Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Under The Age Of 25?

inducedjoy

Recommended Posts

inducedjoy Newbie
inducedjoy
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvrdeo Apprentice
luvrdeo
Posted

I'm a few years past 25 (not quite 30 lol), but can 100% relate to what you're going through! I've gone mis-diagnosed since high school, where I repeatedly got sent home for "anxiety attacks" which I now suspect were the beginning stages of celiac. I just got diagnosed 2 months ago, and on Monday got dairy, grains, and corn taken away on top of the gluten. There is nothing easy about this! Luckily for me, one of my best friends is also celiac, so I've had someone who's brain I could pick. The rest of the time, I try to relate on here...and like you, sometimes certain scenarios just don't fit my life at all!

shadowicewolf Proficient
shadowicewolf
Posted

I'm 22 if that helps any.

But, yep, it stinks when doctors and who have you don't listen to ya.

lisasanner22 Newbie
lisasanner22
Posted

Age 17. ive been gluten-free for 5 years and i know what you mean by missing school and trying to tell your boyfriend or anyone for that matter that you cant eat this or that.. it really gets annoying after a while. you want people to understand but they dont.. i figured the best thing is to explain it like an allergy. and to be honest i told my boyfriend before i even started to date him that i was gluten free and he asked about it and it was hard to explain it to him because its like how do you explain so much to them in so little time. like to start with and that was hard, but i was glad i told him first that way i new later on that hes not leaving me for someone else because of celiac. and with missing school it happens at first and there is nothing you can do because you feel like crap or your throughing up or something. but the longer your on the gluten-free diet you realize that you dont really get sick anymore. in the past 3 and 1/2 to 4 years i havnt missed a day of school and thats because i totally live a gluten free diet and once my body got adjusted and is getting the nutrients now. my body is "back to normal" yes there will be changes but its life. and i hope this helped. but going to pray the best for you, if thats okay. i know that has helped me with so much!! Lisa <3

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

hottati Newbie
hottati
Posted

Hey!

I am also 19 and have never met anyone else with Celiac. I have only been diagnosed for about a year and a half now and it is definitely a challenge when trying to go out to eat with friends (or like you said explaining to potential boyfriends). It would definitely be nice to have someone who understands to talk to.

inducedjoy Newbie
inducedjoy
Posted
  • Author

If anyone wants to talk, my email is aviola93@gmail.com. Shoot me a message and maybe we can chat on fb!

  • 2 weeks later...
hagermeister11 Newbie
hagermeister11
Posted

Newly diagnosed here. 21 years old. After years of all kinds of issues, I finally went in for testing last week. I really didn't know what I would be getting myself into with changing my diet so drastically, but honestly, it isn't as bad as I figured it would be. I understand I'm still rather fresh on the change, but I do feel a bit better already. I'm sleeping better, I have more energy, no more headaches, and my outlook on life is back to where it used to be. I'm excited to keep up the changes and see how much better I feel after a few months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AshBil Rookie
AshBil
Posted

Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!

  • 1 year later...
Hobbes Rookie
Hobbes
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

 

I can definitely relate to how you feel. I've never met anyone my own age (or any age!) who has celiac. I'm pretty fortunate though because my girlfriend is very understanding, and won't even touch anything with gluten. I'm 20 btw, working as an intern at 2 different places this summer and it's been quite the challenge so far.  

  • 11 months later...
pghkid33 Rookie
pghkid33
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Not sure if you'll read this, but I'm 23 and I'm kind of in the same boat. I have a few friends that have Celiac, but they're not super close to me (both in terms of friendship and proximity) so we don't really talk to much. I'd love to have someone else to talk to, other than damn doctors or nutritionists haha. I know what it's like to miss school, or work, or social gatherings (it sucks). I'm on here a good bit, feel free to shoot me a msg

  • 3 weeks later...
MissMusician Newbie
MissMusician
Posted

Hey InducedJoy!

I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!  :)

  • 5 months later...
MissL101 Newbie
MissL101
Posted

Hey! I'm Lisa Marie and I'm about to turn 22.

I'm still in the pre-stages of being actually diagnosed but since I went gluten free I'm feeling better. This stinks since now I have to be conscious about the places my friends want to go. Plus side: Gluten free cookies from publix = the bomb.com

  • 10 months later...
katesyl Apprentice
katesyl
Posted
On October 10, 2012 at 11:14 AM, inducedjoy said:

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

I am twenty-five now. I was diagnosed at age twenty-two. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,193
    • Most Online (within 30 mins)
      7,748
    Loiswxm333
    Newest Member
    Loiswxm333
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.