Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update & Bone Age Testing

GlutenFreex4

Recommended Posts

GlutenFreex4 Rookie
GlutenFreex4
Posted

On the prompting of several of you (thanks again!) I contacted my son's paediatrician on Monday and requested blood work and a bone aging X-ray be done on him. I requested the X-ray as well because both a family member requested this done on his child (the child's result came back with bone age spot on their actual age) as well as a friend (the child's bone age was delayed). In both these cases, the children were very small for their ages. I learned yesterday that they seldom do this X-ray because often the results are somewhat devastating for children/parents who are hoping to find out more growth can be expected. And, often this is not the case. They are just destined to be smaller people.

My son's appointment to review the results isn't until next Friday however, we also had an appointment booked for yesterday at the allergist. I hadn't anticipated his tests or X-ray results to be so quick nor that the allergist (both work under the same umbrella of paediatric care) would have the results in his file. He did!

After I gave him a rundown of why I was concerned my son may have either a wheat allergy and/or issues with gluten he told us the serum blood work was negative for celiac. He also said that while celiac was outside his specialty somewhat, he felt the likelihood of celiac was low at best even before the test. Then he said that my son's bone aging X-ray, and the reason that he is so tiny, came back at age TEN! My 13.5 year old son has bones most similar to a ten year old :o And, given this result, which according to the allergist is unbelievably great news, it means that my son is a late bloomer and will simply grown later/longer than his peers. Furthermore, given his result, his growth chart needs to be adjusted and now places him just off the 75 percentile in both height and weight. It felt like Christmas for my son yesterday! All I had hoped for with the X-ray was to show that he was a least a little bit delayed so that he would have some extra growth. I never once thought it would be so substantial.

All that said, we are still gluten free and will be discussing the results of the serum test with his doctor next Friday. I still want to see what, if any improvement, we will find being of gluten. Though, I must admit that I'm feeling quite sluggish these past couple of days and think I'm might be going through withdrawal! Did anybody else find this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

:) Congratulations! :) I'm glad he had good news. and I hope a gluten-free diet kick starts his growth and he catches up quickly.

We're going through the exact same with my 9 year old son. His growth has steadily gone down the chart. He's getting his Xray within the next week, and he's just switched to gluten-free. I hope we get promising news like you did. :)

And yes, I went through a withdrawl from gluten. I was very tired and cranky for well over a week, but it did go...thank goodness :)

  • 3 weeks later...
maximoo Enthusiast
maximoo
Posted

Nearly 2 yrs ago our pediatrician ordered a bone age scan on my then 12.10 yp old dghtr. She was 4'7 and hadn't grown in 1.5 yrs. Her bone age was like 10.7, so almost 2 yrs behind. 1 yr later at almost age 14 her bone age revealed an equivalent age of 12.3 & she was 4'10. We will be doing another in Jan & she is just shy of 5 ft.

As soon as she went gluten-free she grew 3 in within the year. There is a lot of short stature in the family, so we know she will be petite. But I'm hoping she'll make it past 5ft. Both grandmothers 5'2 dad is 5'4 & I'm just under 5'6. She did get her cycle a few months ago so I hope there's still space btwn her growth plates. I've heard 2 different theories: 1) girls don't grow much after they get it, and 2) they can grow for up to 2 yrs after they get it.

Then again I've heard some celiacs can grow until age 25. Only time will tell.

Your son will grow. Observe his foot growth 1st. They are the 1st to grow & he may even skip sizes.Good luck tp you both!

frieze Community Regular
frieze
Posted

Nearly 2 yrs ago our pediatrician ordered a bone age scan on my then 12.10 yp old dghtr. She was 4'7 and hadn't grown in 1.5 yrs. Her bone age was like 10.7, so almost 2 yrs behind. 1 yr later at almost age 14 her bone age revealed an equivalent age of 12.3 & she was 4'10. We will be doing another in Jan & she is just shy of 5 ft.

As soon as she went gluten-free she grew 3 in within the year. There is a lot of short stature in the family, so we know she will be petite. But I'm hoping she'll make it past 5ft. Both grandmothers 5'2 dad is 5'4 & I'm just under 5'6. She did get her cycle a few months ago so I hope there's still space btwn her growth plates. I've heard 2 different theories: 1) girls don't grow much after they get it, and 2) they can grow for up to 2 yrs after they get it.

Then again I've heard some celiacs can grow until age 25. Only time will tell.

Your son will grow. Observe his foot growth 1st. They are the 1st to grow & he may even skip sizes.Good luck tp you both!

Probably won't gain much in hgt. "growing" also means "filing out" ie becoming more female shaped. she may well make five feet though.good luck
mommida Enthusiast
mommida
Posted

I am so glad for your son!

Yes there is a withdrawal period when you remove gluten from your diet. I also think it takes about 4 months for your taste buds to adjust to gluten free.

Maximoo,

Can you find out more infomation about growth after a girl's cycle starts? I have heard both theories, but why?

maximoo Enthusiast
maximoo
Posted

@ frieze: if DD would ingest enough calories she will fill out although she already has a cute little figure. I am sure she is still growing upward. B)

@mommida: The endocrinologist said girls can grow up to 2 years after menses begins, and the Dr. herself was barely 5'0. However most other health care personnel & lay ppl tell me girls will not grow much at all. But I believe the only way to tell is with a bone age test. Each person's growth plates fuse at a different age/stage. So until DD's fuses I will have hers checked every year. I am sure however that when a girl starts menses at a very early age like 9-10 they will be very short. I have seen evidence of this first hand. So I have to say in those cases the plates must fuse early. Nothing is absolute of course. :blink:

mommida Enthusiast
mommida
Posted

My 10 year old daughter has started at 10 years, one month. I'm just hoping she can get at least one inch taller than me (5' 1"). Oh well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


maximoo Enthusiast
maximoo
Posted

@mommida-you might want to get her bones scanned & then you 'll find out if her plates are fused or what her equivalent bone age is. I will keep getting my DD's done yrly until her bones have fused.

mommida Enthusiast
mommida
Posted

The poor kid has Eosinophilic Esophagitus too. She usually is hospitalized once a year for dehydration. She goes into a cycle of vomitting and she just has to get an I.V. I can't say that I would opt for any further medical tests at this point over height. I will mention it for her next yearly physical. (fingers crossed that will be the next time at the doctors)

maximoo Enthusiast
maximoo
Posted

poor baby! Hope these hopitalizations phase out.

The bone age scan is a 10 sec xray--over b4 you blink. It certainly wouldn't hurt to take a look-see at her growth plates. How tall is she again? and she is 10?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,960
    • Most Online (within 30 mins)
      7,748
    PMcCauley
    Newest Member
    PMcCauley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Newly diagnosed, struggling

      By Wheatwacked · Posted

      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Multiple symptoms and mixed provider responses

      By Wheatwacked · Posted

      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      Help vetting HLA-DQ typing provider

      By cameo674 · Posted

      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By cameo674 · Posted

      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      Worried about being isolated

      By Scott Adams · Posted

      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...