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My 3 Boys Diagnosed

krisb

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krisb Contributor
krisb
Posted

My 8 year old was diagnosed first. So I decided to get the younger boys tested. I found out on my birthday that they all tested positive. I called the GI and told them I don't want to put the younger boys through the scope. She said I can just start the diet since they all have the symptoms, they have the pos. blood test and there brother has it.

My test came back negative but I was told to try the diet since I have many symptoms also plus seizures.

My 5 year old is in denial. he is mad and is yelling at me. He yelled at me at the store because I wouldn't let him get a cookie. He's not taking it well.

My 8 year old is doing so good. he thinks he is already getting stronger. Cute. And he was very moody this morning. I asked him why and he said it was because of the celiac.

My 2 year old has no clue.

So I think I wil be here more often. I need help. I was used to my 8 year olds limited diet because of his food allergies but now I have to eliminate wheat and gluten also. It's hard. He alread can't have peanuts, nuts, seeds, soy, legumes, plums, and apples. It's just a little change adding gluten to that but it's hard.

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Guest nini
Guest nini
Posted

It will probably be easier on you if your whole family is gluten free, that way the boys won't feel left out at home... (just a thought)

also, there are some incredible gluten-free cookies out there. Do you have a Whole Foods near you or any other health food store that carries gluten free goodies?

This site is excellent for finding great products so that the kids can feel like they are eating "normal" foods.

My daughter is five and has been on the diet since she was three. She's adjusted very well and loves to share her gluten free goodies with her friends at school. We are all gluten-free here at home. Hubby doesn't have to be but he decided it was easier on us at home and he's trying to cut gluten out of his diet when he's not at home too.

Carriefaith Enthusiast
Carriefaith
Posted
I need help. I was used to my 8 year olds limited diet because of his food allergies but now I have to eliminate wheat and gluten also. It's hard. He alread can't have peanuts, nuts, seeds, soy, legumes, plums, and apples. It's just a little change adding gluten to that but it's hard.

The best thing to do is to go out and get a gluten free recipe book and/or a book about celiac. I recommend Wheat Free Worry Free by Danna Corn. Also, a gluten free product list would come in handy. I have one if you want it... my e-mail is carriefj@hotmail.com and I can send it to you. I know the diet is hard and overwhealming at first, but once you get the hang of it and find out what they can/cannot eat than things will get better.

Your sons diet sounds very restrictive... how about making a pile of things that he likes and can eat on your days off and then freezing it. This is very convenientt for those days when you cannot cook and need something fast. Some foods that freeze well are gluten-free pizza, casseroles, muffins, gluten-free bread, smoothies, ect.

skoki-mom Explorer
skoki-mom
Posted

Kris, it must be so hard to keep track of what everyone is doing! My 2 girls just got negative test results back today and I was sooo happy, I'm sorry things did not work out that way for your boys. While I think there are far worse things to have than celiac disease, it is just such a worry to think about what might be going into them when we aren't there to supervise. I think my kids would have been having tantrums too, especially my 7 year old, so I think that is developmentally appropriate. Your 8 year old is probably already "used" to being aware of what he eats and that's why he may seem to be coping well with it. I agree that just maintaing a gluten-free house will take a lot of headaches out of things for you, I have to be very careful my kids crumbs and stuff don't get into my food, but they are being pretty good and often ask me "can you eat that Mommy??" and then they cheer when I say yes, lol.

Anyhow, sending hugs your way and I really hope that you and your boys start to feel better soon!

KaitiUSA Enthusiast
KaitiUSA
Posted
My 5 year old is in denial. he is mad and is yelling at me. He yelled at me at the store because I wouldn't let him get a cookie. He's not taking it well.

Why not let him pick out a candy he can have then? There is quite a bit we still can have.

Do you have the Delphi list?

Also, do you have the names of the mainstream companies that will not hide anything even under otherwise questionable ingredients? Those are very helpful and save us alot of time.

Do you have the safe and forbidden foods list?

This is a great resource so you definitely came to the right place. Please feel free to contact me if you need any help. :D

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

Very tasty bread, donuts, bagels, pizza crusts. Order tons. Shipping on orders up to $200 is only $10. Store in freezer.

Open Original Shared Link

Here are two good sites for ordering tasty food. Shipping is reasonable at Kinn-

Chebe, not so reasonable. However, Chebe is very versitile, I shudder at the prices but order because it offers such a wide variety to our diet. We particularly like the garlic onion chebe. Adding extra garlic salt/olive oil, to pizza sticks made with the garlic onion chebe is great. You can use rice milk or water instead of milk. You don't have to add cheese if you guys have a dairy issue. We make corn dogs with Chebe and "Hot Pockets", - chebe rolled flat, filled with broccoli, ham, chicken, cheese, spaghetti sauce, pepperoni, mozzerella, pesto (not all at once!) :lol: Great dinners... or buns with butter, or garlic sticks. Definitely a must have. Order tons *shipping sucks* but stores in a pantry in individual dinner sized serving bags. Very convenient.

krisb Contributor
krisb
Posted
  • Author

Thanks,

I went out and bought a bunch of ice cream and candy. I bought some chococlate for them to keep in school. I did make them cookies but I didn't read the lable properly and it contained almond meal. i could have killed my son. He did eat them too and thank God he didn't react. I'm just in the proccess of figuring out what is safe.

I also made my first loaf of bread. It was from the gluten free pantry. They do proccess it on the same lines as almonds but they clean in between. Other nut allergic people said they haven't had a problem with it. It came out good and my boys liked it.

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redheadheather Explorer
redheadheather
Posted

Just a note to let you know that it does get easier. My son took it pretty well initally too (he also has a nut allergy). He's 6. He was (and still is) sad that he can't have certain things (like McDonald's chicken nuggets and pizza from the pizza place). But, we've also figured out "replacements" that he's been happy with. I found a recipe for "McDonald's nuggets" and while they aren't exactly the same... he likes them. And pizza has been a success as well. The more we learn about where to find foods and recreating his favorites and the more "normal" we've made eating this way - makes DS not think twice about it. He likes that he has his own treat drawer (thanks to whoever on this board suggested it - it's working out great) with gluten-free varieties of cereal bars, pretzels, etc.

Kingschild Newbie
Kingschild
Posted

(((Hugs)))

I'll be thinking about you and your boys today. Especially your little 5 year old. I have a 5 year old son and he's getting tested soon.

Mysti

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

I posted some "normal" food ideas here. I have three kids too. We eat food that looks like what everybody else is eating.

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