Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update & Bone Age Testing

GlutenFreex4

Recommended Posts

GlutenFreex4 Rookie
GlutenFreex4
Posted

On the prompting of several of you (thanks again!) I contacted my son's paediatrician on Monday and requested blood work and a bone aging X-ray be done on him. I requested the X-ray as well because both a family member requested this done on his child (the child's result came back with bone age spot on their actual age) as well as a friend (the child's bone age was delayed). In both these cases, the children were very small for their ages. I learned yesterday that they seldom do this X-ray because often the results are somewhat devastating for children/parents who are hoping to find out more growth can be expected. And, often this is not the case. They are just destined to be smaller people.

My son's appointment to review the results isn't until next Friday however, we also had an appointment booked for yesterday at the allergist. I hadn't anticipated his tests or X-ray results to be so quick nor that the allergist (both work under the same umbrella of paediatric care) would have the results in his file. He did!

After I gave him a rundown of why I was concerned my son may have either a wheat allergy and/or issues with gluten he told us the serum blood work was negative for celiac. He also said that while celiac was outside his specialty somewhat, he felt the likelihood of celiac was low at best even before the test. Then he said that my son's bone aging X-ray, and the reason that he is so tiny, came back at age TEN! My 13.5 year old son has bones most similar to a ten year old :o And, given this result, which according to the allergist is unbelievably great news, it means that my son is a late bloomer and will simply grown later/longer than his peers. Furthermore, given his result, his growth chart needs to be adjusted and now places him just off the 75 percentile in both height and weight. It felt like Christmas for my son yesterday! All I had hoped for with the X-ray was to show that he was a least a little bit delayed so that he would have some extra growth. I never once thought it would be so substantial.

All that said, we are still gluten free and will be discussing the results of the serum test with his doctor next Friday. I still want to see what, if any improvement, we will find being of gluten. Though, I must admit that I'm feeling quite sluggish these past couple of days and think I'm might be going through withdrawal! Did anybody else find this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

:) Congratulations! :) I'm glad he had good news. and I hope a gluten-free diet kick starts his growth and he catches up quickly.

We're going through the exact same with my 9 year old son. His growth has steadily gone down the chart. He's getting his Xray within the next week, and he's just switched to gluten-free. I hope we get promising news like you did. :)

And yes, I went through a withdrawl from gluten. I was very tired and cranky for well over a week, but it did go...thank goodness :)

  • 3 weeks later...
maximoo Enthusiast
maximoo
Posted

Nearly 2 yrs ago our pediatrician ordered a bone age scan on my then 12.10 yp old dghtr. She was 4'7 and hadn't grown in 1.5 yrs. Her bone age was like 10.7, so almost 2 yrs behind. 1 yr later at almost age 14 her bone age revealed an equivalent age of 12.3 & she was 4'10. We will be doing another in Jan & she is just shy of 5 ft.

As soon as she went gluten-free she grew 3 in within the year. There is a lot of short stature in the family, so we know she will be petite. But I'm hoping she'll make it past 5ft. Both grandmothers 5'2 dad is 5'4 & I'm just under 5'6. She did get her cycle a few months ago so I hope there's still space btwn her growth plates. I've heard 2 different theories: 1) girls don't grow much after they get it, and 2) they can grow for up to 2 yrs after they get it.

Then again I've heard some celiacs can grow until age 25. Only time will tell.

Your son will grow. Observe his foot growth 1st. They are the 1st to grow & he may even skip sizes.Good luck tp you both!

frieze Community Regular
frieze
Posted

Nearly 2 yrs ago our pediatrician ordered a bone age scan on my then 12.10 yp old dghtr. She was 4'7 and hadn't grown in 1.5 yrs. Her bone age was like 10.7, so almost 2 yrs behind. 1 yr later at almost age 14 her bone age revealed an equivalent age of 12.3 & she was 4'10. We will be doing another in Jan & she is just shy of 5 ft.

As soon as she went gluten-free she grew 3 in within the year. There is a lot of short stature in the family, so we know she will be petite. But I'm hoping she'll make it past 5ft. Both grandmothers 5'2 dad is 5'4 & I'm just under 5'6. She did get her cycle a few months ago so I hope there's still space btwn her growth plates. I've heard 2 different theories: 1) girls don't grow much after they get it, and 2) they can grow for up to 2 yrs after they get it.

Then again I've heard some celiacs can grow until age 25. Only time will tell.

Your son will grow. Observe his foot growth 1st. They are the 1st to grow & he may even skip sizes.Good luck tp you both!

Probably won't gain much in hgt. "growing" also means "filing out" ie becoming more female shaped. she may well make five feet though.good luck
mommida Enthusiast
mommida
Posted

I am so glad for your son!

Yes there is a withdrawal period when you remove gluten from your diet. I also think it takes about 4 months for your taste buds to adjust to gluten free.

Maximoo,

Can you find out more infomation about growth after a girl's cycle starts? I have heard both theories, but why?

maximoo Enthusiast
maximoo
Posted

@ frieze: if DD would ingest enough calories she will fill out although she already has a cute little figure. I am sure she is still growing upward. B)

@mommida: The endocrinologist said girls can grow up to 2 years after menses begins, and the Dr. herself was barely 5'0. However most other health care personnel & lay ppl tell me girls will not grow much at all. But I believe the only way to tell is with a bone age test. Each person's growth plates fuse at a different age/stage. So until DD's fuses I will have hers checked every year. I am sure however that when a girl starts menses at a very early age like 9-10 they will be very short. I have seen evidence of this first hand. So I have to say in those cases the plates must fuse early. Nothing is absolute of course. :blink:

mommida Enthusiast
mommida
Posted

My 10 year old daughter has started at 10 years, one month. I'm just hoping she can get at least one inch taller than me (5' 1"). Oh well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


maximoo Enthusiast
maximoo
Posted

@mommida-you might want to get her bones scanned & then you 'll find out if her plates are fused or what her equivalent bone age is. I will keep getting my DD's done yrly until her bones have fused.

mommida Enthusiast
mommida
Posted

The poor kid has Eosinophilic Esophagitus too. She usually is hospitalized once a year for dehydration. She goes into a cycle of vomitting and she just has to get an I.V. I can't say that I would opt for any further medical tests at this point over height. I will mention it for her next yearly physical. (fingers crossed that will be the next time at the doctors)

maximoo Enthusiast
maximoo
Posted

poor baby! Hope these hopitalizations phase out.

The bone age scan is a 10 sec xray--over b4 you blink. It certainly wouldn't hurt to take a look-see at her growth plates. How tall is she again? and she is 10?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.