Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Babies With Celiac, What Did You First Notice?


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

Hi guys,

I'm Celiac and wondered what symptoms did you first notice with your Celiac child or baby? I want to keep an eye out for my grandson. Thanks everyone!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

My grandson was 18 months when I was finally diagnosed. They had already removed several foods thinking an intolerance was causing severe loose stools and frequently sore tummy from birth.

When I was diagnosed, his Mom removed gluten - within days he had his first solid movement and his stomach aches disappeared within a few weeks. Thankfully, young children heal very quickly.

rosetapper23 Explorer

Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

GottaSki Mentor

OMGoodness...the connections to celiac are continually amazing. I believe I was undiagnosed my entire life for many reasons...but I had never heard the pigeon-toed symptom -- I had to wear corrective shoes for at least eight years because my toes turned in -- boy were they ugly!

ParentingWithPurpose Newbie

Hello,

My daughter was 3.5 years when I got the confirmed diagnosis.The symptoms that led to me asking for the testing were as previously mentioned,

irritability, moodiness, clinginess, inability to settle and very restless sleeper, dark bags under the eyes (some sort of defficiency?), and always suffering

from some sort of abdominal upset. At 2 years nearly every day without fail she would tell me"mummy,sore tummy" repeadetly. Then, she started getting

these intense muscle cramps in her legs- like little rocks in there! As well as severe joint pain in her hips, knees and ankles.

When I did my research and asked around I realized these could all be direct or indirect symptoms, as you're probably aware, of the flow-on effects on the body.

The joint pain and leg cramp thing is rarely listed as a common complaint- but her paternal aunt has it too- (the reason I was looking out for it like you) and she recollects getting horrible cramps around time of diagnosis too (which was 18 years for her).

Hope this helps :)

Mary5757 Newbie

Generally, besides stomach upsets and diarrhea/constipation, symptoms can include irritability, blanking out (staring into space), anxiety, clinginess, aggressive behavior, and moodiness/crankiness. This is what is taught at celiac conferences, and my nephew had ALL of these symptoms from a very early age. Also, look for toeing in of his feet once he starts walking--this can be an indication of Vitamin D deficiency.

These are all the symptoms my daughter had! I didn't know about the walking, my daughter does that too. She was very constipated, we had to give her miralax and then she would have awful blowouts. I thought she might be autistic because of the behavior. I wonder about the vitamin d deficiency though...now I'm worried!

my3monkees Rookie

My dd didn't get diagnosed until 11. But she had food issues from birth. I had to avoid all dairy while she nursed. She always had trouble with gas. We had to delay all food until 6 mo. because she just didn't handle it well. She had never had an antibiotic, but had yeast infections from just a few months of age. By age 3 had huge cavities in all her molars despite all our brushing. Stomach aches were a normal part of life. By age 10-11, she was the most miserable, cranky child. I thought my sweet little girl was gone. Turned out she was still hiding inside! At 15, she is a joy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
mamaofaceliac Newbie

Vomiting, dark rings under the eyes, severly dissented stomach, refusal to eat even her "favorite" foods (pasta, pizza, bagels...), failure to thrive are all symptoms we saw intensify up until diagnosis.

CarolinaKip Community Regular

Thank you all so much!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.