Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medications Containing Gluten?


KnightRobby

Recommended Posts

KnightRobby Enthusiast

So I have briefly heard about medications containing Gluten and was wondering how true this is? I am on medications for severe chronic head pain and needed to know if this could be making me feel worse.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

It is possible that a medication would contain gluten.

Anything injected is going to be gluten-free since gluten is a binding agent that would interfere with the flow and likely jam the needle.

Capsules are made from gelatin, which is gluten-free. Because the capsule contains the medicine, no fillers or binding agents are needed.

Tablets need a binder. The most common one is corn starch, but in some cases wheat is used. You need to ask, unless the label lists all inactive ingredients, or declares it to be gluten-free.

ravenwoodglass Mentor

I call the maker of any medication that I need to take. Any scripts I have gotten have the makers name somewhere on the bottle in little tiny letters. I put their name and the words contact info in a search engine. Usually that will bring up a phone number. I do not ask if the med is gluten free because technically some wheat starch is considered to be so processed that it is gluten free. I tell them I have a wheat allergy. Rye and barley are not a concern in meds from what I have seen.

Adalaide Mentor

Like raven I call the manufacturer of every medication I take. I call before filling prescriptions by simply asking the pharmacy what manufacturer they will use to fill with. I can either ask them for a contact number or google it on my phone. Or at this point I have most manufacturer's numbers stored in my phone. I do ask if it is gluten free, but also ask them to source the starch and binder for me. They will all at some point during the call give you some "we don't test final products or guarantee blah blah blah" statement. This is normal, do not get paranoid. As long as they can confirm that the product has no wheat sourced ingredients you should be good.

Do NOT fill a prescription without first calling. You can not return it once it is filled. Don't waste your time if it's Roxanne, they don't even answer their phones I found out yesterday. They have an automated "we don't answer questions about what's in our drugs" message so they can go take a flying leap imo. I had a hell of a time filling a scrip yesterday with two of the manufacturer's offices being in New Jersey. Another was Roxanne. One said they'd get back to me later. I was one step away from a compounding pharmacy for god only knows how much money before I got a manufacturer who could answer my questions on the phone. It took over an hour. Many manufacturer's are east coasters, if at all possible schedule all doctor's appointments in the mornings or early afternoons. If it is after about 2 and you are on mountain time or later, you likely won't be filling any scrips until the next day.

Last, do not trust lists online of gluten free drugs. One of these lists has a drug that I would have taken if I hadn't called the manufacturer. They told me over the phone that their starch is sourced from wheat but they consider it to be gluten free. Yeah, and good luck getting me to take that too. Benefiber considers their product to be gluten free and it is literally wheat starch. I think companies out to make money and I just have different opinions of what defines gluten free, under 20 ppm doesn't count.

KnightRobby Enthusiast

Okay. I had a feeling. This is such a pain in the butt because of my chronic pain and the meds I take because of it. I'll have to call.

I just picked up a new medication that actually has the warning on it: May contain Soy or Peanuts. This is the first time I've ever seen an allergy warning on a medication.

So is Soy a problem in my Vitamin D prescription? I've read that Soy can be a problem because it is grown in rotation with wheat, but I don't have an actual wheat allergy.

Input would be greatly appreciated! Thanks.

ravenwoodglass Mentor

Soy can be a problem for some of us but not for all. If you don't get symptoms from consuming soy I wouldn't worry about that. If you are celiac or gluten intolerant. you need to avoid wheat in medications whether you have a true allergy or not. The reaction we get from wheat (gluten) is not an allergy it is an autoimmune reaction. The reason I say to drug makers that I have an allergy is because wheat starch is so processed it is considers gluten free but many of us will react to it anyway. I know it is a pain to have to check all meds but it will prevent you from having side effects related to gluten. There are enough side effects to the drugs themselves in some cases that we don't need gluten thrown into the mix.

lovegrov Collaborator

IMO, if the manufacturer is actually listing allergens and wheat isn't there, it's going to be safe.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.