Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?

KikiB

By KikiB
in Food Intolerance & Leaky Gut

Recommended Posts

KikiB Explorer
KikiB
Posted

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Soy can cause different symptoms in each person. Yours can be completely different from mine.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

If you have a soy intolerance, are the symptoms the same as being glutoned? I suspect I now have a problem with soy, but I'm not sure since this is all so new to me.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

KikiB Explorer
KikiB
Posted
  • Author

Thanks! It makes me nauseated, too, and makes my head foggy. I am keeping a food journal.

Good advice about GMO. I didn't realize soy was a part of that. It's so frustrating that California just voted down labeling GMO foods. Also, I was shopping for flours yesterday and it seemed that most of them contained soy lechtin. Ugh.

Soy causes extreme nausea in me. Your reaction could be different.

My best advise is to keep a food log and mark down any symptoms you may get. Many food reactions are delayed and having a written record helps put the puzzle together. One thing I would add..about 90% of the soy in the US has been genetically modified..around 85% of corn has too. They can cause bad reactions in our guts. I won't knowingly eat any GMO foods any more. Pay attention to your reactions to those especially.

cahill Collaborator
cahill
Posted

Soy is EVIL ! :ph34r:

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

KikiB Explorer
KikiB
Posted
  • Author

Vegetable oil can contain soy and not include it on the label?

Most vegetable oil ( in the US) is soy oil. Due to a legal loophole it does NOT have to have an allergy warning on the label.

cahill Collaborator
cahill
Posted

Vegetable oil can contain soy and not include it on the label?

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time eliminating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KikiB Explorer
KikiB
Posted
  • Author

I discovered it was in tuna after tuna started making me sick and I was trying to figure out why. Before that I never knew there was soy in tuna.

yes. If your bottle of vegetable oil just says vegetable oil as the ingredients , chances are it is almost all soy oil .

,, the reasoning was something like ,, the soy oil is so processed that it is no longer considered an allergen so there for no longer need an allergen label, quite the legal loophole <_<

things like tuna ,candy, lip balm,shampoo, vitamins and much much more can contain soy . I had a harder time elimating soy out of my diet then I did gluten .

as I said ................ Soy is evil, pure evil :ph34r:

Lady Eowyn Apprentice
Lady Eowyn
Posted

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

GFinDC Veteran
GFinDC
Posted

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

KikiB Explorer
KikiB
Posted
  • Author

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

GFinDC Veteran
GFinDC
Posted

Starkist gold cans do not have soy. It's just tuna and water.

I'm really caught off guard by the soy intolerance, which happened, as far as I can tell, the same time as I developed either Celiac or gluten intolerance.

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer
KikiB
Posted
  • Author

Thank Kiki, I looked at a CVS store today but all they had was Bumblebee and some off brand. The Bumblebee brand has soy in it.

KikiB Explorer
KikiB
Posted
  • Author

Soy is evil and really hard to avoid. I knew I'd get sick after eating out sometimes before my DX but never knew it was probably from the soy oil they use so much of.

The theory that there's no soy protein in the oil so shouldn't bother anyone is nonsense! It's hard to get multivitamins that are completly soy free too. The vitamin E or D they use is from cholecalciferol..usually derived from soy.

KikiB Explorer
KikiB
Posted
  • Author

Soy is similar reaction to gluten and as above makes me super nauseated.

Can't believe it - I can't eat canned tuna either - makes me really sick.

This all came on about 3 - 4 months gluten free and I have wondered if it is one of the reasons I can't eat gluten free processed food (health bars, choc, etc) they all contain soy. In the past (pre gluten-free - I think it was soy that gave me sore breasts).

It is my belief that soy is really bad for humans - get rid of it !! (Why is it in everything anyway :angry: ).

AnnJay Apprentice
AnnJay
Posted

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

KikiB Explorer
KikiB
Posted
  • Author

My reaction to soy is severe stomach pain, nausea, and maybe D. It's been awhile. At first I wondered if it was a gluten reaction but it wasn't as bad and didn't last as long.

As for foods, well, now that I'm avoiding gluten, dairy, soy, corn, and nightshades, I am spending a LOT of time in the kitchen. EVERYTHING has to start as live food and is cooked fresh. I am eating more nuts, more eggs, more meats and way more vegetables than I did before. I am cooking a lot now and freezing some so that I can have meals during busy holiday times.

Do you have a problem with soy lechtin as well?

Pegleg84 Collaborator
Pegleg84
Posted

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

KikiB Explorer
KikiB
Posted
  • Author

Soy is a real bugger.

I get lightheaded and nauseous, and the symptoms usually hit me quite shortly after eating, unlike gluten that takes a while to kick in. I can probably handle small amounts of soy lecthin if I take a digestive enzyme with it, but i've been doing my best to avoid it completely. I miss tofu thought. My bf is vegetarian, so finding/making things both of us can eat with good protein content is tricky.

even if you can eat soy, thought, GMO anything is nasty and should be avoided at all costs, so probably shouldn't be eating it too often.

Tuna is something else I only eat a few times a year because of the mercury content and the over-fishing problem. I NEVER get it in a can, so don't know about this soy broth thing. I'd say don't bother with canned tuna anymore (or switch to salmon).

As for substitutes, there's a good soy-sauce alternative made from coconut sap. It's expensive and tricky to find, but definitely nice.

And this "vegetable" oil = soy would definitely explain some issues I have with certain things that don't list soy as an ingredient. grrrr...

Make sure to check any cosmetics and such you're already using. I had a lip gloss i've been using for months that I finally looked and realised it has soy oil... oh. into the garbage it went.

It's a ton of work to cut out soy, and will probably involve more cooking from scratch, but if it makes you feel better, it's worth it.

Happy Healing

Peg

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

CarolinaKip Community Regular
CarolinaKip
Posted

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

CarolinaKip Community Regular
CarolinaKip
Posted

Thanks, Peg! I never would have thought to check my lip gloss for soy! Ugh.

This is how I figured out my soy problem! I didn't use a certain lip balm for two days and felt so much better!

KikiB Explorer
KikiB
Posted
  • Author

I usually feel about the same as being glutened, just with no brain fog/headache. I'm amazed at what does have soy in it, it's everywhere!

Thanks for letting me know. It's interesting to me to know how it affects others.

ncdave Apprentice
ncdave
Posted

There are soy-free tuna cans available. I don't remember the brand names but there are some. It was some kind of heath or organic brand of tuna that I saw. If you read the ingredients on most tuna it is packed in a broth that includes soy.

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

GFinDC Veteran
GFinDC
Posted

Good to

BumbleBee canned tuna labled very low sodium, solid white albacore is safe. It"s the one in the gold can, it"s even corn free!

Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.