Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Behavior Issues/tantrums


divamomma

Recommended Posts

divamomma Enthusiast

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Both my boys will have meltdowns and behavior issues when they are tired, overstimulated or getting sick especially from strep. My oldest also has mood issues when his allergies are bothering him.

There is also the same issues when my youngest son gets a bad glutening. Sometimes it is hard to tell. My oldest doesn't have behavior issues when he is glutenened so he is a good indicator for the youngest. If they are both having issues at the same time and kids are getting sick at school then I can pretty much figure that out.

nvsmom Community Regular

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

frieze Community Regular

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

yeah, hadn't thought of that. Perhaps it is anticipatory rather than result.

kittty Contributor

Could it be another intolerance?

I was exactly the same way as a child, and the doctor suggested cutting out all artificial food colorings. It worked! Red and yellow colorings are especially notorious for causing behavioral problems. Several of them have already been banned in the US, but the ones that aren't banned can still be just as harmful.

divamomma Enthusiast

I don't think it is school causing stress or her not wanting to go. She is happy at school and always goes to school without issues. I am wondering about other intolerances but don't even know where to start for that.

mamaupupup Contributor

Hi there,

I'm so sorry to hear she's having a tough time. Her behavior is very similar to one of my twins (both have Celiac...but very different responses to the disease...). My girls are about to turn 6 (we homeschool, so I see just about everything they consume/do!).

I'm seriously considering taking our twin who has little impulse control when she gets cc or glutened off of casein (milk/dairy). As I read more, it seems that casein and gluten have similar molecular structures. I have little more to offer other than to say "You are not alone."

Thinking of you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kelleybean Enthusiast

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!

I agree with what someone else said - my son seems to have a reaction to food dyes. Super annoying that it's in everything! I'm also wondering if there could be another intolerance, like dairy. Another idea might be high fructose corn syrup. I would keep a food log and see if you can find a pattern.

Thought of something else ... does your daughter have any sleep issues? My son goes through periods when he doesn't sleep well, and we see big behavior changes there.

Takala Enthusiast

Sounds like a cross contamination issue, are you going out to eat on Fridays or Saturdays ?

Where you start is easy. Write down everything she eats. Look for the changes. Correlate what was eaten and what happens later.

She may just need to be reminded to wash hands and rinse very well, before eating.

Oh, and those food dyes.... my goodness, yes, that stuff has even gotten me sometimes, I had to switch my candy bar treats to one that doesn't have it, and I stopped eating ice cream that is obviously "colored," (like green) because I noticed that I was getting temperamental after eating a certain kind with a lot of colorings. And I'm an adult !

MitziG Enthusiast

I would recommend a food diary. My celiac son had the same issues, and we finally discovered caffeine, food dyes and dairy all would cause the nasty emotional outbursts. As long as we keep himm away from them, he is a nice little boy! :)

lindsayanne0 Newbie

My son was the same way. We had got gluten free but we were still having some behavior issues.

I ended up cutting our dairy, as well, and it made a BIG difference. Try cutting out dairy and go from there. If there are still issues, do an elimination diet. We've found that he can have limited amounts of dairy (as minor ingredients in something)and still be okay...but not something with it as a main ingredient.

I had also found that he was having more issues during the week than during the weekend and found that at school he was still having items with wheat and dairy in them. Once we nipped that in the bud he was good to go!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    CRae
    Newest Member
    CRae
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.