Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy?


MdkIrish

Recommended Posts

MdkIrish Newbie

Hi, I have been diagnosed with Celiac disease 4 weeks ago. I thought I was getting a handle on the dietary needs by reading all the info I can find and meeting with a dietician. Today at my Dr. appointment he said I also had to be aware of cross contamination with Soy. I guess I'm back to the deer in the headlights feeling. I'm wondering if I could get some advice on where to start sorting this out? Thanks for any advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Generally, some celiacs are fine with soy; others are not. Its the same with dairy and nightshades; some people can handle them and others not.

tarnalberry Community Regular

He may have meant that most soy sauce contains gluten (wheat). It is clearly listed on the label.

Lisa Mentor

Soy beans can be grown in the same fields (not at the same time, obviously). So it's not an outrageous concern.

But, I would suggest that you concentrate on removing all gluten from your diet for an extended time period. If....after you're satisfied that you have been "clean" from all gluten (as much as possible), then explore other potential intolerance's.

One step at a time! ;)

And welcome!

MdkIrish Newbie

Good advice. I'm learning each time I log in I feel better every day without gluten in my diet. Thanks for the welcome.

CeliacSubie Newbie

I am also a new celiac and was warned of soy which I have found to be troublesome. Also tapioca which is disappointing since so many products that are gluten-free contain either soy or tapioca flours. Learning to cook decent means has been a challenge and I do miss bread terribly. Pizza was a fond memory until Dominoes gluten free which I actually find quite tolerable. I have a supportive boyfriend, however, and friends have finally stopped offering cakes, pies and cookies. I am new to researching it and looking forward to learning more. Thank you all for being here.

sa1937 Community Regular

I am also a new celiac and was warned of soy which I have found to be troublesome. Also tapioca which is disappointing since so many products that are gluten-free contain either soy or tapioca flours. Learning to cook decent means has been a challenge and I do miss bread terribly. Pizza was a fond memory until Dominoes gluten free which I actually find quite tolerable. I have a supportive boyfriend, however, and friends have finally stopped offering cakes, pies and cookies. I am new to researching it and looking forward to learning more. Thank you all for being here.

Are you saying that you think tapioca has gluten or that you cannot tolerate it? Tapioca flour/starch is a gluten-free product, which a lot of us use in baking. You might want to check these lists of safe and unsafe ingredients and also the Newbie 101 topic.

Edit: If for some reason you cannot tolerate tapioca, there are other starches that can be substituted in baking (potato starch, cornstarch, etc.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMDBill Apprentice

Some of the dangers you will find will be in products like soy sauce, teriyaki, worchestershire, chicken and beef broth and other additive products. Archer Daniels Midland is a giant company that makes tons of food additives (citric acid, xantham gum, etc) and you'll need to learn which of those products are derived from wheat, barley or rye. Plus watch for things like "natural flavoring" as well. Sometimes those are safe, sometimes not. Your body will let you know, but that's the worst way to find a food contains gluten. I have an app on my phone just for gluten containing ingredients...basically lists whether they are safe or not. Works great in a crunch when I can't recall from the hundreds of ingredients whether something is safe.

  • 2 weeks later...
Pegleg84 Collaborator

Probably your doctor meant soy sauce, which usually includes wheat.

However, some celiacs (me included) end up with an intolerance to soy (including me). However, since you have just started eating gluten-free and are still healing, as another poster said, give youself a few months to heal before worrying about other food intolerances. If you're getting symptoms after that, then you can look at soy (dairy/casein is another common problem) as a culprit.

In the meantime, just be very careful when reading labels. There are great gluten-free soy sauces out there, and you can make your own teriaki, etc, or carry some with you to sushi restaurants and such.

Happy healing

Peg

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,375
    • Most Online (within 30 mins)
      7,748

    Sher Lee
    Newest Member
    Sher Lee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.