption of basic nutrients you need for healthy nerves and brain etc. like B vitamins and vitamin E as well as the minerals (calcium, magnesium, zinc, trace minerals).

Sometimes taking pancreatic enzymes and probiotics to improve digestion, and things like dandelion root or nettles or barberry (we are all so very individual--what agrees with one may not with another) to help out the liver, and perhaps St. John's Wort (as a tea--not as a tincture due to gluten likely in the alcohol) as a mild herbal non addictive anti-depressant can be a winning combination.

One other thought--are you certain there was no gluten in the anti-depressant pills?? Sometimes its there and then you go through withdrawal symptoms when you finally go off them.

Other possible sensitivities can also create depression and mood swings too--like lactose or casein or various food chemicals (salicylates, amines and even oxalates or tannins). Often the damage the gluten does sets us up for other sensitivities that really can affect our moods amongst other things. Sugar by the way is in general really damaging and can set up addictive mood swings all by itself.

So my best suggestion is to keep sleuthing and narrow down the possibilities.

Bea

ravenwoodglass Mentor

You have gotten some good advice already. As others have mentioned glutening in itself can cause mood issues so do make sure you are doing all you can to prevent even small amounts of CC. Eat as cleanly as possible. One thing that wasn't mentioned was excercise. Getting out and going for a walk or jog, swimming or doing in home excercise can help a bit. For some talking with a counselor can be helpful in learning to deal with stuff and how not to take it out on those we care for.

If you do decide to go back to a low dose of your meds, or any med, be sure and let your doctor know if you are using any herbals or supplements that contain them as some combinations can have bad side effects on their own and especially when combined with prescription meds.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

I have suffered with psychatric issues since teenage years. I understand your thinking getting off the meds. Some you can lower doses but you may still need a bit extra to get thru.

You may want to research some mood stabizers. They can be effective, especially since you feel you are not depressed. Fish Oil is a natural mood stabilizer. Lentra is another mood stabilizer. There are also other supplements to help with depression and anxiety. SAMe or L tyrosine and Deplin. And of course Be Complex.

There are more, I just can't think of them but, you can find them with research.

There are also devices such as light boxes and neural stimulators, one is Alpha Stim.

Good luck and I hope you find some relief.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748

    Jane Margaret
    Newest Member
    Jane Margaret
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.