Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disaster Glutening


MJ-S

Recommended Posts

MJ-S Contributor

Out of town in Cary, NC for a funeral. Needed to eat dinner. So went to Biaggi's. This is why I never eat out. They brought me regular pasta. I was one or two bites in before someone came running out of the kitchen. This is AFTER I grilled the guy (not our server) who brought the food out - he confidently said yes when I asked him to confirm it was gluten free. Turns out the real gluten-free pasta is A DIFFERENT COLOR. HOW DO YOU MESS THAT UP?????????

This is far far far more gluten than I've eaten in almost two years. I've taken an amytriptiline and scared about what to expect, considering how badly I react to microscopic amounts. I'm loading up on water and have the Pepto Bismol on standby.

Lower stomach pains and gas have started already (just got back to the hotel room).

sad.gifsad.gifsad.gifsad.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deb445 Rookie

Oh my....this is what I literally have nightmares about. Do you carry Gluten Relief by Natural Factors (Proteases I, II, III, Plant Protease, Amylase, Cellulase, Lactase, Alpha-Galactosidase, Lipase)with you? Motrin gel caps for the pain? You poor girl. Hang on! You'll make it through.

pricklypear1971 Community Regular

Oooh noooo!!! Probiotics? Digestive enzymes? Vodka???

shadowicewolf Proficient

oh dear :(

Do you have any confort foods handy?

MJ-S Contributor

none of the above, although i did have a glass of wine with dinner. just the pepto bismol. i'll try to go to bed as soon as possible and hopefully be able to sleep. ugh.

pricklypear1971 Community Regular

I always pass on the gluten-free pasta after getting glutened at an Asian Fusion place. I swear they either gave me the wrong noodles or boiled them in gluteny water. Like you, I ordered gluten-free and double checked. And yet - I was hit. Bad. Should have known it when I got to the bottom of it and saw the shrimp (I had requested no shrimp since I was low iodine then).

I'm pretty sure they just gave me a "regular" version and called it gluten-free.

deals88 Rookie

U seem to know what helps yourself already but in case you haven't tried i use coconut water when ive been gluten-ed and it really helps especially with the tiredness just as long as i lye in bed for 20 mins. Hope you get better soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Last time I got glutened I knew when it happened, which helps as I take 48 hours to react. I went out and picked up activated charcoal in capsules, digestive enzymes, and Yogi detox tea. It went much smoother than I expected, the charcoal is an effective binding agent, I never even needed Imodium. Some people are finding relief from nettle tea as well.

nvsmom Community Regular

Oh no! (((hugs)))Good luck! I hope it isn't too bad for you.:(

GFinDC Veteran

Bummer. I'd be hitting the Pepto pretty hard myself, maybe every couple hours. Aspirin too. The charcoal capsules and nettle tea sound like a good idea to me.

kittty Contributor

It's not going to help the horrible symptoms you're going through, but have you written to the restaurant manager or corporate office and explained what happened? They really need to be aware of it. Mistakes happen, but people like that do not need to be working in the restaurant industry.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

    2. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    4. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

    5. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,712
    • Most Online (within 30 mins)
      7,748

    Gina1970
    Newest Member
    Gina1970
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.