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Protein And The Kidney

Kryptonite

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Kryptonite Apprentice
Kryptonite
Posted

hi all, its been awhile,just wanted to leave an update on the protein issue,back in april 2012 protein was found in the urine it was 1.3 grams 24hr.tests were done to rule out other conditions that could cause the issue,all can back fine.so its just a kidney malfunction no biopsy was down becasue the protein went down to 853mg 24hr,and gfr is still high in the 90's.creatine /bun is still good, also nothing is getting worse,i see him every 4 months for blood and urine work to keep things in check taking 40mg of micardis for the blood preasure that seems to help the protein levels.anyone here ever have an issue like this.

thanks kryptonite

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GFinDC Veteran
GFinDC
Posted

Thanks for the update K! I haven't had kidney issues myself, but it sounds like you are doing better eh? That's good to hear! :)

megsybeth Enthusiast
megsybeth
Posted

Hi Kryptonite,

I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.

Thanks,

Megan

Kryptonite Apprentice
Kryptonite
Posted
  • Author

Hi Kryptonite,

I'm glad you're on the mend. Did your doctor tell you about the link between Celiac and kidney issues? My 4 year old is in the midst of testing and can't get to the celiac specialist until Nov. 28. On the labs his regular GI sent me I saw low creatine levels and a high BUN ratio but she had written, "looks ok". She's terrible about calls and I was going to discuss with specialist but is it something I should be concerned about? For what it's worth I believe he has celiac, though blood work has not confirmed it. He has strong symptoms and I just tested positive.

Thanks,

Megan

yeah doc told me that it could be celiac i also have hypo thyroid also.its a mess lol.you might want to try a kidney doc for those test results.also push for the celiac tests also to confirm. my kid has to be checked also.maybe keep your kid gluten free my kid is gluten free also but is not confirmed yet.

Kryptonite Apprentice
Kryptonite
Posted
  • Author

Thanks for the update K! I haven't had kidney issues myself, but it sounds like you are doing better eh? That's good to hear! :)

yeah rgr that thanks

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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